Upcoming and Previous Webinar Speakers

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    Ericson, William, MD presents

    Free Webinar: “Orthopedic Issues in the EDS Hand, Wrist and Arm”

    Learn More

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    Marcus, Norman Jay, MD presents

    Free Webinar: “EDS & Pain”

    Learn More

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    Afrin, Lawrence, MD presents

    Free Webinar: “Mast Cell Activation Syndrome”

    Learn More

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    O'Leary, Diane, PHD presents

    Free Webinar — “All in Your Head”: The Problem of Psychogenic Diagnosis for Ehlers-Danlos Patients

    Learn More

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    Ferman, John, DTM presents

    Free Webinar: “Results of the EDS Awareness World-Wide Survey”

    Learn More

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    Williams, Sara, MD presents

    Free Webinar: “Cognitive Behavioral Therapy as a Coping Skill for EDS”

    Learn More

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    Maitland, Anne, MD presents

    Free Webinar: “Mast Cell Activation Syndrome” Part 2

    Learn More

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    Schechter, Neil, MD presents

    Free Webinar: “Chronic Pain Hypermobile Children”

    Learn More

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    Ring Splints presents

    Free Webinar: “Anatomy and SilverRing™ Splints for Ehlers-Danlos Hands”

    Learn More

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    Gilmer, Holly, MD presents

    Free Webinar: “Chiari Malformation and EDS”

    Learn More

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    Grubb, Blair, MD presents

    Free Webinar: “Postural Orthostatic Tachycardia Syndrome (POTs)”

    Learn More

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    Meegan, Trish, DPT presents

    Free Webinar: “Physical Therapy for EDS”

    Learn More

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    Agnew, Patrick, DPM presents

    Free Webinar: “New Surgery for EDS Feet and Ankles”

    Learn More

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    Klinge, Petra, MD presents

    Free Webinar: “Tethered Cord Syndrome in Ehlers-Danlos”

    Learn More

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    Clancy, Kelly, OT presents

    Free Webinar: “New and Emerging Manual Therapy Approaches for EDS”

    Learn More

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    Bridgham, Clive, MD presents

    Free Webinar: “Chronic Pain Alternatives – with focus on inflammation and nutrition”

    Learn More

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    Muldowney, Kevin, MPT presents

    Free Webinar: “Physical Therapy Protocol for Ehlers-Danlos Syndrome”

    Learn More

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    Murray, Mitzi, MD presents

    Free Webinar: “How, Why and When: Genetic Testing in EDS for the Non-Geneticist”

    Learn More

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    Smith, Ellen Lenox presents

    Free Webinar: “Living Life Again with Dignity Using Medical Marijuana”

    Learn More

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    Stoler, Joan, MD presents

    Free Webinar: “Update on Complications and Rare Forms of EDS”

    Learn More

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    Ortiz, Jennifer, MPT presents

    Free Webinar: “Physical Therapy for Sexual Dysfunction in EDS”

    Learn More

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    Ferman, John, DTM presents

    Free Webinar: “Support Groups for Ehlers-Danlos Syndrome”

    Learn More

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    Mitakides, John, DDS presents

    Free: Webinar: “Musculoskeletal Headaches in EDS”

    Learn More

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    Agnew, Patrick, DPM presents

    Free Webinar: “Foot & Ankle Issues in EDS”

    Learn More

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    Dietz, Hal, MD presents

    Free Webinar: “Connective Tissue Disorder Research”

    Learn More

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    Theoharides, T. C., MD presents

    Free Webinar: “Mast Cell Disorders”

    Learn More

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    Tinkle, Brad, MD presents

    Free Webinar: “Introduction to Ehlers-Danlos Syndrome”

    Learn More

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    Jaekle, Ron, MD presents

    Free Webinar: “Pregnancy and EDS”

    Learn More

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    Sood, Manu, MD presents

    Free Webinar: “Gastrointestinal Disorders in EDS”

    Learn More

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    Tennant, Forest, MD presents

    Free Webinar: “Managing Centralized Pain in Ehlers-Danlos”

    Learn More

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    Allen, Cynthia GCFP presents

    Free Webinar: “The Feldenkrais Method and other Somatic Approaches to Improve Function and Ease”

    Learn More

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    Lavallee, Mark, MD presents

    Free Webinar: “Exercise is Medicine”

    Learn More

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    Ferman, John, DTM presents

    Free Webinars: “EDS Support Groups”

    Learn More

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    Epps, Howard, MD presents

    Free Webinar: “Orthopedic Considerations in EDS”

    Learn More

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    Dommerholt, Jan, DPT presents

    Free Webinar: “Physical Therapy for Ehlers-Danlos”

    Learn More

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    Burkholder, Henry, MD presents

    Free Webinar: “Postural Orthostatic Tachycardia Syndrome (POTs) and EDS”

    Learn More

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    Byers, Peter, MD presents

    Free Webinar: “Vascular Ehlers-Danlos Syndrome / EDS type IV”

    Learn More

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    Das, Subinoy, MD presents

    Free Webinar: “Sinus Care for Ehlers-Danlos Syndrome”

    Learn More

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    Gargano, Frank, DPT presents

    Free Webinar: “Dry Needling for EDS”

    Learn More

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    Lebron, Diana, MD presents

    Free Webinar: “Headaches and Ehlers-Danlos Syndrome”

    Learn More

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    Dhar, Shweta, MD presents

    Free Webinar: “Coordination of Care in Adults with EDS”

    Learn More

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    Kane, Kathleen, ESQ presents

    Free Webinar: “Social Security Disability Application Process”

    Learn More

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    Barnum, Richard, MD presents

    Free Webinar: “EDS and Psychiatric Illness Misdiagnoses”

    Learn More

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    Maitland, Anne, MD presents

    Free Webinar: “Mast Cell Activation Syndrome” Part 1

    Learn More

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    Pocinki, Alan, MD presents

    Free Webinar: “Chronic Pain, Poor Sleep, Depression, and Fatigue in EDS”

    Learn More

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    Neilson, Derek, MD presents

    Free Webinar: “EDS – Hypermobility Type”

    Learn More

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    Rowe, Peter, MD presents

    Free Webinar: “Managing Orthostatic Intolerance in EDS”

    Learn More

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    Lamoure, Joel, RPh presents

    Free Webinar: “Medical Psychiatry in Pain Management”

    Learn More

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    Palmer, Eric, BOCO presents

    Free Webinar: “Bracing for EDS”

    Learn More

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    Mitakides, John, DDS presents

    Free Webinar: “TMJ, Cervical Instability and EDS”

    Learn More

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    Kallish, Staci, MD presents

    Free Webinar: “Cardiac Manifestations in EDS”

    Learn More

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    Chopra, Pradeep, MD presents

    Free Webinar: “EDS and Pain… Connecting the Dots” Part 2

    Learn More

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    Wilson, Golder, MD presents

    Free Webinar: “EDS Spectrum and Dysautonomia”

    Learn More

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    Muldowney, Kevin, MPT presents

    Free Webinar: “SI Joint (Hip) Dysfunction”

    Learn More

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    Chopra, Pradeep, MD presents

    Free Webinar: EDS Pain Management. (Part 1)

    Learn More

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    Healy, Michael,DPT presents

    Free Webinar: “A Manual Physical Therapy Approach”

    Learn More

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    Smith, Ellen Lenox presents

    Free Webinar: “Taking Control of Life With EDS”

    Learn More

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    Goldschneider, Ken, MD presents

    Free Webinar: “Pain Management for EDS”

    Learn More

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    Mentesana, Carl, DDS presents

    Free Webinar: “EDS: A Dental Perspective“

    Learn More

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    Gandomi, Stephanie, MS presents

    Free Webinar: “The Evolution of Genetic Diagnosis and Why This Matters “

    Learn More

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    Holick, Michael, MD presents

    Free Webinar: “Nutrition and Vitamin D”

    Learn More

Directory of Local Support Groups

We help EDSers find or organize support groups in their local communities. Our free program provides each group with a listing on the Support Group Directory and Map, free webpages, coaching, and more… If there is no group in your area, we will help you survey interest and connect with local EDSers. Contact us at info@edsawareness.com for help or to be included in the directory.

Find a support group location by using the interactive map or the look-up menu below.

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Recent Articles

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Free Webinar: “Orthopedic Issues in the EDS Hand, Wrist and Arm” – August 2, 2016

Posted on July 22, 2016

  DATE: Tuesday, August 2, 2016 at 7:30-9:30pm, EDT PRESENTATION TITLE: “Orthopedic Issues in the EDS Hand, Wrist and Arm” PRESENTER: Dr. William Ericson Sponsored by www.bodysupportstore.com     Register early … This webinar will fill up fast.  If you do not get a “seat”, the recording will be posted on this page by Thursday 8/4/2016.   Instructions […]

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#ZebraStrong! The Ehlers-Danlos Society Zebra Rally in Baltimore’s Inner Harbor

Posted on July 18, 2016

The Ehlers-Danlos Society hosted the  #ZebraStrong, a rally in Baltimore’s Inner Harbor on Saturday, July 16, 2016 to build awareness for Ehlers-Danlos syndrome, an often painful and disabling, yet highly under-diagnosed and misdiagnosed genetic disorder. The rally was held immediately following the Society’s Global Learning Conference which was held at the Hilton Baltimore July 14-16. Over 500 attendees […]

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“Without opioids, life would be torture”

Posted on July 17, 2016

By PATRICK SKERRETT @PJSkerrett . As the nation begins responding to the epidemic of overdoses and deaths caused by opioids, some people with chronic pain who have relied on these powerful painkillers for years are finding them harder to get. A survey conducted by the Boston Globe and Inspire, a health care social network of 200 […]

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Free Webinar – “Results of the EDS Awareness World-Wide Survey” – RECORDING AVAILABLE

Posted on July 16, 2016

Watch the recording of this free webinar. Sponsored by www.bodysupportstore.com  TOPIC: Results of the EDS Awareness World-Wide Survey PRESENTERS: John Ferman and Deanna Hamm John Ferman and Deanna Hamm (father and daughter) are co-founders of the EDS Awareness Program. There were 2544 respondents to this World-Wide survey from 26 countries. The specific results were presented and discussed during […]

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More Articles

Testimonials

  • Thank you for all that you do you to make a difference in my life and the lives of so many.

    - Kristi

  • Hello John, Deanna and All at EDS Awareness Thank You -Again and Again!
    Your webinars continue to help our family and make measurable strides! 🙂
    With continued gratitude for your finding a way to help physicians and others understand
    the care needs among our population and for all with connective tissue disorders.

    - Kathi

  • John, my world has evolved immensely since you sent me an email a year and a half ago. I have EDS, dysautonomia, Mast Cell, etc. The information and lectures your organize provides have been invaluable.  I will be at the conference in Baltimore and saw your name on the list of attendees.  I really hope to meet you. Thank you again for all your help.

    - Sue S. in Cincinnati

  • If any doctor says there is no treatment for EDS and that you don’t need pain medication, give them the www.edsawareness.com website and tell them there is treatment and pain medication is necessary and they can see for themselves by watching the presentations of EDS specialists dealing with treatment, pain. PT and many, many other EDS and related disorder conditions.

    - Jon R. in New England

  • John  – Thank you for all that you are doing to help with EDS awareness.  You must be as busy in retirement as you were during your career – it is a lot to take on and much appreciated.

     

     

    - Ann-Marie W.

Upcoming Events

Ehlers-Danlos Hoofbeat Run Walk-N-Roll will include a 1 mile run/walk/roll, a 5K run/walk and a ½ marathon run happening on August 6, 2016 in King Ferry, NY.

August 6, 2016

7:30 am

Ehlers-Danlos Hoofbeat Run Walk-N-Roll will include a 1 mile... Read more...

See all upcoming events

Current Poll

How long until you received a proper diagnosis for EDS?

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