Upcoming and Previous Webinar Speakers

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    Doherty, Dan presents

    Free Webinar: Pharmacogenetic Testing to Assess Altered Drug Metabolism

      DATE: Tuesday, September 6, 2016 at 7:30-9:30pm, EDT TOPIC:   “Pharmacogenetic Testing to Assess Altered Drug Metabolism”  Struggling with Medications? ...

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    Pocinki, Alan, MD presents

    Free webinar: “Psychiatric Misdiagnoses in EDS: When is Anxiety not Anxiety?” – Recording Available

      TOPIC: “Psychiatric Misdiagnoses in EDS: When is Anxiety not Anxiety?” PRESENTER: Alan Pocinki, MD, FACP Sponsored by Ehlers-Danlos Hoofbeat Run...

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    Ericson, William, MD presents

    Free Webinar: “Orthopedic Issues in the EDS Hand, Wrist and Arm”

    Dr. William Ericson presents “Orthopedic Issues in the EDS Hand, Wrist and Arm” Sponsored by www.bodysupportstore.com  “Find out what hurts...

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    Marcus, Norman Jay, MD presents

    Free Webinar: “EDS & Pain”

      Watch the recording of this free webinar.   Sponsored by www.bodysupportstore.com  TOPIC: “EDS & Pain” PRESENTER: Dr. Norman Marcus...

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    Afrin, Lawrence, MD presents

    Free Webinar: “Mast Cell Activation Syndrome”

      TOPIC: “Mast Cell Activation Syndrome” PRESENTER: Dr. Lawrence Afrin     Click IMAGE for the recording of this presentation....

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    O'Leary, Diane, PHD presents

    Free Webinar — “All in Your Head”: The Problem of Psychogenic Diagnosis for Ehlers-Danlos Patients

    Watch the recording of this free webinar. Sponsored by www.bodysupportstore.com      TOPIC: “All in Your Head”: The Problem of...

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    Ferman, John, DTM presents

    Free Webinar: “Results of the EDS Awareness World-Wide Survey”

    Watch the recording of this free webinar. Sponsored by www.bodysupportstore.com    TOPIC: Results of the EDS Awareness World-Wide Survey PRESENTERS: John...

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    Williams, Sara, MD presents

    Free Webinar: “Cognitive Behavioral Therapy as a Coping Skill for EDS”

        Watch the recording of this free webinar. Sponsored by www.bodysupportstore.com    TOPIC: “Cognitive Behavioral Therapy as a Coping...

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    Maitland, Anne, MD presents

    Free Webinar: “Mast Cell Activation Syndrome” Part 2

    Watch the recording of this free webinar. Sponsored by www.bodysupportstore.com  . . TOPIC:  “Mast Cell Activation Syndrome in EDS Patients...

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    Schechter, Neil, MD presents

    Free Webinar: “Chronic Pain in Hypermobile Children”

      Watch the recording of this free webinar. Sponsored by www.bodysupportstore.com    . TOPIC: “Chronic Pain Hypermobile Children”   PRESENTER: Dr....

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    Ring Splints presents

    Free Webinar: “Anatomy and SilverRing™ Splints for Ehlers-Danlos Hands”

      Watch the recording of this free webinar. Sponsored by www.bodysupportstore.com   TOPIC: “Anatomy and SilverRing™ Splints for Ehlers-Danlos Hands”...

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    Gilmer, Holly, MD presents

    Free Webinar: “Chiari Malformation and EDS”

      Watch the recording of this free webinar. Sponsored by www.bodysupportstore.com     TOPIC: “Chiari Malformation in EDS” PRESENTER: Dr. Holly...

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    Grubb, Blair, MD presents

    Free Webinar: “Postural Orthostatic Tachycardia Syndrome (POTs)”

      Watch the recording of this free webinar. Sponsored by www.bodysupportstore.com   Presenter: Dr. Blair Grubb Topic: “Postural Orthostatic Tachycardia Syndrome...

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    Meegan, Trish, DPT presents

    Free Webinar: “Physical Therapy for EDS”

      Watch the recording of this free webinar.     Sponsored by www.bodysupportstore.com  TOPIC:  “Physical Therapy for EDS: Including how...

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    Agnew, Patrick, DPM presents

    Free Webinar: “New Surgery for EDS Feet and Ankles”

    Presenter:  Dr. Patrick Agnew Click here for a link to the announcement page

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    Klinge, Petra, MD presents

    Free Webinar: “Tethered Cord Syndrome in Ehlers-Danlos”

      Watch the recording of this free webinar. Sponsored by www.bodysupportstore.com TOPIC: “Tethered Cord Syndrome in Ehlers-Danlos” PRESENTER: Petra Klinge,...

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    Clancy, Kelly, OT presents

    Free Webinar: “New and Emerging Manual Therapy Approaches for EDS”

    PRESENTER: Kelly Clancy, OT Click here for a link to the announcement page

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    Bridgham, Clive, MD presents

    Free Webinar: “Chronic Pain Alternatives – With Focus on Inflammation and Nutrition”

      PRESENTER: Dr. Clive Bridgham Click here for a link to the announcement page

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    Muldowney, Kevin, MPT presents

    Free Webinar: “Physical Therapy Protocol for Ehlers-Danlos Syndrome”

      PRESENTER: Kevin Muldowney, MSPT Click here for a link to the announcement page

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    Murray, Mitzi, MD presents

    Free Webinar: “How, Why and When: Genetic Testing in EDS for the Non-Geneticist”

    PRESENTER: Dr. Mitzi Murray Click here for a link to the announcement page

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    Smith, Ellen Lenox presents

    Free Webinar: “Living Life Again with Dignity Using Medical Marijuana”

    PRESENTER: Ellen Lenox Smith Click here for the link to the announcement page

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    Stoler, Joan, MD presents

    Free Webinar: “Update on Complications and Rare Forms of EDS”

    PRESENTER: Dr. Joan Stoler Click here for a link to the announcement page

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    Ortiz, Jennifer, MPT presents

    Free Webinar: “Physical Therapy for Sexual Dysfunction in EDS”

    PRESENTER: Jennifer Ortiz, MPT, WSC Click here for the link to the announcement page

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    Ferman, John, DTM presents

    Free Webinar: “Support Groups for Ehlers-Danlos Syndrome”

    Presenter: John Ferman Click here for a link to the announcement page

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    Mitakides, John, DDS presents

    Free: Webinar: “Musculoskeletal Headaches in EDS”

    PRESENTER: Dr. John Mitakides Click here for a link to the announcement page

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    Agnew, Patrick, DPM presents

    Free Webinar: “Foot & Ankle Issues in EDS”

       PRESENTER:  Dr. Patrick Agnew Click here or a link to the announcement page

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    Dietz, Hal, MD presents

    Free Webinar: “Connective Tissue Disorder Research”

    PRESENTER: Dr. Hal Dietz     Click here for a link to the announcement page 

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    Theoharides, T. C., MD presents

    Free Webinar: “Mast Cell Disorders”

      PRESENTER:   Dr. Theoharis Theoharides   Click here for a link to the announcement page

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    Tinkle, Brad, MD presents

    Free Webinar: “Introduction to Ehlers-Danlos Syndrome”

    Presenter: Dr. Brad Tinkle     Click here for a link to the announcement page

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    Jaekle, Ron, MD presents

    Free Webinar: “Pregnancy and EDS”

    TOPIC:  “Ehlers-Danlos and Pregnancy” PRESENTER:   Dr. Ronald Jaekle   Click here for a link to the announcement page

    Learn More

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    Sood, Manu, MD presents

    Free Webinar: “Gastrointestinal Disorders in EDS”

    TOPIC:  “Gastrointestinal Disorders in EDS” PRESENTER:   Dr. Manu Sood Click here for a link to the announcement page

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    Tennant, Forest, MD presents

    Free Webinar: “Managing Centralized Pain in Ehlers-Danlos”

    PRESENTER:   Forest Tennant, MD, DrPH Click here for a link to the announcement page

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    Allen, Cynthia GCFP presents

    Free Webinar: “The Feldenkrais Method and other Somatic Approaches to Improve Function and Ease”

    Presenter: Cynthia Allen Click here for a link to the announcement page

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    Lavallee, Mark, MD presents

    Free Webinar: “Exercise is Medicine”

      Presenter: Mark E. Lavallee, M.D   Click here for a link to the announcement page

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    Ferman, John, DTM presents

    Free Webinars: “EDS Support Groups”

      Presenter: John Ferman   Click here for a link to our web pages

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    Epps, Howard, MD presents

    Free Webinar: “Orthopedic Considerations in EDS”

      Presenter:  Howard R. Epps, MD Click here for a link  to the announcement page

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    Dommerholt, Jan, DPT presents

    Free Webinar: “Physical Therapy for Ehlers-Danlos”

    PRESENTER:   Dr. Jan Dommerholt   Click here for a link to the announcement page

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    Burkholder, Henry, MD presents

    Free Webinar: “Postural Orthostatic Tachycardia Syndrome (POTs) and EDS”

    Presenter: Dr. Henry Burkholder Click here for a link to the announcement page

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    Byers, Peter, MD presents

    Free Webinar: “Vascular Ehlers-Danlos Syndrome / EDS type IV”

    PRESENTER:   Dr. Peter Byers Click here for a link to the announcement page

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    Das, Subinoy, MD presents

    Free Webinar: “Sinus Care for Ehlers-Danlos Syndrome”

    PRESENTER:   Subinoy Das, MD, FACS, FARS  Click here for a link to the announcement page

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    Gargano, Frank, DPT presents

    Free Webinar: “Dry Needling for EDS”

    PRESENTER:   Frank Gargano PT, DPT, OCS, CIDN, MCTA, CWT Click here for a link to the announcement page

    Learn More

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    Lebron, Diana, MD presents

    Free Webinar: “Headaches and Ehlers-Danlos Syndrome”

    PRESENTER: Diana Lebron, MD     Click here for a link to the announcement page

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    Dhar, Shweta, MD presents

    Free Webinar: “Coordination of Care in Adults with EDS”

    PRESENTER: Shweta Dhar, MD, MS, FACMG Click here for a link to the announcement page

    Learn More

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    Kane, Kathleen, ESQ presents

    Free Webinar: “Social Security Disability Application Process”

    Presenter: Kathleen Kane, ESQ   Click here for a link to the announcement page

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    Barnum, Richard, MD presents

    Free Webinar: “EDS and Psychiatric Illness Misdiagnoses”

        Presenter Dr. Richard Barnum   Click here for a link to the announcement page

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    Maitland, Anne, MD presents

    Free Webinar: “Mast Cell Activation Syndrome” Part 1

    PRESENTER:  Dr. Anne Maitland Click here or a link to the announcement page

    Learn More

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    Pocinki, Alan, MD presents

    Free Webinar: “Chronic Pain, Poor Sleep, Depression, and Fatigue in EDS”

    Presenter: Alan Pocinki, MD   Click here for a link to the announcement page

    Learn More

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    Neilson, Derek, MD presents

    Free Webinar: “EDS – Hypermobility Type”

    Presenter: Derek Neilson, MD Click  here for a link to the announcement page

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    Rowe, Peter, MD presents

    Free Webinar: “Managing Orthostatic Intolerance in EDS”

    Presenter: Dr. Peter Rowe   Click here for a link to the announcement page

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    Lamoure, Joel, RPh presents

    Free Webinar: “Medical Psychiatry in Pain Management”

    Presenter: Professor Joel Lamoure, RPh  Click here for a link to the announcement page

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    Palmer, Eric, BOCO presents

    Free Webinar: “Bracing for EDS”

    Presenter: Eric Palmer,  Orthotist Click here for a link to the announcement page

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    Mitakides, John, DDS presents

    Free Webinar: “TMJ, Cervical Instability and EDS”

    Presenter: Dr. John Mitakides Click here for a link to the announcement page

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    Kallish, Staci, MD presents

    Free Webinar: “Cardiac Manifestations in EDS”

        Presenter: Dr. Staci Kallish Click here for a link to the announce page  

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    Chopra, Pradeep, MD presents

    Free Webinar: “EDS and Pain… Connecting the Dots” Part 2

      Presenter: Pradeep Chopra, MD Click here for a link to the announcement page

    Learn More

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    Wilson, Golder, MD presents

    Free Webinar: “EDS Spectrum and Dysautonomia”

        Presenter: Dr. Golder Wilson Click here for a link to the announcement page Video link is on this page

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    Muldowney, Kevin, MPT presents

    Free Webinar: “SI Joint (Hip) Dysfunction”

    Presenter: Kevin Muldowney, PT Click here for a link to the announcement page Video link is on this page

    Learn More

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    Chopra, Pradeep, MD presents

    Free Webinar: EDS Pain Management. (Part 1)

    Presenter: Dr. Pradeep Chopra Click here for a link to the announcement page Video link is on this page

    Learn More

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    Healy, Michael,DPT presents

    Free Webinar: “A Manual Physical Therapy Approach”

    Presenter: Michael, Healy, DPT Click here for a link to the announcement page  Video link is on this page

    Learn More

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    Smith, Ellen Lenox presents

    Free Webinar: “Taking Control of Life With EDS”

    Presenter: Ellen Lenox Smith Click here for a link to the announcement page.  Video link is on this page

    Learn More

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    Goldschneider, Ken, MD presents

    Free Webinar: “Pain Management for EDS”

        Presenter: Ken Goldschneider,  MD Click here for a link to the announcement page Video link is on this page

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    Mentesana, Carl, DDS presents

    Free Webinar: “EDS: A Dental Perspective“

        Presenter:  Carl Mentesana, DDS Click here for a link to the announcement page  Video link is on this...

    Learn More

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    Gandomi, Stephanie, MS presents

    Free Webinar: “The Evolution of Genetic Diagnosis and Why This Matters “

    Presenter: Stephanie Gandomi, MS Click here for a link to the announcement page. Video link is on this page

    Learn More

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    Holick, Michael, MD presents

    Free Webinar: “Nutrition and Vitamin D”

      Presenter: Michael Holick, MD Click here for a link to the announcement page. Video link is on this page

    Learn More

Directory of Local Support Groups

We help EDSers find or organize support groups in their local communities. Our free program provides each group with a listing on the Support Group Directory and Map, free webpages, coaching, and more… If there is no group in your area, we will help you survey interest and connect with local EDSers. Contact us at info@edsawareness.com for help or to be included in the directory.

Find a support group location by using the interactive map or the look-up menu below.

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Recent Articles

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Sarasota Teen Wants Support Group for Ehlers-Danlos syndrome

Posted on August 15, 2016

Email Alix at aredmonde@mysuncoast.com     SARASOTA, Fla. – A serious diagnosis of a rare disorder is challenging enough for the hardiest adult, but one young woman with Ehlers-Danlos syndrome (EDS) is stepping up to raise awareness, and be her own health advocate. Ehlers-Danlos syndrome is a genetic mutation of the connective tissue that causes […]

Read More

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Successful Ehlers-Danlos Hoofbeat Run Walk-N-Roll in King Ferry, NY.

Posted on August 13, 2016

Staff writer Gwendolyn Craig Thank you to all who participated in, volunteered at and donated to the Ehlers-Danlos Hoofbeat Run Walk-N-Roll on August 6th. KING FERRY — Elizabeth Shaw loves to swim, bike and practice CrossFit. She has cycled around every Finger Lake, and for about three years, she has been a local personal trainer, helping […]

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Free Webinar – “Results of the EDS Awareness World-Wide Survey” – RECORDING AVAILABLE

Posted on July 28, 2016

Watch the recording of this free webinar. Sponsored by www.bodysupportstore.com  TOPIC: Results of the EDS Awareness World-Wide Survey PRESENTERS: John Ferman and Deanna Hamm John Ferman and Deanna Hamm (father and daughter) are co-founders of the EDS Awareness Program. There were 2544 respondents to this World-Wide survey from 26 countries. The specific results were presented and discussed during […]

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More Articles

Testimonials

  • Thank you so much for all you do to help so many EDSers!  We appreciate the webinars and information EDS Awareness provides and will happily provide it to the MetroDCArea support group.

    - Christina H in DC

  • Dr Pocinki’s webinar has given me HOPE! and the next webinar ties right in with everything I have gone through, so I just wanted to say a special thank you for putting these webinars out there for those of us in search of answers.

    I hope and pray I can bring these answers back to my Psychiatrist at Tuft’s and my other Physicians, especially if I I’m successful in getting relief from my symptoms, and help to raise awareness of EDS & POTS to help others.

    You & your Team are a blessing – please keep up the good work for us Zebras! I really appreciate all of your efforts. God bless you!

    - Leah from MA

  • Thank you for all that you do you to make a difference in my life and the lives of so many.

    - Kristi

  • Hello John, Deanna and All at EDS Awareness Thank You -Again and Again!
    Your webinars continue to help our family and make measurable strides! 🙂
    With continued gratitude for your finding a way to help physicians and others understand
    the care needs among our population and for all with connective tissue disorders.

    - Kathi

  • John, my world has evolved immensely since you sent me an email a year and a half ago. I have EDS, dysautonomia, Mast Cell, etc. The information and lectures your organize provides have been invaluable.  I will be at the conference in Baltimore and saw your name on the list of attendees.  I really hope to meet you. Thank you again for all your help.

    - Sue S. in Cincinnati

Upcoming Events

Pain Awareness Event

September 17, 2016

2:00 - 4:00 pm EST

U. S. Pain Foundation Pain Awareness Event 2016 FREE...Read more...

See all upcoming events

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