• WELCOME! ** Learn about our FREE programs in this fun video! ** It's about empowerment, education, team-building, local support groups... and EDS awareness!

  • FREE live Webinars offered 2x/month! Watch our keynote presentation by Dr. Brad Tinkle about Ehlers-Danlos Syndrome.

  • FREE live Webinars offered 2x/month! Watch this presentation by Dr. Derek Neilson about EDS Hypermobility Type and what is needed to change the perception of this condition.

  • FREE Webinars offered 2x/month! Watch this presentation by Dr. Theoharis Theoharides focusing on “Mast Cell Disorders” in EDS Patients.

  • FREE Live Webinars offered 2x/month! Watch this presentation by Dr. John Mitakides: TMJ and Cervico-cranial Instability (CCI) in EDS.

  • What is Ehlers-Danlos Syndrome? Dr. Henderson & Kristin Means describe the basics of EDS in this TV interview.

  • Watch this EDS patient's in-depth explanation of Ehlers-Danlos Syndrome and how she tackles her illness with a positive outlook.

  • Our FREE programs are made possible by BodySupportStore.com - Offering over 250 products recommended for EDSers, by EDSers. Please check out these helpful products at lowest allowable prices.

Is Ehlers-Danlos Syndrome rare - or just rarely diagnosed?

Only 5%
of Ehlers-Danlos Syndrome (EDS) sufferers are correctly diagnosed. It’s been estimated that EDS affects more than 1 in 5,000 people worldwide. But, experts think that's conservative. Each year in the US, 650,000 additional sufferers are un-diagnosed or misdiagnosed due to physician oversight or lack of knowledge about EDS. (According to a study in the UK.)

The mission of EDS Awareness is to ensure greater understanding of Ehlers-Danlos Syndrome, both in the general public and within the medical community. Driven by participation and shared learning, the website content is presented “by EDSers, for EDSers”. We hope to improve the quality of life for individuals affected by EDS – and those who care for them. Tell someone about EDS today!

Directory of Local Support Groups

We help EDSers find or organize support groups in their local communities. Our free program provides each group with a listing on the Support Group Directory and Map, free webpages, coaching, and more... If there is no group in your area, we will help you survey interest and connect with local EDSers. Contact us at info@edsawareness.com for help or to be included in the directory.

Find a support group location by using the interactive map or the look-up menu below.

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Recent Articles
Dr. Patrick Agnew presents “Foot & Ankle Issues with EDS” — July 7, 2015

Dr. Patrick Agnew presents “Foot & Ankle Issues with EDS” — July 7, 2015

Jun 28, 2015

Join us for a FREE online learning session! On July 7, 2015, Dr. Patrick Agnew presents “Foot & Ankle Issues with EDS”. Click here for instructions to attend the live

Ehlers-Danlos Syndrome May Increase Susceptibility to Infections

Ehlers-Danlos Syndrome May Increase Susceptibility to Infections

Jun 25, 2015

People with Ehlers-Danlos Syndrome (EDSers) may have higher risk for infections. Fragile skin and poor healing may lead to skin infections.  EDSers often have a lowered immune system, possibly due to chronic stress on multiple body systems or

Soccer Club Supports Teammate With Ehlers-Danlos Syndrome

Soccer Club Supports Teammate With Ehlers-Danlos Syndrome

Jun 23, 2015

Watch this TV news video about Madison whose soccer team helps raise awareness for Ehlers-Danlos Syndrome and funds for Cincinnati Children's Hospital. The SouthStars Soccer Club Team Lightning hosted a bowl-a-thon at Poelking Lanes South in honor

Ehlers-Danlos – “An Accident Waiting To Happen”

Ehlers-Danlos – “An Accident Waiting To Happen”

Jun 18, 2015

Philip Howard was the 88th person in Britain to be diagnosed with Ehlers-Danlos syndrome (EDS). He has written a book about his fight to overcome adversity. Philip Howard’s new book “An Accident Waiting To Happen” tells of living

Free Webinar: “Connective Tissue Disorder Research” by Dr. Hal Dietz – Recording Available

Free Webinar: “Connective Tissue Disorder Research” by Dr. Hal Dietz – Recording Available

Jun 16, 2015

Watch this FREE educational video!   _ Dr. Hal Dietz presents “Connective Tissue Disorder Research”   Sponsored by www.bodysupportstore.com    TOPIC:  “Connective Tissue Disorder Research”   PRESENTER: Dr. Hal Dietz

Young Mom Diagnosed with “Rare” Genetic Disorder

Young Mom Diagnosed with “Rare” Genetic Disorder

Jun 14, 2015

Watch this TV news video about Enedina Stanger’s journey to Ehlers-Danlos diagnosis after the birth of her second child. (KUTV) Michael and Enedina Stanger’s love story started shortly after she graduated high school. The two eventually

Support For Friends of Hypermobiles/ EDSers

Support For Friends of Hypermobiles/ EDSers

Jun 9, 2015

    A new, closed, Facebook group is available for support of friends who are caring for, supporting or living with people who have hypermobility/ EDS. _ _   If you meet these requirements you can join

Double-jointed? Often in Pain? It Could be Ehlers-Danlos Syndrome!

Double-jointed? Often in Pain? It Could be Ehlers-Danlos Syndrome!

Jun 6, 2015

Ehlers-Danlos Syndrome (EDS) was once thought to be a rare disorder, but EDS experts say its prevalence is under-estimated and its diagnosis is often missed! Learn the signs.   By Abi Jackson _ If you suffer from these ailments, you could

 

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    Upcoming Events

    • July 7, 2015: Free Webinar – “Foot & Ankle Issues with EDS”

      Live Webinar at 7:30 pm EDT
      Dr. Patrick Agnew presents “Foot & Ankle Issues with EDS”