• WELCOME! ** Learn about our FREE programs in this fun video! ** It's about empowerment, education, team-building, local support groups... and EDS awareness!

  • FREE live Webinars offered 2x/month! Watch this presentation by Dr. Frank Gargano, about “Dry Needling for EDS Pain Management: Can muscle performance be improved”

  • Ehlers-Danlos National Foundation and Dysautonomia International held a joint live webinar,

  • Join us for FREE Webinars 2x/month! Watch this presentation by Dr. Anne Maitland focused on Allergies & Mast Cell Activation Syndrome in EDS Patients.

  • FREE Live Webinars offered 2x/month! Watch this presentation by Dr. John Mitakides: TMJ and Cervico-cranial Instability (CCI) in EDS

  • What is Ehlers-Danlos Syndrome? Dr. Henderson & Kristin Means describe the basics of EDS in this TV interview.

  • An aspiring gymnast learns she has Ehlers-Danlos. Not able to compete, her new dream becomes EDS Awareness.

  • Our FREE programs are made possible by Body Support Store

Is Ehlers-Danlos Syndrome rare - or just rarely diagnosed?

Only 5%
of Ehlers-Danlos Syndrome (EDS) sufferers are correctly diagnosed. It’s been estimated that EDS affects more than 1 in 5,000 people worldwide. But, experts think that's conservative. Each year in the US, 650,000 additional sufferers are un-diagnosed or misdiagnosed due to physician oversight or lack of knowledge about EDS. (According to a study in the UK.)

The mission of EDS Awareness is to ensure greater understanding of Ehlers-Danlos Syndrome, both in the general public and within the medical community. Driven by participation and shared learning, the website content is presented “by EDSers, for EDSers”. We hope to improve the quality of life for individuals affected by EDS – and those who care for them. Tell someone about EDS today!

Directory of Local Support Groups

We help EDSers find or organize support groups in their local communities. Our free program provides each group with a listing on the Support Group Directory and Map, free webpages, coaching, and more... If there is no group in your area, we will help you survey interest and connect with local EDSers. Contact us at info@edsawareness.com for help or to be included in the directory.

Find a support group location by using the interactive map or the look-up menu below.

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Recent Articles
How Yoga Helps Christine Cope with Ehlers-Danlos Pain

How Yoga Helps Christine Cope with Ehlers-Danlos Pain

Nov 26, 2014

Christine has found a method to cope with her Ehlers Danlos Syndrome that works well for her. Practicing gentle yoga has changed the way she thinks and feels about her pain and helps her get back more control over her life.   By Locke Hughes.

UK Woman Spreads Awareness of Ehlers-Danlos Syndrome

UK Woman Spreads Awareness of Ehlers-Danlos Syndrome

Nov 24, 2014

Ruth Baker is telling her story to increase EDS Awareness in the UK.  She shares our passion – helping even one person makes it all worthwhile. Ruth says, “It can be a lonely place when you’re suffering from something that is

Caring Doctor Helps Patients with Postural Orthostatic Tachycardia Syndrome (POTs)

Caring Doctor Helps Patients with Postural Orthostatic Tachycardia Syndrome (POTs)

Nov 22, 2014

More than 70 million people worldwide live with various forms of dysautonomia, including Postural Orthostatic Tachycardia Syndrome. POTS is common in the Ehlers Danlos population. By Hunterdon County Democrat. “Most people know that October

Physical Therapy Webinar: “Dry Needling for Ehlers-Danlos Pain”

Physical Therapy Webinar: “Dry Needling for Ehlers-Danlos Pain”

Nov 19, 2014

  Watch this FREE educational video presentation!    TOPIC:  “Dry Needling for EDS Pain Management: Can muscle performance be improved?”   PRESENTER:   Frank Gargano PT, DPT, OCS, CIDN, MCTA, CWT   Sponsored

EDS Awareness Educational Series – December 3, 2014

EDS Awareness Educational Series – December 3, 2014

Nov 16, 2014

  Join us for a FREE online learning session!    On December 3, Dr. Subinoy Das presents “Sinus Care for Ehlers-Danlos“     Sponsored by www.bodysupportstore.com      WHAT:  “ EDS Awareness

“Vascular Ehlers-Danlos Syndrome” Webinar by Dr. Peter Byers on December 17, 2014

“Vascular Ehlers-Danlos Syndrome” Webinar by Dr. Peter Byers on December 17, 2014

Nov 15, 2014

Join us for a FREE online learning session!    On December 17th, Dr. Peter Byers presents “Vascular Ehlers-Danlos Syndrome”   Sponsored by www.bodysupportstore.com    WHAT:  “EDS Awareness Educational Series” – a

5-year-old NC Boy Avoids Bumps Due to Vascular Ehlers Danlos Syndrome

5-year-old NC Boy Avoids Bumps Due to Vascular Ehlers Danlos Syndrome

Nov 14, 2014

 This is a very touching story about 5-year-old Matthew’s struggle to understand his Type IV Ehlers Danlos Syndrome. “It’s really sad to say my wife knows more about it than the doctors,” says his father, Joshua, who was

Take Survey on Gastrointestinal Issues with Ehlers-Danlos Syndrome or CTDs—Harvard researchers need your help!

Take Survey on Gastrointestinal Issues with Ehlers-Danlos Syndrome or CTDs—Harvard researchers need your help!

Nov 10, 2014

Your input is needed for this very important EDS survey! Follow the link at the bottom of this article to take the survey. This survey on gastrointestinal issues is being conducted by a group of doctors at Beth Israel Deaconess Medical Center

 

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    Upcoming Events

    • EDS Awareness Educational Series – December 3, 2014

      Live Webinar 7:30 pm EST
      Dr. Subinoy Das presents “Sinus Care for Ehlers-Danlos”

    • EDS Awareness Educational Series – December 17, 2014

      Live Webinar 7:30 pm EST
      Dr. Peter Byers speaks about “Vascular Ehlers-Danlos Syndrome”