Live Webinar 7:30 pm EST
Dr. Subinoy Das presents “Sinus Care for Ehlers-Danlos”
Is Ehlers-Danlos Syndrome rare - or just rarely diagnosed?
Only 5% of Ehlers-Danlos Syndrome (EDS) sufferers are correctly diagnosed. It’s been estimated that EDS affects more than 1 in 5,000 people worldwide. But, experts think that's conservative. Each year in the US, 650,000 additional sufferers are un-diagnosed or misdiagnosed due to physician oversight or lack of knowledge about EDS. (According to a study in the UK.)
The mission of EDS Awareness is to ensure greater understanding of Ehlers-Danlos Syndrome, both in the general public and within the medical community. Driven by participation and shared learning, the website content is presented “by EDSers, for EDSers”. We hope to improve the quality of life for individuals affected by EDS – and those who care for them. Tell someone about EDS today!
We help EDSers find or organize support groups in their local communities. Our free program provides each group with a listing on the Support Group Directory and Map, free webpages, coaching, and more... If there is no group in your area, we will help you survey interest and connect with local EDSers. Contact us at firstname.lastname@example.org for help or to be included in the directory.
Find a support group location by using the interactive map or the look-up menu below.
Nov 26, 2014
Christine has found a method to cope with her Ehlers Danlos Syndrome that works well for her. Practicing gentle yoga has changed the way she thinks and feels about her pain and helps her get back more control over her life. By Locke Hughes.
Nov 24, 2014
Ruth Baker is telling her story to increase EDS Awareness in the UK. She shares our passion – helping even one person makes it all worthwhile. Ruth says, “It can be a lonely place when you’re suffering from something that is
Nov 22, 2014
More than 70 million people worldwide live with various forms of dysautonomia, including Postural Orthostatic Tachycardia Syndrome. POTS is common in the Ehlers Danlos population. By Hunterdon County Democrat. “Most people know that October
Nov 19, 2014
Watch this FREE educational video presentation! TOPIC: “Dry Needling for EDS Pain Management: Can muscle performance be improved?” PRESENTER: Frank Gargano PT, DPT, OCS, CIDN, MCTA, CWT Sponsored
Nov 16, 2014
Join us for a FREE online learning session! On December 3, Dr. Subinoy Das presents “Sinus Care for Ehlers-Danlos“ Sponsored by www.bodysupportstore.com WHAT: “ EDS Awareness
Nov 15, 2014
Join us for a FREE online learning session! On December 17th, Dr. Peter Byers presents “Vascular Ehlers-Danlos Syndrome” Sponsored by www.bodysupportstore.com WHAT: “EDS Awareness Educational Series” – a
Nov 14, 2014
This is a very touching story about 5-year-old Matthew’s struggle to understand his Type IV Ehlers Danlos Syndrome. “It’s really sad to say my wife knows more about it than the doctors,” says his father, Joshua, who was
Nov 10, 2014
Your input is needed for this very important EDS survey! Follow the link at the bottom of this article to take the survey. This survey on gastrointestinal issues is being conducted by a group of doctors at Beth Israel Deaconess Medical Center
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