Upcoming and Previous Webinar Speakers

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    Afrin, Lawrence, MD presents

    Free Webinar: “Mast Cell Activation Syndrome”

      TOPIC: “Mast Cell Activation Syndrome” in Ehlers-Danlos patients. PRESENTER: Dr. Lawrence Afrin Click here for a link to the announcement page

    Learn More

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    O'Leary, Diane, PHD presents

    Free Webinar — “All in Your Head”: The Problem of Psychogenic Diagnosis for Ehlers-Danlos Patients

    TOPIC: “All in Your Head”: The Problem of Psychogenic Diagnosis for Ehlers-Danlos Patients PRESENTER: Diane O’Leary, PhD   Dr. O’Leary is currently an Associate...

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    Ferman, John presents

    Free Webinar: “Results of the EDS Awareness World-Wide Survey”

    TOPIC: Results of the EDS Awareness World-Wide Survey PRESENTERS: John Ferman and Deanna Hamm John Ferman and Deanna Hamm (father and daughter) are co-founders of...

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    Williams, Sara, MD presents

    Free Webinar: “Cognitive Behavioral Therapy as a Coping Skill for EDS”

        TOPIC: “Cognitive Behavioral Therapy as a Coping Skill for EDS” PRESENTER: Sara Williams, Ph.D. — Pediatric Pain Psychologist and Clinical Director of the...

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    Maitland, Anne, MD presents

    Free Webinar: “Mast Cell Activation Syndrome” Part 2

    TOPIC:  “Mast Cell Activation Syndrome” Part 2 PRESENTER:  Dr. Anne Maitland   Click here or a link to the announcement page

    Learn More

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    Ring Splints presents

    Free Webinar: “Anatomy and SilverRing™ Splints for Ehlers-Danlos Hands”

    Presenters: Jesse Garris & Karen Foulks Topic: “Anatomy and SilverRing™ Splints for Ehlers-Danlos Hands”   Click here for a link to the announcement page

    Learn More

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    Gilmer, Holly, MD presents

    Free Webinar: “Chiari Malformation and EDS”

    Topic: “Chiari Malformation and EDS” Presenter: Dr. Holly Gilmer     Click here for a link to the announcement page 

    Learn More

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    Grubb, Blair, MD presents

    Free Webinar: “Postural Orthostatic Tachycardia Syndrome (POTs)”

      Presenter: Dr. Blair Grubb Topic: “Postural Orthostatic Tachycardia Syndrome (POTs)”             Click here for a link to the announcement...

    Learn More

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    Meegan, Trish, DPT, ATC presents

    Free Webinar: “Physical Therapy for EDS”

    TOPIC:  “Physical Therapy for EDS: Including how your posture and thorax/ribcage affects your PT program” PRESENTER: Trish Meegan, DPT, L, ATC Click here for...

    Learn More

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    Klinge, Petra, MD presents

    Free Webinar: “Tethered Cord Syndrome in Ehlers-Danlos”

        Topic: “Tethered Cord Syndrome in Ehlers-Danlos” Presenter: Dr. Petra Klinge       Click here for a link to the announcement page

    Learn More

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    Clancy, Kelly, OT presents

    Free Webinar: “New and Emerging Manual Therapy Approaches for EDS”

        TOPIC: “New and Emerging Manual Therapy Approaches for EDS” PRESENTER: Kelly Clancy, OT     Click here for a link to the...

    Learn More

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    Barnum, Richard, MD presents

    Free Webinar: “Chronic Pain Alternatives – with focus on inflammation and nutrition”

      TOPIC: “Chronic Pain Alternatives – with focus on inflammation and nutrition” PRESENTER: Dr. Clive Bridgham     Click here for a link to the announcement...

    Learn More

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    Muldowney, Kevin, MPT presents

    Free Webinar: “Physical Therapy Protocol for Ehlers-Danlos Syndrome”

      TOPIC: “Physical Therapy Protocol for Ehlers-Danlos Syndrome” (using the new EDS Physical Therapy Book) PRESENTER: Kevin Muldowney, MSPT   Click here for a link...

    Learn More

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    Murray, Mitzi, MD presents

    Free Webinar: “How, Why and When: Genetic Testing in EDS for the Non-Geneticist”

        TOPIC: “How, Why and When: Genetic Testing in EDS for the Non-Geneticist” PRESENTER: Dr. Mitzi Murray   Click here for a link...

    Learn More

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    Smith, Ellen Lenox presents

    Free Webinar: “Living Life Again with Dignity Using Medical Marijuana”

    TOPIC: “Living Life Again with Dignity Using Medical Marijuana”. PRESENTER: Ellen Lenox Smith   Click here for the link to the announcement page

    Learn More

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    Stoler, Joan, MD presents

    Free Webinar: “Update on Complications and Rare Forms of EDS”

    TOPIC: “Update on Complications and Rare Forms of EDS” PRESENTER: Dr. Joan Stoler   Click here for a link to the announcement page

    Learn More

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    Ortiz, Jennifer, MPT, WSC presents

    Free Webinar: “Physical Therapy for Sexual Dysfunction in EDS”

      TOPIC: “Physical Therapy for Sexual Dysfunction in EDS” PRESENTER: Jennifer Ortiz, MPT, WSC   Click here for the link to the announcement page

    Learn More

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    Ferman, John presents

    Free Webinar: “Support Groups for Ehlers-Danlos Syndrome”

    Topic: “Support Groups for Ehlers-Danlos Syndrome”                    Presenter: John Ferman     Click here for a link...

    Learn More

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    Mitakides, John, DDS presents

    Free: Webinar: “Musculoskeletal Headaches in EDS”

        TOPIC: “Musculoskeletal Headaches in EDS” PRESENTER: Dr. John Mitakides   Click here for a link to the announcement page

    Learn More

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    Agnew, Patrick, DPM presents

    Free Webinar: “Foot & Ankle Issues in EDS”

      TOPIC:  “Foot & Ankle Issues with EDS” PRESENTER:  Dr. Patrick Agnew         Click here or a link to the announcement...

    Learn More

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    Dietz, Hal, MD presents

    Free Webinar: “Connective Tissue Disorder Research”

    TOPIC:  “Connective Tissue Disorder Research” PRESENTER: Dr. Hal Dietz Click here for a link to the announcement page 

    Learn More

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    Theoharides, T. C., MD presents

    Free Webinar: “Mast Cell Disorders”

    TOPIC: “Mast Cell Disorders”    PRESENTER:   Dr. Theoharis Theoharides   Click here for a link to the announcement page

    Learn More

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    Tinkle, Brad, MD presents

    Free Webinar: “Introduction to Ehlers-Danlos Syndrome”

    Topic: “Introduction to Ehlers-Danlos Syndrome” Presenter: Dr. Brad Tinkle     Click here for a link to the announcement page

    Learn More

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    Jaekle, Ron, MD presents

    Free Webinar: “Pregnancy and EDS”

    TOPIC:  “Ehlers-Danlos and Pregnancy” PRESENTER:   Dr. Ronald Jaekle   Click here for a link to the announcement page

    Learn More

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    Sood, Manu, MD presents

    Free Webinar: “Gastrointestinal Disorders in EDS”

    TOPIC:  “Gastrointestinal Disorders in EDS” PRESENTER:   Dr. Manu Sood Click here for a link to the announcement page

    Learn More

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    Tennant, Forest, MD presents

    Free Webinar: “Managing Centralized Pain in Ehlers-Danlos”

    TOPIC:  “Managing Centralized Pain in Ehlers-Danlos” PRESENTER:   Forest Tennant, MD, DrPH Click here for a link to the announcement page

    Learn More

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    Allen, Cynthia GCFP, STMI presents

    Free Webinar: “The Feldenkrais Method and other Somatic Approaches to Improve Function and Ease”

    Presenter: Cynthia Allen Topic: “The Feldenkrais Method and other Somatic Approaches to Improve Function and Ease”   Click here for a link to the announcement page

    Learn More

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    Lavallee, Mark, MD presents

    Free Webinar: “Exercise is Medicine”

      Presenter: Mark E. Lavallee, M.D Topic: Sports Medicine Click here for a link to the announcement page

    Learn More

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    Ferman, John presents

    Free Webinars: “EDS Support Groups”

        Presenter: John Ferman Topic: EDS Support Groups Click here for a link to our web pages

    Learn More

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    Epps, Howard, MD, P.A. presents

    Free Webinar: “Orthopedic Considerations in EDS”

    Topic: “Orthopedic Considerations in EDS” Presenter:  Howard R. Epps, MD Click here for a link  to the announcement page

    Learn More

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    Dommerholt, Jan, DPT presents

    Free Webinar: “Physical Therapy for Ehlers-Danlos”

    TOPIC:    “Physical Therapy for Ehlers-Danlos” PRESENTER:   Dr. Jan Dommerholt   Click here for a link to the announcement page

    Learn More

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    Burkholder, Henry, MD presents

    Free Webinar: “Postural Orthostatic Tachycardia Syndrome (POTs) and EDS”

    Topic: “Postural Orthostatic Tachycardia Syndrome (POTs) and EDS” Presenter: Dr. Henry Burkholder Click here for a link to the announcement page

    Learn More

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    Byers, Peter, MD presents

    Free Webinar: “Vascular Ehlers-Danlos Syndrome / EDS type IV”

    TOPIC:    “Vascular Ehlers-Danlos Syndrome / EDS type IV” PRESENTER:   Dr. Peter Byers Click here for a link to the announcement page

    Learn More

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    Das, Subinoy, MD presents

    Free Webinar: “Sinus Care for Ehlers-Danlos Syndrome”

    TOPIC:    “Sinus Care for Ehlers-Danlos Syndrome” PRESENTER:   Subinoy Das, MD, FACS, FARS  Click here for a link to the announcement page

    Learn More

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    Gargano,Frank, DPT presents

    Free Webinar: “Dry Needling for EDS”

    TOPIC:  “Dry Needling for EDS Pain Management: Can muscle performance be improved?” PRESENTER:   Frank Gargano PT, DPT, OCS, CIDN, MCTA, CWT Click here for a...

    Learn More

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    Maitland, Anne, MD presents

    Free Webinar: “Mast Cell Activation Syndrome” Part 1

    TOPIC:  “Mast Cell Activation Syndrome” Part 1 PRESENTER:  Dr. Anne Maitland Click here or a link to the announcement page

    Learn More

Directory of Local Support Groups

We help EDSers find or organize support groups in their local communities. Our free program provides each group with a listing on the Support Group Directory and Map, free webpages, coaching, and more… If there is no group in your area, we will help you survey interest and connect with local EDSers. Contact us at info@edsawareness.com for help or to be included in the directory.

Find a support group location by using the interactive map or the look-up menu below.

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Recent Articles

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EDS: In Your Head?

Posted on June 24, 2016

Brittany (and her support group) has entered a short film contest to raise awareness of Ehlers-Danlos Syndrome and Mental Health.  They are now FINALISTS! To support the effort, please share, watch and re-watch this video through July 7! If  they win, they will receive a $2,000 grant to make a longer film on EDS and […]

Read More

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Free Webinar: “Mast Cell Activation Syndrome” – Recording Available

Posted on June 23, 2016

Watch the recording of this free webinar. Sponsored by www.bodysupportstore.com      TOPIC: “Mast Cell Activation Syndrome” PRESENTER: Dr. Lawrence Afrin     Click here for the recording of this presentation. Click here for the link to the presentation slides   INVITE YOUR FRIENDS: Spread the knowledge!  Please post this announcement on Facebook, and forward this to […]

Read More

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New Federal Rules Make it Hard to Get an Opioid Refill for Pain Sufferers

Posted on June 18, 2016

By Felice J. Freyer GLOBE STAFF   . Jonathan Rodis takes his hydrocodone pills sparingly, only when the pain becomes unbearable. He doesn’t like the way the drug fogs his brain. And lately, he also needs to conserve — because new federal rules make it hard to get a refill. . . . Rodis has […]

Read More

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Fairfield Senior with EDS Takes Her Graduation Walk

Posted on June 11, 2016

By Michael D. Pitman Staff Writer   Elizabeth Schulze worked for years to be able to garner the strength and stamina to walk across the stage and receive her high school diploma. While the act is easy for most high school seniors, it was not for Schulze. Amy Schulze said her daughter, who plans to attend […]

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More Articles

Testimonials

  • Thank you for Dr. O’Leary’s webinar …. I attend many of your webinars. The slides were terrific to have. I was stunned and appreciative to hear the physician nomenclature for “All in your mind”. Wow!!
    Blessing to you for this incredible service.

    - Adell S.

  • “We love your webinars and have learned so much. You have really improved my daughter’s ability to manage her EDS. Thank You!”

    - Kathy in Florida

  • Thanks for sharing the EDS information John. My son was diagnosed with it last year. He’s been through four surgeries already. The awareness site was very informative. Hope you are well.

    - Scott G.

Upcoming Events

2016 Ehlers-Danlos Society Global Learning Conference, July 14-16, 2016

July 14-16, 2016

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