• FREE live Webinars offered 2x/month! Watch a presentation by John Ferman - Support Groups for EDS

  • FREE live Webinars offered 2x/month! Watch our keynote presentation by Dr. Brad Tinkle about Ehlers-Danlos Syndrome.

  • FREE live Webinars offered 2x/month! Watch this presentation by Dr. Patrick Agnew about Foot & Ankle Issues with EDS.

  • FREE live Webinars offered 2x/month! Watch this presentation by Dr. Derek Neilson about EDS Hypermobility Type and what is needed to change the perception of this condition.

  • FREE Live Webinars offered 2x/month! Watch this presentation by Dr. John Mitakides: “Musculoskeletal Headaches in EDS”.

  • What is Ehlers-Danlos Syndrome? Dr. Henderson & Kristin Means describe the basics of EDS in this TV interview.

  • "Issues with My Tissues" The Lara Bloom Story

  • Our FREE programs are made possible by BodySupportStore.com - Offering over 250 products recommended for EDSers, by EDSers. Please check out these helpful products at lowest allowable prices.

Is Ehlers-Danlos Syndrome rare - or just rarely diagnosed?

Only 5%
of Ehlers-Danlos Syndrome (EDS) sufferers are correctly diagnosed. It’s been estimated that EDS affects more than 1 in 5,000 people worldwide. But, experts think that's conservative. Each year in the US, 650,000 additional sufferers are un-diagnosed or misdiagnosed due to physician oversight or lack of knowledge about EDS. (According to a study in the UK.)

The mission of EDS Awareness is to ensure greater understanding of Ehlers-Danlos Syndrome, both in the general public and within the medical community. Driven by participation and shared learning, the website content is presented “by EDSers, for EDSers”. We hope to improve the quality of life for individuals affected by EDS – and those who care for them. Tell someone about EDS today!

Directory of Local Support Groups

We help EDSers find or organize support groups in their local communities. Our free program provides each group with a listing on the Support Group Directory and Map, free webpages, coaching, and more... If there is no group in your area, we will help you survey interest and connect with local EDSers. Contact us at info@edsawareness.com for help or to be included in the directory.

Find a support group location by using the interactive map or the look-up menu below.

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Recent Articles
Free Webinar – “Results of the EDS Awareness World-Wide Survey” – RECORDING AVAILABLE

Free Webinar – “Results of the EDS Awareness World-Wide Survey” – RECORDING AVAILABLE

May 17, 2016

Watch the recording of this free webinar. Sponsored by www.bodysupportstore.com        TOPIC: Results of the EDS Awareness World-Wide Survey PRESENTERS: John Ferman and Deanna Hamm John Ferman and Deanna Hamm (father and daughter)

Colorado EDS Awareness Month Proclamation

Colorado EDS Awareness Month Proclamation

May 10, 2016

Colorado EDS Awareness Month Proclamation.   Justin and Nancy, leaders of the Denver EDS Support Group, received their Proclamation.   There is still time to get your Ehlers-Danlos Awareness Month Proclamation request sent to your state

Alaska Ehlers-Danlos Syndrome Awareness Month Coloring Competition.

Alaska Ehlers-Danlos Syndrome Awareness Month Coloring Competition.

May 10, 2016

Alaska Ehlers-Danlos Syndrome Awareness Month Coloring Competition.    Start Date: May 1, 2016 at 12:00 am End Date: May 31, 2016 at 11:59 pm Rules: Attached you will find a picture of a zebra bust that was designed and drawn by the artist

May is Ehlers-Danlos Syndrome Awareness Month

May is Ehlers-Danlos Syndrome Awareness Month

May 4, 2016

This month is Ehlers-Danlos syndrome awareness month. It’s a connective tissue disorder with no cure. Dr. Rob is “in the house” to give us details on how we can help those suffering from this often-painful condition. Andrea Julian, a leader

Free Webinar: “Cognitive Behavioral Therapy as a Coping Skill for EDS”

Free Webinar: “Cognitive Behavioral Therapy as a Coping Skill for EDS”

May 4, 2016

Watch the recording of this free webinar. Sponsored by www.bodysupportstore.com  TOPIC: “Cognitive Behavioral Therapy as a Coping Skill for EDS” PRESENTER: Sara Williams, Ph.D. — Pediatric Pain Psychologist and Clinical Director

EDS Awareness Shirts -– only $10 each!

EDS Awareness Shirts -– only $10 each!

May 2, 2016

Now available at www.bodysupportstore.com --- Zebra Shirts for awareness are only $10 each! This is the perfect way to communicate our EDS Awareness message during our awareness activities or the conference in

New Awareness Materials for EDS — “Hiding in Plain Sight” Brochure. NOW you can print through Vistaprint!

New Awareness Materials for EDS — “Hiding in Plain Sight” Brochure. NOW you can print through Vistaprint!

May 1, 2016

Available now to print through Vistaprint! This new EDS brochure is designed for general awareness of EDS. It's suitable for doctors, teachers, and relatives who just don’t "get it".

My Wife Had EDS and Did  Not Know IT! – 8th Year Anniversary

My Wife Had EDS and Did Not Know IT! – 8th Year Anniversary

Apr 21, 2016

  This website and its free programs are dedicated to the memory of Carol and thousands like her – who suffer from undiagnosed Ehlers-Danlos…  We were married for 41 years.  You’d think that after all of that time you would know

 

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    Upcoming Events

    • Free Webinar: “Cognitive Behavioral Therapy as a Coping Skill for EDS”

      Tuesday May 3, 2016
      Live Webinar at 7:30 pm EDT
      Sara Williams, Ph.D. presents “Cognitive Behavioral Therapy as a Coping Skill for EDS”

    • Educational Session – “Support Groups for Ehlers-Danlos Syndrome”

      Listen to this FREE session anytime!