Teens
Two Students Share How They Navigate School With EDS
In last month’s article, “4 Tips on How To Navigate School as a Student with Ehlers-Danlos Syndrome,” we took a very subjective look at the issue of attending high school while living with Ehlers-Danlos syndrome. This month, we wanted to hear from two teens navigating the school system with EDS, Amicie Koslow and Lily Hirschson. […]
4 Tips on How To Navigate School as a Student with Ehlers-Danlos Syndrome
Living with Ehlers-Danlos Syndrome (EDS) as a high school student can be especially challenging. The normal struggle of balancing academics, extracurriculars, and social life, all while trying to figure out who you are as a person, is overwhelming for most teenagers and is made more complicated when having to manage a chronic illness. Many times, […]
Cincinnati Children’s Hospital Connective Tissue Disorder Clinic Video
Cincinnati Children’s Hospital has a Connective Tissue Disorder Clinic helping children with Ehlers-Danlos Syndrome. This video celebrates the hospital’s impact on children and their families.
Ten year old EDSer wins at swimming
By Ken Barhorst. Ten-year-old Jarrett Payne of Sidney has so far had an amazing career in swimming. And it’s been against all odds. The son of Jeff and Wendy Payne, Jarrett was diagnosed at a very young age with Ehlers-Danlos Syndrome. As explained in medical terms, Ehlers-Danlos Syndrome is a group of inherited disorders that […]
Fairfield Senior with EDS Takes Her Graduation Walk
By Michael D. Pitman Staff Writer Elizabeth Schulze worked for years to be able to garner the strength and stamina to walk across the stage and receive her high school diploma. While the act is easy for most high school seniors, it was not for Schulze. Amy Schulze said her daughter, who plans to attend […]
Alaska Ehlers-Danlos Syndrome Awareness Month Coloring Competition.
Alaska Ehlers-Danlos Syndrome Awareness Month Coloring Competition. Start Date: May 1, 2016 at 12:00 am End Date: May 31, 2016 at 11:59 pm Rules: Attached you will find a picture of a zebra bust that was designed and drawn by the artist Katie Zamudio, Doodlebug Coloring Books. Starting May 1, 2016 at 12:00 am […]
Free Webinar: “Chronic Pain in Hypermobile Children” – Recording Available
Dr. Neil Schechter presented “Chronic Pain in Children and Adolescents with EDS”.
Australian PT Receives Well-Deserved Nomination by Ehlers-Danlos Teen
By: Clair Morton. – Libby Nash, a physiotherapist in Australia, has been nominated by her patient for an award. She is dedicated to helping teen Lily Warren strengthen her joints affected by Ehlers-Danlos Syndrome. GRAFTON physiotherapist Libby Nash has gone above and beyond to improve the life of teenager Lily Warren, who lives with a rare and debilitating […]
