Posts Tagged ‘Pain of EDS’

Practical Parenting Tips for those with Physical Limitations

Posted on September 20, 2012

by Jennie Macdonald  As someone who suffers from two chronic illnesses (Ehlers-Danlos Syndrome and Postural Orthostatic Tachycardia Syndrome) that include fatigue and joint pain as my two major limitations, I understood the extreme need to be efficient with my time and energy in my early years of parenting. For me, a main priority was to […]

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Welsh Teenager Describes Her EDS Pain

Posted on August 28, 2012

Phoebe Bruce helps spread EDS awareness by explaining her painful EDS symptoms to the media. Constant dislocations makes it difficult to cope with what should be simple and routine daily activities. The Huffington Post reports her story: “The teenager from Wales has a rare genetic condition called Ehlers-Danlos syndrome which means the collagen in her […]

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EDS Teen Graduates and Plans for College

Posted on June 9, 2012

Emily Hain has Ehlers-Danlos Syndrome plus a variety of other disorders. She managed to graduate from high school and plans to go to college to become a social worker. Read her difficult story dealing with this disability. “Hain has a condition called Ehlers-Danlos Syndrome, which results in hypermobility where joints stretch farther than normal, causing […]

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What Works Best – Heat or Cold?

Posted on June 8, 2012

With EDS, we all have those painful situations.  When I am in pain, I like to have options. One of the most effective, natural methods for relieving pain is a hot or cold pack.  Some packs are designed for heat, and others can be used for cold. The latest hot and cold therapy packs an be used for both. […]

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EDS Awareness is a Way of Life

Posted on June 7, 2012

Viviana Garcia Metendez discusses how she is providing EDS Awareness through videos and blogs. Thanks, Viviana!  We appreciate your dedication to helping others learn more about Ehlers-Danlos Syndrome. Click here for more about Viviana

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Do You Need Good Wrist Support?

Posted on June 5, 2012

Wrist instability is a very common problem for EDSers. I need support while I’m using my computer or driving long distances.  Stabilizing my wrist can prevent dislocations from lifting or carrying items.  Bracing reduces pressure on my wrist when I experience “torque” – a result of sideways or twisting movements.  Keeping my wrist in a straight and still […]

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A Family Dealing with Ehlers-Danlos Syndrome

Posted on May 19, 2012

Many families are struggling with the pains of EDS. They are trying to educate themselves and their practitioners. They do not know where to find support. This is a story of a particular family dealing with this disability. “We moms of EDS kids have a difficult task and a huge responsibility when making these decisions – […]

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What do you know about Ehlers-Danlos Syndrome?

Posted on May 18, 2012

EDS is a little know disability that affects more than 1 in 5000 individuals in the United States alone. Many doctors are not familiar with it. Most people who suffer from EDS are undiagnosed for years – or decades – before they find an answer. Can you relate to this picture? “Ehlers-Danlos syndrome (EDS) is a […]

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