Archive for the ‘Vascular Ehlers-Danlos Syndrome (VEDS)’ Category
Posted on August 27, 2018
By: Hillary Floren Posted: Aug 14, 2018 06:48 AM MDT EL PASO, Texas – Ryan Dolliver is like most 3-year-old boys. He loves to play with his sister, laugh, destroy things and he can be mischievous. Ryan has a great smile, and when he laughs it is infectious. He has no clue he is living with […]
Posted on October 20, 2015
Watch the recording of this free webinar. Dr. Mitzi Murray presents “How, Why and When: Genetic Testing in EDS for the Non-Geneticist”.
Posted on September 28, 2015
Watch the recording of this free webinar. Dr. Joan Stoler presents “Update on Complications and Rare Forms of EDS”.
Posted on May 10, 2015
Vascular Ehlers-Danlos Syndrome is the most devastating type of EDS. It’s a disease so rare that only one out of every 250,000 people will be diagnosed with it. The DEFY Foundation was started by two students at West Chester University.
Posted on December 17, 2014
EDS Awareness invites you to watch this FREE webinar recording! Sponsored by www.bodysupportstore.com TOPIC: “Vascular Ehlers-Danlos Syndrome / EDS type IV” PRESENTER: Dr. Peter Byers About our speaker: Dr. Byers is Director of the Collagen Diagnostic Laboratory (CDL) at the University of Washington in Seattle, WA. He is also a Professor of Medicine and Pathology and Adjunct Professor of […]
Posted on November 28, 2014
Five-year-old Annabelle Griffin inspired local firefighters to perform physical feats — raising money and Ehlers Danlos Syndrome awareness in the UK. Annabelle has VEDS. FIREFIGHTERS pushed themselves to the limit scaling the UK’s three highest peaks and cycling 500 miles to raise a staggering £15,000 for charity. The group of eight men from Oldham Fire Station […]