Vascular Ehlers-Danlos Syndrome (VEDS)
Research Round-Up, Edition Three
Welcome back to Research Round-up where we feature some of the latest developments in Ehlers-Danlos syndrome (EDS) research. Hitch up your horse, gather ‘round the campfire, and see what we have in store for you today. ICYMI: a possible blood test for hEDS? Cardiology“Longitudinal echocardiography in pediatric patients with hypermobile Ehlers-Danlos syndrome”Published in the American […]
Research Round-Up, Edition 2
→ BREAKING NEWS: Study finds biomarker that could lead to a blood test for hEDS & HSD ← Welcome back to the Research Round-Up, a summary of medical news you can use. We’ve got a lot of great research for you this month, so giddy up and git going! Yee-haw! If you have an article […]
Research Round-Up, Edition One
Welcome, pardner, to our new feature, Research Round-up! In each issue, we’ll bring you summaries of some of the latest EDS research to hit the medical journals. We’ll usually have five or so articles, but we’ve got a special edition this time—10 articles for your information and enjoyment! Yee-haw! Hitch up your horse, grab a […]
How You Can Identify If You Have Vascular EDS?
Vascular Ehlers-Danlos condition (Vascular EDS, VEDS, also known as EDS type IV) is an exceptional, predominantly inherited, genetic connective tissue issue. It is especially genuine due to the risk for unconstrained blood vessels or organ rupture. Vascular EDS is assessed to happen between 1 out of 50,000 people to 1 of every 200,000 and results […]
Ehlers-Danlos Syndrome (Vascular Eds): Things you should know!
Vascular Ehlers-Danlos condition is an inherited connective tissue problem that is brought about by deficiencies in a protein called collagen. It is viewed as the most extreme type of Ehlers-Danlos disorder (EDS). Common symptoms incorporate thin, transparent skin; bruising; specified facial appearance; and fragile arteries, muscles, and inside organs. Vascular EDS is generally caused by […]
Father Raising Awareness with Ryan Challenge and Vascular Ehlers-Danlos Syndrome (VEDS)
By: Hillary Floren Posted: Aug 14, 2018 06:48 AM MDT EL PASO, Texas – Ryan Dolliver is like most 3-year-old boys. He loves to play with his sister, laugh, destroy things and he can be mischievous. Ryan has a great smile, and when he laughs it is infectious. He has no clue he is living with […]
Free Webinar: “Genetic Testing in EDS” – Recording Available
Watch the recording of this free webinar. Dr. Mitzi Murray presents “How, Why and When: Genetic Testing in EDS for the Non-Geneticist”.
Free Webinar: “Update on Complications and Rare Forms of EDS” – Recording Available
Watch the recording of this free webinar. Dr. Joan Stoler presents “Update on Complications and Rare Forms of EDS”.
