Archive for the ‘Uncategorized’ Category

Posted on October 3, 2022
John Ferman President of Chronic Pain Partners 501 (c)(3) a.k.a. EDS Awareness was recently interviewed during a Hypermobility Happy Hour Podcast. On this episode, John Ferman returns to talk about his recent work with his organization EDS Awareness/Chronic Pain Partners. EDS Awareness/Chronic Pain Partners has tons of great content including free online webinars that are […]

Posted on April 19, 2022
John Ferman Gilbert Torres Ehlers-Danlos syndrome is a condition that affects every person differently. Even within the same type, symptoms can […]

Posted on February 28, 2022
Funny Bone Newsletter – March 2022 presented by EDS Awareness This is a community-centered project with people older than 45 who want to share their experiences about aging as a person with EDS. This project will be published as part of the EDS Awareness Newsletter in a collaboration between CEO John Ferman and journalist Karina […]

Posted on February 10, 2022
Many Non-profit and for-profit organizations are considering creating or updating their website. We receive many promotions each day. As with all businesses there are good, OK and bad companies promoting their services. This article is intended to give you some general guidelines for selecting and managing a reliable Website Service Provider. Finding a reputable […]

Posted on December 8, 2021
When somebody raises spoons, what do you think first? You might contemplate the piece of silverware. One that is utilized to eat things like soup or ice cream. Except if you are somebody with an ongoing chronic illness, then, at that point, you may rather think about the Spoon Theory. Until someone doesn’t properly know […]

Posted on September 30, 2021
The Funny Bone News Because with EDS, every bone is a funny bone. Stronger Together ‘Positive Vibes to Keep Us Alive’ Hi. How’s it going? My name is Sublime Roo; I’m a UK, Indie Music Producer and I’m an EDS sufferer too… A typical story mine, wasn’t diagnosed ‘til twenty-five; […]

Posted on September 2, 2021
September Ehlers-Danlos News & Updates

Posted on March 23, 2021
My name is Sofia, and I am 13 years old. I am an American / Peruvian living in Florida. I live with my mom, dad, and younger sister and younger brother. I have 3 ferrets, a dog, and 2 stray cats. I love animals, especially horses. One day I hope to own a horse. […]