Archive for the ‘Uncategorized’ Category
Posted on September 30, 2021
The Funny Bone News Because with EDS, every bone is a funny bone. Stronger Together ‘Positive Vibes to Keep Us Alive’ Hi. How’s it going? My name is Sublime Roo; I’m a UK, Indie Music Producer and I’m an EDS sufferer too… A typical story mine, wasn’t diagnosed ‘til twenty-five; […]
Posted on September 2, 2021
September Ehlers-Danlos News & Updates
Posted on March 23, 2021
My name is Sofia, and I am 13 years old. I am an American / Peruvian living in Florida. I live with my mom, dad, and younger sister and younger brother. I have 3 ferrets, a dog, and 2 stray cats. I love animals, especially horses. One day I hope to own a horse. […]
Posted on March 13, 2021
Mandy Harvey
Posted on February 10, 2021
Are you caring for a child who is experiences chronic pain? We need your help with this survey that will enable the Pediatric Pain Warrior program to better recognize, support and advocate for these special kids. The Pediatric Pain Warrior Program, a division of the U.S. Pain Foundation, provides help and hope to children […]
Posted on January 31, 2021
Purpose of This Survey to better understand people’s needs for travel support services and other services that aim to reduce the burdens of participating in a clinical trial. (It’s important to note that these services are not funded by patients, they’re always funded by Sponsors of clinical trials and provided to patients at no cost). […]
Posted on July 25, 2020
EDS and School Children
Posted on June 28, 2020
Chronic Pain Partners 501(c) (3) in association with EDS Awareness are releasing the third in a series of free educational programs about Ehlers-Danlos Syndromes from a nursing perspective. Education credits are approved by the Wisconsin Nurses Association, an accredited approver by the American Nurses Credentialing Center’s Commission on Accreditation Participants must complete and submit the evaluation […]
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