Archive for the ‘Uncategorized’ Category

blog-post-thumbnail
Caring for a person with Ehlers-Danlos syndrome: An interview with two caregivers

Posted on April 25, 2022

                John Ferman                                                       Gilbert Torres Ehlers-Danlos syndrome is a condition that affects every person differently. Even within the same type, symptoms can […]

Read More

blog-post-thumbnail
The EDS & Aging Project

Posted on February 28, 2022

Funny Bone Newsletter – March 2022 presented by EDS Awareness This is a community-centered project with people older than 45 who want to share their experiences about aging as a person with EDS. This project will be published as part of the EDS Awareness Newsletter in a collaboration between CEO John Ferman and journalist Karina […]

Read More

blog-post-thumbnail
Use caution when selecting a Website Design and Developer Services.    5 points to consider.

Posted on February 10, 2022

Many Non-profit and for-profit organizations are considering creating or updating their website.  We receive many promotions each day.  As with all businesses there are good, OK and bad companies promoting their services. This article is intended to give you some general guidelines for selecting and managing a reliable Website Service Provider.   Finding a reputable […]

Read More

blog-post-thumbnail
Spoons Theory | What Actually It Is?

Posted on December 8, 2021

When somebody raises spoons, what do you think first? You might contemplate the piece of silverware. One that is utilized to eat things like soup or ice cream. Except if you are somebody with an ongoing chronic illness, then, at that point, you may rather think about the Spoon Theory. Until someone doesn’t properly know […]

Read More

blog-post-thumbnail
October Ehlers-Danlos News & Updates

Posted on September 30, 2021

      The Funny Bone News   Because with EDS, every bone is a funny bone.    Stronger Together ‘Positive Vibes to Keep Us Alive’   Hi. How’s it going? My name is Sublime Roo; I’m a UK, Indie Music Producer and I’m an EDS sufferer too…  A typical story mine, wasn’t diagnosed ‘til twenty-five; […]

Read More

blog-post-thumbnail
Sofia’s Helping Hand

Posted on March 23, 2021

My name is Sofia, and I am 13 years old. I am an American / Peruvian living in Florida. I live with my mom, dad, and younger sister and younger brother. I have 3 ferrets, a dog, and 2 stray cats.​    I love animals, especially horses. One day I hope to own a horse. […]

Read More

Get Webinar Announcements And Our FREE Guide

Support EDS Awareness

See all upcoming events

Current Poll

How long until you received a proper diagnosis for EDS?

View Results

Loading ... Loading ...
%d bloggers like this: