Archive for the ‘Uncategorized’ Category

blog-post-thumbnail
The Rise of Clinician-Associated Trauma in the Doctor-Patient Relationship

Posted on March 30, 2024

Content warning: This article discusses difficult encounters and experiences with medical clinicians that some readers may find upsetting or triggering. Please take care of yourself as you see fit.   I did not receive an hEDS [hypermobile Ehlers-Danlos syndrome] diagnosis until I was 29 years old, and until 2023, I did not feel one ounce […]

Read More

blog-post-thumbnail
HEDS or HSD: Study Question Diagnostic Criteria

Posted on March 27, 2024

“The 2017 [hypermobile Ehlers-Danlos Syndrome diagnostic] criteria were introduced to improve diagnostic specificity but have faced criticism for being too stringent and failing to adequately capture the multisystemic involvement of hEDS,” states a paper titled “Looking back and beyond the 2017 diagnostic criteria for hypermobile Ehlers-Danlos syndrome: A retrospective cross-sectional study from an Italian reference […]

Read More

blog-post-thumbnail
Know Your Love Language? Learn to Speak it Well Despite Chronic Illness

Posted on February 5, 2024

Did you know each of us shows affection and love in different ways? No matter who you might be cuddled up to this Valentine’s Day, it’s important to understand that a successful intimate relationship is a constantly evolving process of tuning in, adapting, and forging deeper connections, compassion, and caring for one another. Becoming aware […]

Read More

blog-post-thumbnail
It’s Worth a Shot: Prolotherapy, PRP & Regenerative Therapy – A Medical Overview for Curious EDS Patients

Posted on November 8, 2023

This article was collected by the EDS Awareness volunteer media team with information and medical review provided by David Harris, MD, from the Center for Healing and Regenerative Medicine (CHARM) in Austin, Texas. www.charmaustin.com. We are grateful to all the care providers who work to help EDS patients access more information and achieve a better […]

Read More

blog-post-thumbnail
Hypermobility Happy Hour Podcast interview with John Ferman

Posted on October 3, 2022

John Ferman President of Chronic Pain Partners 501 (c)(3) a.k.a. EDS Awareness was recently interviewed during a Hypermobility Happy Hour Podcast. On this episode, John Ferman returns to talk about his recent work with his organization EDS Awareness/Chronic Pain Partners. EDS Awareness/Chronic Pain Partners has tons of great content including free online webinars that are […]

Read More

blog-post-thumbnail
Caring for a person with Ehlers-Danlos syndrome: An interview with two caregivers

Posted on April 19, 2022

                John Ferman                                                       Gilbert Torres Ehlers-Danlos syndrome is a condition that affects every person differently. Even within the same type, symptoms can […]

Read More

blog-post-thumbnail
The EDS & Aging Project

Posted on February 28, 2022

Funny Bone Newsletter – March 2022 presented by EDS Awareness This is a community-centered project with people older than 45 who want to share their experiences about aging as a person with EDS. This project will be published as part of the EDS Awareness Newsletter in a collaboration between CEO John Ferman and journalist Karina […]

Read More

blog-post-thumbnail
Use caution when selecting a Website Design and Developer Services.    5 points to consider.

Posted on February 10, 2022

Many Non-profit and for-profit organizations are considering creating or updating their website.  We receive many promotions each day.  As with all businesses there are good, OK and bad companies promoting their services. This article is intended to give you some general guidelines for selecting and managing a reliable Website Service Provider.   Finding a reputable […]

Read More

Get Webinar Announcements And Our FREE Guide

Support EDS Awareness

See all upcoming events

Current Poll

How long until you received a proper diagnosis for EDS?

View Results

Loading ... Loading ...