Articles
Posted on February 28, 2019
Rare Disease Day is an annual awareness-raising event sponsored by the National Organization for Rare Disorders (NORD) in the US. Rare Disease Day is coordinated by EURORDIS at the international level. The main objective of Rare Disease Day is to raise awareness amongst the general public and decision-makers about rare diseases and their impact on patients’ lives. The […]
Posted on February 13, 2019
Hi Chronic Pain Partners, Thank you for everything you are doing to raise awareness for Marfan Awareness Month! We love your stories, your shout-outs, and the fun and creative ways you’re heightening the understanding of Marfan, Loeys Dietz, vascular Ehlers Danlos, and other related conditions this month! We know you agree: #AwarenessFeelsGood! Now, we are gearing up […]
Posted on December 27, 2018
CAITLIN KEATING December 26, 2018 08:30 AM Fifteen-year-old McKenze Messman was living every teenager’s dream during the summer of 2015. The soon-to-be freshman at Waverly High School in Waverly, Nebraska, was spending her days at the pool, waterskiing on nearby Johnson Lake, and going to cheerleading practice three times a week after landing a spot on […]
Posted on November 1, 2018
John Ferman, Co-founder of the EDS Awareness a.k.a. Chronic Pain Partners 501(c)(3) non-profit program received the 2018 Andrus Excellence in Advocacy award at the AARP Ohio Volunteer Summit DInner in Columbus Ohio on October 29, 2018. John has been a full time volunteer since he retired in 2013 and has: Helped to create over 115 local […]
Posted on October 31, 2018
Introduced at the EDS Conference in Las Vegas About this program. We have had over 1050 participants since we introduced the program! The Ehlers-Danlos Syndromes Physician CME Education Program is the first online Ehlers-Danlos Syndromes course accredited to provide continuing education credits. This free program will cover the fundamental principles for the diagnosis, classification, and […]
Posted on October 27, 2018
BY KATHARIN CZINK AND DINA BAIR Maddie Schubert and Dr. Brad Tinkle It’s often written off as anxiety, particularly in girls. But when the symptoms are thoughtfully pieced together, a puzzling and widely unrecognized disorder is revealed. A quick check of her blood pressure is just one step in Maddie Schubert’s extensive daily routine. “This is on after […]
Posted on October 18, 2018
To: John Ferman – President Chronic Pain Partners Thank you for the amazing work you are doing. It is exciting to hear about the great success of the EDS Physician CME program and the planned CEU program! We are creating a research database for our German doctors with publications and information on Ehlers-Danlos syndromes. Only […]
Posted on August 27, 2018
By: Hillary Floren Posted: Aug 14, 2018 06:48 AM MDT EL PASO, Texas – Ryan Dolliver is like most 3-year-old boys. He loves to play with his sister, laugh, destroy things and he can be mischievous. Ryan has a great smile, and when he laughs it is infectious. He has no clue he is living with […]
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