Articles
Posted on April 25, 2022
John Ferman Gilbert Torres Ehlers-Danlos syndrome is a condition that affects every person differently. Even within the same type, symptoms can […]
to the paper on psychological
and psychiatric aspects of the
Ehlers–Danlos syndromes
Posted on April 20, 2022
EDS expert and pain specialist Dr. Pradeep Chopra contacted Chronic PainPartners to speak about a recently published review on the psychologicaland psychiatric aspects of the Ehlers-Danlos syndromes and HypermobilitySpectrum Disorders. Dr. Chopra has been treating complex pain patientsfocusing on people with the Ehlers-Danlos syndromes for decades, and is apassionate advocate for patients around the world.The […]
Posted on March 30, 2022
Join us on Tuesday, May 10th at 12 pm EDT on a live Zoom call to learn ways to help improve the quality of your life if you face EDS. As we know, there is no cure, but these suggestions might help you have better control of your out-of-control disorder. My special guest speaker is […]
Posted on March 26, 2022
Book Review Meghan O’Rourke and The Invisible Kingdom
Posted on March 24, 2022
Doctor & patient communication
Posted on February 28, 2022
Funny Bone Newsletter – March 2022 presented by EDS Awareness This is a community-centered project with people older than 45 who want to share their experiences about aging as a person with EDS. This project will be published as part of the EDS Awareness Newsletter in a collaboration between CEO John Ferman and journalist Karina […]
Posted on February 10, 2022
Many Non-profit and for-profit organizations are considering creating or updating their website. We receive many promotions each day. As with all businesses there are good, OK and bad companies promoting their services. This article is intended to give you some general guidelines for selecting and managing a reliable Website Service Provider. Finding a reputable […]
Posted on January 28, 2022
The Funny Bone News Because with EDS, every bone is a funny bone. Hi everyone! I hope your new year started well! We skipped the January newsletter, because like almost every year, I was sick in bed over the holidays, and John & I have been working on some […]
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