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The GoodHope Ehlers Danlos Syndrome Clinic: Toronto General Hospital

Posted on September 6, 2021

Click here for link to read the complete article The GoodHope Ehlers Danlos Syndrome Clinic: development and implementation of the first interdisciplinary program for multi-system issues in connective tissue disorders at the Toronto General Hospital Nimish Mittal,  Daniel Santa Mina,  Hance Clarke  Orphanet Journal of Rare Diseases volume 16, Article number: 357 (2021) Cite this article Abstract Ehlers-Danlos Syndrome (EDS) are […]

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Misdiagnoses Happen. Medical Gaslighting Should Not

Posted on June 15, 2021

By Anne Maitland Allergy & ImmunologyMar 16, 2020 Click here for the Original source of this article   Op-Med is a collection of original articles contributed by Doximity members. As a non-psychiatrist, I really cannot tell you the difference between the diagnoses of hypochondriasis, malingering, Munchausen/Munchausen by proxy, or the disorders of conversion and somatization. […]

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The Funny Bone News June Newsletter

Posted on May 29, 2021

The Funny Bone News   Because with EDS, every bone is a funny bone.    A collaboration between EDS Awareness & Karina Sturm Welcome to our 2nd Funny Bone Newsletter!    John, CEO of EDS Awareness, and I decided with this new newsletter, we want to provide useful resources about all things EDS, chronic illness and disability. Specifically, we […]

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Together, we aren’t rare! Let’s talk about Ehlers-Danlos syndrome

Posted on May 12, 2021

CLICK HERE for the complete article in Ability Magazine Twenty-five million people in the US are affected by rare diseases – many of them are genetic and life-limiting. One of these conditions is Ehlers-Danlos syndrome (EDS), an unknown and neglected disorder of the connective tissue that can lead to severe disability. Over the last years, popular […]

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