Articles
Posted on August 29, 2019
New Feature-Length Ehlers-Danlos Documentary ’We Are Visible’ We are inviting the Ehlers-Danlos community to an exclusive screening of Karina Sturm’s feature-length film ’We Are Visible,’ which shows a variety of people living with Ehlers-Danlos syndrome and related conditions all around the globe. ’We Are Visible’ – Short Summary: The Ehlers-Danlos syndromes are a group of rare connective tissue […]
Posted on August 17, 2019
John Ferman President of Chronic Pain Partners 501 (c)(3) a.k.a. EDS Awareness was recently interviewed during a Hypermobility Happy Hour Podcast. John discusses the many EDS educational events and programs that the EDS Awareness team has conducted since 2011 and future plans for EDS patient, Physician CME and Nursing CEU Educational programs. Click here for […]
Posted on July 27, 2019
A doctor and a lawyer walk into a podcast…. Meet Dr. Linda Bluestein and attorney Kerry Gabrielson, two professional women who managed to successfully complete many years of education despite having a painful genetic condition affecting their connective tissue that would need lifelong management. Listen along to their podcast as they tackle the […]
Posted on June 8, 2019
Topics To Be Covered: Genetics, Cardiology, Gastroenterology, Dysautonomia, Mast Cell Activation Syndrome, Physical Therapy, Occult Tethered Cord, Chronic Pain Management and Connecting the Dotsbetween Medical Complexities Provided By: EDSKC Collaboration Inc. in partnership withclinicians from Children’s Mercy Kansas City andthe University of Kansas Medical Center CLICK here for Program Brochure CLICK here for Physician Seminar […]
Posted on May 18, 2019
We are delighted to have completed our first successful EDS Leadership event on May 17, 2019 in Mason, Ohio The conference was free, and we had over 300 life and “live stream” registered attendees from: US, AU, BE, Columbia, CA, UK, MX, Neatherlands, … Videos of the conference presentations will be posted on Leadeds.com soon. […]
Posted on March 30, 2019
John Ferman, Co-founder of the EDS Awareness a.k.a. Chronic Pain Partners 501(c)(3) non-profit program received the 2018 Andrus Excellence in Advocacy award at the AARP Ohio Volunteer Summit DInner in Columbus Ohio on October 29, 2018. John has been a full time volunteer since he retired in 2013 and has: Helped to create over 115 local […]
Posted on March 29, 2019
Introduced at the EDS Conference in Las Vegas About this program. We have had over 1200 participants since we introduced the program! The Ehlers-Danlos Syndromes Physician CME Education Program is the first online Ehlers-Danlos Syndromes course accredited to provide continuing education credits. This free program will cover the fundamental principles for the diagnosis, classification, and […]
Posted on March 25, 2019
“When you judge another, you do not define them, you define yourself” – Wayne Dyer Living with Ehlers Danlos Syndrome (EDS) is like being a doll that is stitched together but whose stitches are slowly coming apart at the seams. You know it, you feel the pain but are powerless to stop it. You have […]
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