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Articles

Illustration of a young Black woman coughing during a meal while holding her throat, with a bowl of soup containing a spoon and a glass of water in front of her, representing swallowing difficulties (dysphagia) associated with Ehlers-Danlos syndrome (EDS) and hypermobility spectrum disorders (HSD).

Why Is Swallowing So Hard? Dysphagia in EDS and HSD 

August 20, 2026

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What Is “Neuro-EDS” and Why Are People Talking About It?

August 15, 2026

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Minimalist illustration of a woman surrounded by symbols of love, happiness, anger, sadness, and other emotions, while a band of fog obscures her eyes, representing emotional numbness and difficulty accessing feelings.

Understanding Emotional Numbness in Ehlers-Danlos Syndrome

August 12, 2026

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Minimalist illustration of a laptop displaying an online webinar, with a speaker, microphone, chat bubble, and three participant icons.

CPP Webinars Are Back! And Why We Need Them More Than Ever

August 10, 2026

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A minimalist watercolor-style illustration of a young Asian woman performing a dumbbell chest press while lying on an exercise mat. She wears a light zebra-print athletic top, gray shorts, white compression socks, and white trainers. Beige kinesiology tape is applied to her upper arm. The bright, neutral-toned home workout space includes a potted plant and simple shelving, conveying a calm, low-impact strength training environment.

Strength Training with Hypermobility: The Goldilocks Principle

August 8, 2026

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Illustration of a uterus and ovaries overlaid on a grid of white tiles, symbolizing the shift from viewing PCOS as an ovarian condition alone to recognizing PMOS as a complex multisystem endocrine and metabolic disorder.

A Name Long Overdue: PCOS Becomes PMOS, and What That Means for the hEDS Community

August 5, 2026

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When Pain Is Real but Tests Come Back Normal: New Research Sheds Light on the Nervous System in hEDS

August 4, 2026

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Overhead view of multiple blister packs containing different prescription medications and tablets beside medication bottles and a tissue on a white surface, representing the complexity and emotional burden of starting and managing medications with chronic illness.

The Fear No One Talks About: Starting a New Medication When Chronically Ill

August 3, 2026

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EDS Awareness is the primary initiative of Chronic Pain Partners, a patient-led nonprofit and a trusted voice in the Ehlers-Danlos community since 2011. Our mission is not only to raise awareness of Ehlers-Danlos Syndromes, but to support patients in navigating life after diagnosis.

Through our articles, newsletters, multimedia, and community storytelling, we help patients, medical professionals, and the broader community better understand EDS and its wide variety of comorbid conditions. By translating emerging research and connecting patients with experts, we turn complex medical information into clear, actionable knowledge that patients can use. We also offer practical guidance for everyday life with EDS, from addressing medical trauma to identifying the best supportive tools.

At EDS Awareness, our goal is to ensure every patient has the support and resources they deserve to live a full and active life with EDS.

Chronic Pain Partners, a US-based non-profit 501(c)(3) organization.

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