Articles

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Hypermobility Happy Hour Podcast interview with John Ferman

Posted on October 3, 2022

John Ferman President of Chronic Pain Partners 501 (c)(3) a.k.a. EDS Awareness was recently interviewed during a Hypermobility Happy Hour Podcast. On this episode, John Ferman returns to talk about his recent work with his organization EDS Awareness/Chronic Pain Partners. EDS Awareness/Chronic Pain Partners has tons of great content including free online webinars that are […]

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EDS & Caregiving: An interview with Alice Agyemang, professional full-time caregiver

Posted on September 20, 2022

Caregiving is a significant part of the lives of people with EDS. Since the Ehlers-Danlos syndromes are such a broad spectrum where symptoms can vary from mild to severe – with everything in between – and the dynamic nature of the condition, which may change from day to day, some people in the community will […]

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Author Christie Cox about her new EDS book ‘Holding It All Together When You’re Hypermobile’

Posted on September 19, 2022

For our Chronic Pain Partners newsletter, journalist Karina Sturm spoke with Christie Cox, fellow zebra and author of the new EDS book “Holding It All Together When You’re Hypermobile.” Cox shares her journey to getting diagnosed with EDS, what motivated her to write this book, and what the book is all about.  [We will review […]

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Where physical therapy ends and magic begins: Healy Physical Therapy and Sports Medicine

Posted on September 19, 2022

“He helped my daughter get from being bedridden to going back to college,” says Michele Pestana when I meet her at Healy Physical Therapy and Sports Medicine in Providence, Rhode Island, on a hot summer day in July 2022. Pestana is 47 years old and has EDS, like most of Dr. Michael (Mike) Healy‘s patients. […]

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The Sextacular EDS Zebra Group: An interview with admin Mary Cordaro

Posted on September 18, 2022

[CW: The following article is for an adult audience due to its content and language. We are sharing challenges related to having sex and ways of overcoming those.] For our October newsletter, journalist Jackie Saa spoke with Mary Cordaro, admin of the “Sex-tacular EDS Zebras” group on Facebook. The idea behind the group was that […]

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Book Review: “Fight + Flight” – The new middle-grade book featuring a character with EDS!

Posted on August 24, 2022

  [CW: The book features an active shooter drill and talks about gun violence. This might be triggering to some people. The review is written so that an adult audience, as well as a younger audience, can get an impression of this book, but please keep in mind the potential triggers.]   Chronic Pain Partners […]

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April Torres on her EDS journey, the mental toll it took on her, and her book ‘God is Hilarious: My Rescue Story’

Posted on August 21, 2022

[CW: The following article discusses suicidal thoughts and ideation. This might be triggering for some people. If you or your loved one is experiencing an acute crisis, here are some phone numbers to consider in the US: The Lifeline (suicide & crisis line): 988 – The Trans Lifeline (trans peer support): 877-565-8860 – The Trevor […]

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Suicide Prevention Month Q & A with Dr. Delaney and PA Sarah Cook about coping strategies and how to support people with chronic illnesses

Posted on August 21, 2022

  [CW: The following article discusses suicidal thoughts and ideation. This might be triggering for some people. If you or your loved one is experiencing an acute crisis, here are some phone numbers to consider in the US: The Lifeline (suicide & crisis line): 988 – The Trans Lifeline (trans peer support): 877-565-8860 – The […]

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