Articles

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2018 Excellence in Advocacy Award From AARP Ohio

Posted on November 1, 2018

John Ferman, Co-founder of the EDS Awareness a.k.a. Chronic Pain Partners 501(c)(3) non-profit program received the 2018 Andrus Excellence in Advocacy award at the AARP Ohio Volunteer Summit DInner in Columbus Ohio on October 29, 2018. John has been a full time volunteer since he retired in 2013 and has: Helped to create over 115 local […]

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Father Raising Awareness with Ryan Challenge and Vascular Ehlers-Danlos Syndrome (VEDS)

Posted on August 27, 2018

  By: Hillary Floren Posted: Aug 14, 2018 06:48 AM MDT EL PASO, Texas – Ryan Dolliver is like most 3-year-old boys.  He loves to play with his sister, laugh, destroy things and he can be mischievous. Ryan has a great smile, and when he laughs it is infectious. He has no clue he is living with […]

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EDS Awareness was a Sponsor at the 2018 EDS Learning Conference

Posted on August 8, 2018

EDS Awareness was a Sponsor at EDS Learning Conference for the 7th time. EDS Awareness a.k.a. Chronic Pain Partners non-profit 501(c)(3) was a sponsor and received an overwhelming response to our support groups, monthly webinars and our new EDS Physician CME Education program. There have been over 900 participants registered to take courses over the […]

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New Ehlers-Danlos Syndromes Physician CME Education Program

Posted on July 16, 2018

      Introduced at the EDS Conference in Las Vegas   About this program.   We have had over 800 participants since we introduced the program!  The Ehlers-Danlos Syndromes Physician CME Education Program is the first online Ehlers-Danlos Syndromes course accredited to provide continuing education credits. This free program will cover the fundamental principles […]

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What it’s Like to Live with a Serious Invisible Illness Like EDS

Posted on July 15, 2018

by:  ALICE HOWARTH From searching for a cure to being repeatedly dismissed, former model Tori Chalmers opens up about being part of the invisible illness community. Tori Chalmers  ES Lifestyle Newsletter Having any kind of illness is tough but add to that the fact of it being invisible, at times it can seem impossible to cope with. In the […]

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National Suicide Prevention Month

Posted on June 27, 2018

  Click here to register for a Suicide Prevention webinar on October 4, 2018 We can all help prevent suicide. Every year, the Lifeline and other mental health organizations and individuals across the U.S. and around the world raise awareness of suicide prevention during September, National Suicide Prevention Month. About National Suicide Prevention Month September is National […]

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Doctor said it was all in her head, but it was ‘the most common condition’

Posted on June 24, 2018

POSTED 5:48 AM, JUNE 26, 2018, BY CNN WIRE, UPDATED AT 07:37AM, JUNE 26, 2018 Fox 59 File photo Super Bowl MVP Nick Foles is ecstatic about leading the Philadelphia Eagles to victory, but that’s not the triumph he celebrates daily. He gives that medal to his wife, Tori Foles, for what he calls her “amazing strength” […]

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