Articles

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New Feature-Length Ehlers-Danlos Documentary ’We Are Visible’ IS NOW ON LINE

Posted on August 24, 2020

  New Feature-Length Ehlers-Danlos Documentary   Fellow Zebras, medical professionals, and everyone living with an invisible condition,          We want to invite you to join the On Line screening of the film ‘We Are Visible’, a feature-length documentary about people living with Ehlers-Danlos syndrome     Click here for the link to the […]

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The Third EDS Nurse’s Educational Training Course is Now Available.

Posted on June 28, 2020

Chronic Pain Partners 501(c) (3) in association with EDS Awareness are releasing the third in a series of free educational programs about Ehlers-Danlos Syndromes from a nursing perspective. Education credits are approved by the Wisconsin Nurses Association, an accredited approver by the American Nurses Credentialing Center’s Commission on Accreditation Participants must complete and submit the evaluation […]

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How to Train a Service Dog

Posted on May 30, 2020

September 29, 2019 by Emma Lunsford Click here for full article, Images and videos Every dog-lover knows the internal struggle of seeing a service dog with a “DO NOT PET” vest on. As hard as it is, it’s super important to know that service dogs aren’t defined as pets, but as workers. And for some people, they’re absolutely […]

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“Disjointed” is a new book for patients with hEDS/HSD and their physicians

Posted on May 3, 2020

Disjointed is now live on Amazon and shipping. Click here for a link to order online, Description:  Disjointed is for patients with hEDS/HSD and the physicians who treat them. hEDS/HSD is an underrecognized, complex, multisystemic disorder, with the silos of healthcare’s specialties often working against effective and efficient treatment. With 21 specialist & 6 resource chapters, […]

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Chronic Pain Partners Educational Series -Free Ehlers-Danlos Educational Programs

Posted on April 10, 2020

     Now that most of us are asked to stay in our home this is a perfect time to increase our knowledge about Ehlers Danlos Syndromes.  Learn more through these Free educational video programs about Ehlers-Danlos Syndromes presented by over 60 experts covering 50 EDS related topics.  Ehlers Danlos Syndromes is a genetic condition that is NOT “Rare” but “Rarely […]

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May 2020 EDS Awareness Month

Posted on March 19, 2020

Every chronic illness and issue has an awareness month, and May happens to be the month for Ehlers-Danlos Syndromes Awareness. So prepare to promote with lots of awareness activities, articles and Facebook posts with your support group members, friends or family. If you don’t have a local group contact us to get one set up with […]

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