Articles

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May 2021 EDS Awareness Month

Posted on May 1, 2021

Every chronic illness and issue has an awareness month, and May happens to be the month for Ehlers-Danlos Syndromes Awareness. So prepare to promote with lots of awareness activities, articles and Facebook posts with your support group members, friends or family. If you don’t have a local group contact us to get one set up with […]

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Together, we aren’t rare! Let’s talk about Ehlers-Danlos syndrome

Posted on May 12, 2021

CLICK HERE for the complete article in Ability Magazine Twenty-five million people in the US are affected by rare diseases – many of them are genetic and life-limiting. One of these conditions is Ehlers-Danlos syndrome (EDS), an unknown and neglected disorder of the connective tissue that can lead to severe disability. Over the last years, popular […]

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New EDS Awareness Newsletter: The Funny Bone News

Posted on May 8, 2021

Welcome to the Funny Bone News   Because with EDS, every bone is a funny bone.  Hi everyone, my name is Karina, and I am a journalist, advocate and fellow EDSer. You might know me through my film ‘We Are Visible,’ a documentary about EDS that I produced in 2019.    John, the CEO of EDS […]

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May 2021 EDS Awareness Month

Posted on May 1, 2021

Every chronic illness and issue has an awareness month, and May happens to be the month for Ehlers-Danlos Syndromes Awareness. So prepare to promote with lots of awareness activities, articles and Facebook posts with your support group members, friends or family. If you don’t have a local group contact us to get one set up with […]

Read More

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EDS Awareness Healthcare Provider Educational Program Accreditation

Posted on April 30, 2021

  Thank you for participating in our EDS Educational webinars and Healthcare Provider programs in 2020. We have had an overwhelming, world-wide response to these programs.  We have now Partnered with the University of Wisconsin–Madison ICEP In support of improving patient care, these activities have been planned and implemented by the University of Wisconsin–Madison ICEP and Chronic Pain […]

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Disability Grants for Home Improvements & Repairs

Posted on April 23, 2021

Jackie August 24, 2020      Over 60 million Americans are living with a disability that affects their everyday activities. Adapting a home to accommodate someone with a disability is often a costly endeavor. However, you may qualify for grants that reduce your out of pocket expenses. Many grants are available for people with disabilities […]

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