Articles
Posted on March 19, 2020
Every chronic illness and issue has an awareness month, and May happens to be the month for Ehlers-Danlos Syndromes Awareness. So prepare to promote with lots of awareness activities, articles and Facebook posts with your support group members, friends or family. If you don’t have a local group contact us to get one set up with […]
Posted on March 9, 2020
We are very excited to announce the introduction of the First, Online, Free, Ehlers-Danlos Nursing Continuing Education program. Nursing is the largest healthcare profession, with over 3.6 million nurses in the US alone. Nurses spend more time with patients than many other health professionals, and they are experts in helping patients live with their health […]
Posted on February 15, 2020
Dr. Clair Francomano has recently been added as a new EDS Physician training course to the popular Physician Training program. Click here to register Overview of Diagnosis and Management of Ehlers-Danlos Syndromes Recognizing and treating a group of complex multi-systemic connective tissue disorders: Ehlers-Danlos syndromes and Hypermobility Spectrum Disorders (HSD) This course explains the varying presentations, […]
Posted on February 4, 2020
New Feature-Length Ehlers-Danlos Fellow Zebras, medical professionals, and everyone living with an invisible condition, We want to invite you to join the screening of the film ‘We Are Visible’, a feature-length documentary about people living with Ehlers-Danlos syndrome all across the world, at Penn State University during rare disease months. Details: […]
Posted on August 17, 2019
John Ferman President of Chronic Pain Partners 501 (c)(3) a.k.a. EDS Awareness was recently interviewed during a Hypermobility Happy Hour Podcast. John discusses the many EDS educational events and programs that the EDS Awareness team has conducted since 2011 and future plans for EDS patient, Physician CME and Nursing CEU Educational programs. Click here for […]
Posted on July 27, 2019
A doctor and a lawyer walk into a podcast…. Meet Dr. Linda Bluestein and attorney Kerry Gabrielson, two professional women who managed to successfully complete many years of education despite having a painful genetic condition affecting their connective tissue that would need lifelong management. Listen along to their podcast as they tackle the […]
Posted on June 8, 2019
Topics To Be Covered: Genetics, Cardiology, Gastroenterology, Dysautonomia, Mast Cell Activation Syndrome, Physical Therapy, Occult Tethered Cord, Chronic Pain Management and Connecting the Dotsbetween Medical Complexities Provided By: EDSKC Collaboration Inc. in partnership withclinicians from Children’s Mercy Kansas City andthe University of Kansas Medical Center CLICK here for Program Brochure CLICK here for Physician Seminar […]
Posted on May 18, 2019
We are delighted to have completed our first successful EDS Leadership event on May 17, 2019 in Mason, Ohio The conference was free, and we had over 300 life and “live stream” registered attendees from: US, AU, BE, Columbia, CA, UK, MX, Neatherlands, … Videos of the conference presentations will be posted on Leadeds.com soon. […]
Loading ...
