You feel lightheaded when you stand, have brain fog, palpitations, exercise intolerance, fatigue, and headaches. If your general practitioner is knowledgeable (and that’s a big “if”) they give you a referral to a specialist who runs appropriate testing to see if you have postural orthostatic tachycardia syndrome (POTS). Your tilt table test may suggest too […]
Being diagnosed with Ehlers-Danlos syndrome can feel like a major feat to some. Maybe you’ve been advocating for a diagnosis for a while, or maybe this was a shock to you. In both scenarios, sometimes you get to the other side of the diagnostic process and realize it doesn’t just stop there. Now is the […]
When most people think of food allergies, they picture the immediate, dramatic reactions that define IgE-mediated allergies, such as hives, swelling, and anaphylaxis. These reactions are driven by immunoglobulin E, or IgE, a type of antibody that triggers a rapid immune response upon exposure to a food allergen. But there is another category of food […]
When people think about the body systems affected by Ehlers-Danlos Syndrome (EDS), the voice box probably isn’t one of the first things that comes to mind. People with EDS often learn that connective tissue plays a role in far more parts of the body than they initially realized, and yet they may still be surprised […]
Hypermobile Ehlers-Danlos syndrome (hEDS), and the closely related hypermobility spectrum disorders (HSD), are commonly thought of as conditions that primarily affect women. Walk into any EDS support group, online community, or clinic waiting room, and the overwhelming majority of people there will be female. But does that mean men are truly less affected, or does […]
Ehlers-Danlos Syndrome (EDS) is a complex chronic condition that for many patients comes with some level of disability. It also often comes with other comorbidities (health conditions that occur alongside a primary diagnosis) such as dysautonomia or mast cell activation syndrome (MCAS). As there are 13 types of EDS and symptoms often manifest differently in […]
As a mother of three children living with Ehlers-Danlos syndrome, the start of a new school year has always brought a certain amount of anxiety. While many of my mom friends and their kids were shopping for new clothes and school supplies, excited about the possibilities of a fresh start, my back-to-school “to-do” list often […]
If you’ve landed here, maybe you have been quietly researching traits of autism, looking up screening questionnaires, and wondering if you could be part of the recently reported 39% of autistic patients that have co-occurring Ehlers-Danlos Syndrome (EDS) and hypermobility spectrum disorder (HSD). Before I ever sat across from an evaluator, I spent months reading, […]
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In memory of John Ferman, Founder and President of Chronic Pain Partners / EDS Awareness
EDS Physical Therapy Book & Free Webinar: “Living Life to the Fullest with Ehlers-Danlos Syndrome”