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Pediatric Pain Warrior Survey

Posted on February 10, 2021

  Are you caring for a child who is experiences chronic pain?  We need your help with this survey that will enable the Pediatric Pain Warrior program to better recognize, support and advocate for these special kids.  The Pediatric Pain Warrior Program, a division of the U.S. Pain Foundation, provides help and hope to children […]

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EDS Awareness Healthcare Provider Educational Program Accreditation

Posted on February 1, 2021

  Thank you for participating in our EDS Educational webinars and Healthcare Provider programs in 2020. We have had an overwhelming, world-wide response to these programs.  We have now Partnered with the University of Wisconsin–Madison ICEP In support of improving patient care, these activities have been planned and implemented by the University of Wisconsin–Madison ICEP and Chronic Pain […]

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Survey About Support in Clinical Trials – Rare Disease Patients/Caregivers- Chance to win gift cards!!

Posted on January 31, 2021

Purpose of This Survey  to better understand people’s needs for travel support services and other services that aim to  reduce the burdens of participating in a clinical trial. (It’s important to note that these services  are not funded by patients, they’re always funded by Sponsors of clinical trials and provided  to patients at no cost).  […]

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LaserMD Pain Relief

Posted on December 1, 2020

EDS patients may be genetically high-responders to laser photobiomodulation pain treatment.  85% of 45 EDS patients have very good or excellent pain reduction from laser photobiomodulation in our clinic.  In one EDS patient, we have been able to reverse incipient gastrocnemius separation from its tendon, which previously required the patient to have surgery.  All of […]

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Diagnosed prevalence of Ehlers-Danlos syndrome and hypermobility spectrum disorder in Wales, UK .. (1 in 500): a national electronic cohort study and case–control comparison

Posted on November 14, 2020

Authors Joanne C Demmler1,                                     Mark D Atkinson1,  Emma J Reinhold2,  Ernest Choy3,  Ronan A Lyons1,  Sinead T Brophy1 Author affiliations Swansea University Medical School, Swansea University, Swansea, UK Royal College of General Practitioners, London, UK School of Medicine, Cardiff University, Cardiff, UK Correspondence […]

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The fully accessible guide to training an emotional support dog

Posted on October 24, 2020

Created by Lori Zaino This article was reprinted with permission from this author . The complete article is available at this link Covered in this guide The lowdown on emotional support dogs: what they are, how they differ from service dogs, who should get one, and how to certify them. Breeds/types of dogs that make […]

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National Suicide Prevention Month

Posted on September 30, 2020

Teenage Suicide A leading cause of death Published with the permission of D’AMore Mental Health Contents   Is suicide a side effect of mental illness or addiction? Why do teens and young adults want to commit suicide? Does Social Media contribute to suicidality? Suicide and LGBT Youth Is self-harm a sign of suicidal ideation? What […]

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