Articles
Posted on June 28, 2020
Chronic Pain Partners 501(c) (3) in association with EDS Awareness are releasing the third in a series of free educational programs about Ehlers-Danlos Syndromes from a nursing perspective. Education credits are approved by the Wisconsin Nurses Association, an accredited approver by the American Nurses Credentialing Center’s Commission on Accreditation Participants must complete and submit the evaluation […]
Posted on May 30, 2020
September 29, 2019 by Emma Lunsford Click here for full article, Images and videos Every dog-lover knows the internal struggle of seeing a service dog with a “DO NOT PET” vest on. As hard as it is, it’s super important to know that service dogs aren’t defined as pets, but as workers. And for some people, they’re absolutely […]
Posted on May 3, 2020
Disjointed is now live on Amazon and shipping. Click here for a link to order online, Description: Disjointed is for patients with hEDS/HSD and the physicians who treat them. hEDS/HSD is an underrecognized, complex, multisystemic disorder, with the silos of healthcare’s specialties often working against effective and efficient treatment. With 21 specialist & 6 resource chapters, […]
Posted on April 10, 2020
Now that most of us are asked to stay in our home this is a perfect time to increase our knowledge about Ehlers Danlos Syndromes. Learn more through these Free educational video programs about Ehlers-Danlos Syndromes presented by over 60 experts covering 50 EDS related topics. Ehlers Danlos Syndromes is a genetic condition that is NOT “Rare” but “Rarely […]
Posted on March 19, 2020
Every chronic illness and issue has an awareness month, and May happens to be the month for Ehlers-Danlos Syndromes Awareness. So prepare to promote with lots of awareness activities, articles and Facebook posts with your support group members, friends or family. If you don’t have a local group contact us to get one set up with […]
Posted on March 9, 2020
We are very excited to announce the introduction of the First, Online, Free, Ehlers-Danlos Nursing Continuing Education program. Nursing is the largest healthcare profession, with over 3.6 million nurses in the US alone. Nurses spend more time with patients than many other health professionals, and they are experts in helping patients live with their health […]
Posted on February 15, 2020
Dr. Clair Francomano has recently been added as a new EDS Physician training course to the popular Physician Training program. Click here to register Overview of Diagnosis and Management of Ehlers-Danlos Syndromes Recognizing and treating a group of complex multi-systemic connective tissue disorders: Ehlers-Danlos syndromes and Hypermobility Spectrum Disorders (HSD) This course explains the varying presentations, […]
Posted on February 4, 2020
New Feature-Length Ehlers-Danlos Fellow Zebras, medical professionals, and everyone living with an invisible condition, We want to invite you to join the screening of the film ‘We Are Visible’, a feature-length documentary about people living with Ehlers-Danlos syndrome all across the world, at Penn State University during rare disease months. Details: […]
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