July is a busy month in the Ehlers-Danlos world. The EDS Society’s Annual Global Learning Conference takes place in Allen, Texas, on July 24-26. It will feature a great lineup of esteemed physician speakers, patient organizations, advocates, and presentations covering this year’s theme: “Exploring Comorbidities in EDS & HSD.” It is also the Ten-Year Celebration of the founding of the Ehlers-Danlos […]
Sitting in the Hard Stuff There are moments with chronic illness that are just genuinely horrible all the way around. No silver lining, no lesson, just a terrible day in a body that is kicking you when you’re down. Having people who are willing to sit in that with me when I have nothing to […]
Tayler Goectau, AuthorClinical Research CoordinatorDisability Advocate@distaaybledJuly , 2026
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