Our Staff

We are pleased to have a staff of dedicated individuals sharing our passion to provide assistance and education to our EDS Awareness member community:

Deanna Hamm

President & Co-Founder

Past Cleveland Support Group Leader

John-Ferman

Former President – Co-Founder 2011-2025

(We are very sorry to announce John passed in Nov, 2025)

Andrea Julian

Board Member

Secretary – Dayton & Support Group Leader

Jonathan Rodis

Board Member

Founder and Co-leader-Ehlers-Danlos New England Support Group

Martha Riemenschneider

Board Member

Nursing Consultant

Portrait of Dr. Chopra, a middle-aged man with short dark hair and glasses, wearing a light blue shirt and tie, facing the camera with a slight smile against a neutral background.

Dr. Pradeep Chopra

Medical Advisor

Board-Certified in Pain Medicine and Anesthesiology

Media Team

Since May 2021, our dedicated media team brings the latest EDS news to you via our Chronic Pain Partners Post, a monthly newsletter featuring original content by and for the EDS community. 

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Jacqueline Teti

Editor-in-Chief & Director of Programs

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Donna Sullivan

Educational Outreach & Webinar Coordinator

Tayler Goectau seated in a wheelchair, wearing a black blazer and light-colored pants, resting her head on her hand and smiling softly against a minimalist indoor background.

Tayler Goectau

Writer & Social Media Coordinator

Clinical Research Coordinator, Norris Lab & Disability Advocate

Amy Weintraub smiling while working in a laboratory, wearing a white Norris Lab research coat and blue gloves while handling materials at a lab bench surrounded by scientific equipment.

Amy Weintraub

Science Writer

Research Specialist, Norris Lab

Professional headshot of Hailee Munno smiling at the camera with shoulder-length blonde wavy hair, wearing a blue graduation gown with an orange stole and honor cords against a soft neutral background.

Hailee Munno

Writing Intern, Summer 2026

Professional headshot of Jacqueline Moltzau wearing a black turtleneck sweater and small silver hoop earrings. She is facing the camera with a slight smile, and her shoulder-length dark brown hair is styled in loose waves. The portrait is taken indoors with natural light against a softly blurred modern office or hallway background.

Jacqueline Moltzau Anderson

Volunteer Science Writer

Researcher at University of California

Volunteer & Guest Writers

Susan Jackson

Volunteer Writer

Crystal Sullivan

Volunteer Writer

Jackie Saa

Volunteer Writer

Beth Miller

Volunteer Writer

Sarah Cook

Volunteer Writer

Christie Cox

Volunteer Writer

Past Contributors

Portrait of Jan with short, curly brown hair wearing glasses and a dark turtleneck layered under a patterned shirt, smiling slightly. They are indoors, with a leafy green plant behind them and warm-toned lighting that gives the scene a cozy feel.

Jan Groh

Former Social Media Coordinator 2023-2026

Kate Schultz

Former Writer & Assistant Editor-in-Chief

Karina Sturm

Former Editor-in-Chief 2019-2026

Support us through our Amazon store for EDS-related products

Upcoming

Webinars Schedule

Susannah Fox

Live Webinar with Susannah Fox, Author of Rebel Health
Karina Strum

New Feature-Length Ehlers-Danlos Documentary ’We Are Visible’
See full schedule

Webinars

Current Poll

How long until you received a proper diagnosis for EDS?

View Results

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