Our Staff
We are pleased to have a staff of dedicated individuals sharing our passion to provide assistance and education to our EDS Awareness member community:
Media Team
Since May 2021, our dedicated media team brings the latest EDS news to you via our Chronic Pain Partners Post, a monthly newsletter featuring original content by and for the EDS community.
Karina Sturm is our Editor-in-Chief for all things media on this website as of May 2021. She is a journalist (MA) and lives with EDS and many other comorbid conditions.
Susan Jackson is a volunteer writer.
Kate Schultz is a writer, a former high school English teacher and theatre director/stage manager, and a former software tester. She lives in Madison, WI, with her husband, three cats, and classical Ehlers-Danlos syndrome.
Crystal Sullivan is a volunteer writer and lives with several rare diseases. She has worked at the local, state, and federal level fighting for patient’s rights. In between doctor’s appointments, you can find her writing, wandering the woods, dancing like nobody’s watching, or getting into some sort of interesting trouble around the San Francisco Bay Area.
Jackie Saa is a volunteer writer, zebra warrior and advocate.
Regular Guest Authors & Past Volunteer Writers
Beth Miller was a volunteer writer, English/ESL/Creative writing Instructor, Movement Educator.
Sarah Cook was a volunteer writer for our newsletter; she is also a Physician Assistant and Medical Writer.