Ross A. Hauser, MD
10 Low-cost ways to improve symptoms of peripheral joint and spinal instabilities from hEDS, including brain fatigue, pain, POTS, MCAS and more.
Bonnie Nasar RDN
“How to Build an EDS Plate: Feel Better with Food”?
Presenter: Jeannie Di Bon MA PMA-CPT
Title: “A Pain in the Hypermobile Neck”
Presenter: Dr. Eli Penn
Title: hEDS and the Gastrointestinal Tract
Pradeep Chopra, MD
“Management of Long Covid with EDS”
Eloise Stager, LMT, CST-D
“The Role of CranioSacral Therapy in
Pain Management and ANS Regulation”
Anne Maitland, M.D., Ph.D
“Beyond allergies- mast cell activation diseases!”
Clair Francomano MD
“EDS and Hypermobility Spectrum Disorders – Overview of Diagnosis and Management”
Sonny Mullen
“A Guide to Medical Fundraising”
Karina Sturm
New Feature-Length Ehlers-Danlos Documentary
“We Are Visible”
Podcast Interview with Karina Strum
‘We are Visible’ Podcast Interview
Andrea Julian
“Starting and Maintaining a Successful Support Group”
Maria Dastur, M.B.A.
Organizing and Managing your Facebook and Social Media
Alan G. Pocinki M.D.
Sleep Disorders in EDS
Ross A. Hauser, MD
Consequences and Resolution of Joint Instabilities in H- EDS
Bonnie Nasar RDN
“Optimizing nutrition to Decrease Brain Fog, Fatigue, & Pain”
Jeannie Di Bon. MA, PMA-CPT
“How can Pilates help with my EDS Symptoms”
Petra Klinge MD
“Managing Life with Neurological Symptoms and EDS”
Cathy L. Pederson, Ph.D
“Understanding the Relationship between Chronic Illness and Suicide”
Patrick Agnew DPM
“Foot and Ankle Treatments for EDS”
Susan Tran, PhD
“Partnering with Families to Improve Functioning in Youth with EDS”
Paolo A Bolognese, MD
Chiari I Malformation, EDS, and Craniocervical Instability
Lauren Stiles, JD
“Understanding the Relationship Between Ehlers-Danlos Syndrome and Postural Orthostatic Tachycardia Syndrome”
Jordan Tishler, MD
Medical Cannabis – Pain Relief for EDS
Jeannie Di Bon, MA, PMA-CPT
“Strengthen and Control Your Hypermobile Core With Pilates”
John Ferman
Online EDS Physician CME Education
Anne Maitland, MD, PhD
“Mast Cell Activation Disorder”
Joshua Milner, M.D.
“Update on Tryptase Research”
Delia Chiaramonte, MD
“Practical Stress Management: A Mind-Body Approach”
Manu Sood, MD
Katja Kovacic, MD
“Gastrointestinal Motility Disorders and Cyclic Vomiting”
Gisela Chelimsky, MD
“Hypermobile EDS and Gastrointestinal Issues”
Pradeep Chopra, MD
“Management of complex pain in children and adults with EDS”
Pradeep Chopra, MD
“EDS Pain Management – Connecting the DOTS… part 3”
Dr. Ajoy Sarkar
“Ehlers-Danlos Syndrome Hypermobility Type in the UK: Missed or Just Misunderstood?”
Sara Williams, PhD
“Biofeedback: Training your Body to Relax”
Jan Dommerholt, DPT
“Physical Therapy for EDS – Part 2”
Why does it hurt all of the time?
Markus-Frederik Bohn, PHD
“Tenascin X and Ehlers-Danlos Syndrome”
Dr. Marco Castori
“Multidisciplinary Diagnostic and Management Approach to the EDS Patient”
Dan Doherty — YouScript / Genelex Corp.
“Pharmacogenetic Testing to Assess Altered Drug Metabolism”
Diane O’Leary, PhD
“All in Your Head”: The Problem of Psychogenic Diagnosis for Ehlers-Danlos Patients
John Ferman and Deanna Hamm
“World-Wide EDS Survey Results” by EDS Awareness
(2544 respondents from 26 countries)
Karen Foulks, OTR/CHT
Jesse Garris, Silver Ring Splint Co.
“Anatomy and SilverRing™ Splints for Ehlers-Danlos Hands”
Trish Meegan, DPT, L, ATC
“Physical Therapy for EDS: Including how your posture and thorax/ribcage affects your PT program”
Dr. Clive Bridgham
“Chronic Pain Alternatives – with focus on inflammation and nutrition”
Kevin Muldowney, MSPT
“Physical Therapy Protocol for Ehlers-Danlos Syndrome” (using the new EDS Physical Therapy Book)
Frank Gargano PT, DPT, OCS, CIDN, MCTA, CWT
“Dry Needling for EDS Pain Management: Can muscle performance be improved?”
Dr. Richard Barnum
“EDS and Psychiatric Illness Misdiagnoses”
Dr. Anne Maitland
“Mast Cell Activation Syndrome” Part 1
Dr. Alan Pocinki
“Chronic Pain, Poor Sleep, Depression, and Fatigue in EDS”
Dr. Derek Neilson
“Proving the obvious: Next Steps for the Demystification
of the Ehlers-Danlos Hypermobility Type”
Dr. Peter Rowe
“Managing Orthostatic Intolerance in EDS”
Prof Joel Lamoure, RPh., DD., FASCP
“Medical Psychiatry in Pain Management”
Eric Palmer, Orthotist
“Bracing for EDS”
Dr. John Mitakides
“TMJ, Cervical Instability and EDS”
Dr. Staci Kallish
“Cardiac Manifestations in EDS”
Presenter: Kevin Muldowney, PT Click here for a link to the announcement page Video link is on this page
Presenter: Michael, Healy, DPT Click here for a link to the announcement page Video link is on this page
Dr. Kenneth Goldschneider
Pain Management for EDS
We help those with Ehlers-Danlos find or organize support groups in their local communities. Our free program provides each group with a listing on the Support Group Directory and Map, free webpages, coaching, and more… If there is no group in your area, we will help you survey interest and connect with local EDSers. We also provide Educational recordings by EDS experts. Contact us at info@edsawareness.com for help or to be included in the directory.
Find a support group location by using the interactive map or the look-up menu below.
Loading map...
Posted on August 31, 2023
This is the second article in our series covering psychological medical trauma. The first article provided an introduction to what concepts of psychological medical trauma exist and the newly-created concept of clinician-associated trauma. It also introduced a study regarding hEDS patients and clinician-associated trauma. This article will look deeper into the details of this study […]
Posted on August 23, 2023
Living with a rare disease like hEDS (Hypermobile Ehlers-Danlos Syndrome) can lead to misunderstandings and sometimes offensive comments from people who don’t get it. However, handling these remarks with wit and wisdom can make the situation easier and lighten the load. Here are ten clever comebacks for handling offensive comments about hEDS: “You’re just lazy.” […]
Posted on August 22, 2023
It is challenging to find the source of our gut problems, so many of us have related to hypermobility. The volunteer media team at Chronic Pain Partners tried to tackle the basics so our readers could have a brief introduction to the variances and testing available for different diagnoses of these often ‘gut-wrenching’ illnesses. Note: We […]
Posted on August 21, 2023
When it comes to health crises, only a few diagnoses can be as daunting as Ehlers-Danlos syndrome (EDS). But you know what they say, “When life gives you lemons, make lemonade” – or, in this case, when life gives you chronic pain and mobility issues, make jokes (if you can)! Before we dive into the […]
Awareness Joint Hypermobility Kids Family Community Managing Ehlers-Danlos Fundraising Parenting Kids with Ehlers-Danlos Pain Management Managing Symptoms Doctor Speaker Series Caregivers EDS Diagnosis Teens Ehlers-Danlos Symptoms Pain of EDS Pain Diagnosis Exercise advocate Parenting with Ehlers-Danlos Coping Techniques POTS (Postural Orthostatic Tachycardia Syndrome) EDS Research Parenting Ehlers-Danlos Vascular/Cardiac Latest Updates Uncategorized Physical Therapy Videos Chiari Conferences newsletter Research Marfans EDNF Conference Autonomic Dysfunction & Pots Support Group Activities Mast Cell Dysautonomia Helpful Product EDS Interview Service dogs Gastrointestinal Support Groups Sports Rare Disease Progams Invisible Disabilities Social/Relational Functioning at Home TV Shows Inspiration & Humor Genetics SYMPTOMS Therapies Child Abuse Claims Doctor Training book review Vascular Ehlers-Danlos Syndrome (VEDS) Workplace School Children Support Product Dealing with Doctors Rare Disease Day Surgery Dance Relaxation Therapy Disabiity EDS Petition EDS Educational programs Events Sleep Dysfunction Neurology New conference Nutrition survey Chiari Malformation psychology misdiagnosis Disability Petition Proprioception EDS Product Upcoming Webinars Ergonomics Classical Ehlers-Danlos Syndrome (cEDS) Dental Chronic fatigue syndrome Medical Marijuana Memorials Music psychiatry Pacing Techniques
Copyright © 2023 EDS Awareness. All rights reserved. Website designed by BM Web Creation
Loading ...