Clair Francomano MD
“EDS and Hypermobility Spectrum Disorders – Overview of Diagnosis and Management”
Sonny Mullen
“A Guide to Medical Fundraising”
Karina Sturm
New Feature-Length Ehlers-Danlos Documentary
“We Are Visible”
Podcast Interview with Karina Strum
‘We are Visible’ Podcast Interview
Andrea Julian
“Starting and Maintaining a Successful Support Group”
Maria Dastur, M.B.A.
Organizing and Managing your Facebook and Social Media
Alan G. Pocinki M.D.
Sleep Disorders in EDS
Ross A. Hauser, MD
Consequences and Resolution of Joint Instabilities in H- EDS
Bonnie Nasar RDN
“Optimizing nutrition to Decrease Brain Fog, Fatigue, & Pain”
Jeannie Di Bon. MA, PMA-CPT
“How can Pilates help with my EDS Symptoms”
Petra Klinge MD
“Managing Life with Neurological Symptoms and EDS”
Cathy L. Pederson, Ph.D
“Understanding the Relationship between Chronic Illness and Suicide”
Patrick Agnew DPM
“Foot and Ankle Treatments for EDS”
Susan Tran, PhD
“Partnering with Families to Improve Functioning in Youth with EDS”
Paolo A Bolognese, MD
Chiari I Malformation, EDS, and Craniocervical Instability
Lauren Stiles, JD
“Understanding the Relationship Between Ehlers-Danlos Syndrome and Postural Orthostatic Tachycardia Syndrome”
Jordan Tishler, MD
Medical Cannabis – Pain Relief for EDS
Jeannie Di Bon, MA, PMA-CPT
“Strengthen and Control Your Hypermobile Core With Pilates”
John Ferman
Online EDS Physician CME Education
Anne Maitland, MD, PhD
“Mast Cell Activation Disorder”
Joshua Milner, M.D.
“Update on Tryptase Research”
Delia Chiaramonte, MD
“Practical Stress Management: A Mind-Body Approach”
Manu Sood, MD
Katja Kovacic, MD
“Gastrointestinal Motility Disorders and Cyclic Vomiting”
Gisela Chelimsky, MD
“Hypermobile EDS and Gastrointestinal Issues”
Pradeep Chopra, MD
“Management of complex pain in children and adults with EDS”
Pradeep Chopra, MD
“EDS Pain Management – Connecting the DOTS… part 3”
Dr. Ajoy Sarkar
“Ehlers-Danlos Syndrome Hypermobility Type in the UK: Missed or Just Misunderstood?”
Sara Williams, PhD
“Biofeedback: Training your Body to Relax”
Jan Dommerholt, DPT
“Physical Therapy for EDS – Part 2”
Why does it hurt all of the time?
Markus-Frederik Bohn, PHD
“Tenascin X and Ehlers-Danlos Syndrome”
Dr. Marco Castori
“Multidisciplinary Diagnostic and Management Approach to the EDS Patient”
Dan Doherty — YouScript / Genelex Corp.
“Pharmacogenetic Testing to Assess Altered Drug Metabolism”
Diane O’Leary, PhD
“All in Your Head”: The Problem of Psychogenic Diagnosis for Ehlers-Danlos Patients
John Ferman and Deanna Hamm
“World-Wide EDS Survey Results” by EDS Awareness
(2544 respondents from 26 countries)
Karen Foulks, OTR/CHT
Jesse Garris, Silver Ring Splint Co.
“Anatomy and SilverRing™ Splints for Ehlers-Danlos Hands”
Trish Meegan, DPT, L, ATC
“Physical Therapy for EDS: Including how your posture and thorax/ribcage affects your PT program”
Dr. Clive Bridgham
“Chronic Pain Alternatives – with focus on inflammation and nutrition”
Kevin Muldowney, MSPT
“Physical Therapy Protocol for Ehlers-Danlos Syndrome” (using the new EDS Physical Therapy Book)
Frank Gargano PT, DPT, OCS, CIDN, MCTA, CWT
“Dry Needling for EDS Pain Management: Can muscle performance be improved?”
Dr. Richard Barnum
“EDS and Psychiatric Illness Misdiagnoses”
Dr. Anne Maitland
“Mast Cell Activation Syndrome” Part 1
Dr. Alan Pocinki
“Chronic Pain, Poor Sleep, Depression, and Fatigue in EDS”
Dr. Derek Neilson
“Proving the obvious: Next Steps for the Demystification
of the Ehlers-Danlos Hypermobility Type”
Dr. Peter Rowe
“Managing Orthostatic Intolerance in EDS”
Prof Joel Lamoure, RPh., DD., FASCP
“Medical Psychiatry in Pain Management”
Eric Palmer, Orthotist
“Bracing for EDS”
Dr. John Mitakides
“TMJ, Cervical Instability and EDS”
Dr. Staci Kallish
“Cardiac Manifestations in EDS”
Presenter: Kevin Muldowney, PT Click here for a link to the announcement page Video link is on this page
EDS Pain Management. (Part 1)
Dr. Pradeep Chopra
Presenter: Michael, Healy, DPT Click here for a link to the announcement page Video link is on this page
Dr. Kenneth Goldschneider
Pain Management for EDS
We help those with Ehlers-Danlos find or organize support groups in their local communities. Our free program provides each group with a listing on the Support Group Directory and Map, free webpages, coaching, and more… If there is no group in your area, we will help you survey interest and connect with local EDSers. We also provide Educational recordings by EDS experts. Contact us at info@edsawareness.com for help or to be included in the directory.
Find a support group location by using the interactive map or the look-up menu below.
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Posted on February 10, 2021
Are you caring for a child who is experiences chronic pain? We need your help with this survey that will enable the Pediatric Pain Warrior program to better recognize, support and advocate for these special kids. The Pediatric Pain Warrior Program, a division of the U.S. Pain Foundation, provides help and hope to children […]
Posted on February 1, 2021
Thank you for participating in our EDS Educational webinars and Healthcare Provider programs in 2020. We have had an overwhelming, world-wide response to these programs. We have now Partnered with the University of Wisconsin–Madison ICEP In support of improving patient care, these activities have been planned and implemented by the University of Wisconsin–Madison ICEP and Chronic Pain […]
Posted on January 31, 2021
Purpose of This Survey to better understand people’s needs for travel support services and other services that aim to reduce the burdens of participating in a clinical trial. (It’s important to note that these services are not funded by patients, they’re always funded by Sponsors of clinical trials and provided to patients at no cost). […]
Posted on December 1, 2020
EDS patients may be genetically high-responders to laser photobiomodulation pain treatment. 85% of 45 EDS patients have very good or excellent pain reduction from laser photobiomodulation in our clinic. In one EDS patient, we have been able to reverse incipient gastrocnemius separation from its tendon, which previously required the patient to have surgery. All of […]
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