Bonnie Nasar RDN
“Optimizing nutrition to Decrease Brain Fog, Fatigue, & Pain”
Jeannie Di Bon. MA, PMA-CPT
“How can Pilates help with my EDS Symptoms”
Petra Klinge MD
“Managing Life with Neurological Symptoms and EDS”
Cathy L. Pederson, Ph.D
“Understanding the Relationship between Chronic Illness and Suicide”
Patrick Agnew DPM
“Foot and Ankle Treatments for EDS”
Susan Tran, PhD
“Partnering with Families to Improve Functioning in Youth with EDS”
Paolo A Bolognese, MD
Chiari I Malformation, EDS, and Craniocervical Instability
Lauren Stiles, JD
“Understanding the Relationship Between Ehlers-Danlos Syndrome and Postural Orthostatic Tachycardia Syndrome”
Jordan Tishler, MD
Medical Cannabis – Pain Relief for EDS
Jeannie Di Bon, MA, PMA-CPT
“Strengthen and Control Your Hypermobile Core With Pilates”
John Ferman
Online EDS Physician CME Education
Anne Maitland, MD, PhD
“Mast Cell Activation Disorder”
Joshua Milner, M.D.
“Update on Tryptase Research”
Delia Chiaramonte, MD
“Practical Stress Management: A Mind-Body Approach”
Manu Sood, MD
Katja Kovacic, MD
“Gastrointestinal Motility Disorders and Cyclic Vomiting”
Gisela Chelimsky, MD
“Hypermobile EDS and Gastrointestinal Issues”
Pradeep Chopra, MD
“Management of complex pain in children and adults with EDS”
Pradeep Chopra, MD
“EDS Pain Management – Connecting the DOTS… part 3”
Dr. Ajoy Sarkar
“Ehlers-Danlos Syndrome Hypermobility Type in the UK: Missed or Just Misunderstood?”
Sara Williams, PhD
“Biofeedback: Training your Body to Relax”
Jan Dommerholt, DPT
“Physical Therapy for EDS – Part 2”
Why does it hurt all of the time?
Markus-Frederik Bohn, PHD
“Tenascin X and Ehlers-Danlos Syndrome”
Dr. Marco Castori
“Multidisciplinary Diagnostic and Management Approach to the EDS Patient”
Dan Doherty — YouScript / Genelex Corp.
“Pharmacogenetic Testing to Assess Altered Drug Metabolism”
Diane O’Leary, PhD
“All in Your Head”: The Problem of Psychogenic Diagnosis for Ehlers-Danlos Patients
John Ferman and Deanna Hamm
“World-Wide EDS Survey Results” by EDS Awareness
(2544 respondents from 26 countries)
Karen Foulks, OTR/CHT
Jesse Garris, Silver Ring Splint Co.
“Anatomy and SilverRing™ Splints for Ehlers-Danlos Hands”
Trish Meegan, DPT, L, ATC
“Physical Therapy for EDS: Including how your posture and thorax/ribcage affects your PT program”
Dr. Clive Bridgham
“Chronic Pain Alternatives – with focus on inflammation and nutrition”
Kevin Muldowney, MSPT
“Physical Therapy Protocol for Ehlers-Danlos Syndrome” (using the new EDS Physical Therapy Book)
Frank Gargano PT, DPT, OCS, CIDN, MCTA, CWT
“Dry Needling for EDS Pain Management: Can muscle performance be improved?”
Dr. Richard Barnum
“EDS and Psychiatric Illness Misdiagnoses”
Dr. Anne Maitland
“Mast Cell Activation Syndrome” Part 1
Dr. Alan Pocinki
“Chronic Pain, Poor Sleep, Depression, and Fatigue in EDS”
Dr. Derek Neilson
“Proving the obvious: Next Steps for the Demystification
of the Ehlers-Danlos Hypermobility Type”
Dr. Peter Rowe
“Managing Orthostatic Intolerance in EDS”
Prof Joel Lamoure, RPh., DD., FASCP
“Medical Psychiatry in Pain Management”
Eric Palmer, Orthotist
“Bracing for EDS”
Dr. John Mitakides
“TMJ, Cervical Instability and EDS”
Dr. Staci Kallish
“Cardiac Manifestations in EDS”
Presenter: Kevin Muldowney, PT Click here for a link to the announcement page Video link is on this page
EDS Pain Management. (Part 1)
Dr. Pradeep Chopra
Presenter: Michael, Healy, DPT Click here for a link to the announcement page Video link is on this page
Dr. Kenneth Goldschneider
Pain Management for EDS
We help those with Ehlers-Danlos find or organize support groups in their local communities. Our free program provides each group with a listing on the Support Group Directory and Map, free webpages, coaching, and more… If there is no group in your area, we will help you survey interest and connect with local EDSers. We also provide Educational recordings by EDS experts. Contact us at info@edsawareness.com for help or to be included in the directory.
Find a support group location by using the interactive map or the look-up menu below.
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Posted on November 27, 2018
BY KATHARIN CZINK AND DINA BAIR Maddie Schubert and Dr. Brad Tinkle It’s often written off as anxiety, particularly in girls. But when the symptoms are thoughtfully pieced together, a puzzling and widely unrecognized disorder is revealed. A quick check of her blood pressure is just one step in Maddie Schubert’s extensive daily routine. “This is on after […]
Posted on November 1, 2018
John Ferman, Co-founder of the EDS Awareness a.k.a. Chronic Pain Partners 501(c)(3) non-profit program received the 2018 Andrus Excellence in Advocacy award at the AARP Ohio Volunteer Summit DInner in Columbus Ohio on October 29, 2018. John has been a full time volunteer since he retired in 2013 and has: Helped to create over 115 local […]
Posted on August 27, 2018
By: Hillary Floren Posted: Aug 14, 2018 06:48 AM MDT EL PASO, Texas – Ryan Dolliver is like most 3-year-old boys. He loves to play with his sister, laugh, destroy things and he can be mischievous. Ryan has a great smile, and when he laughs it is infectious. He has no clue he is living with […]
Posted on August 16, 2018
Introduced at the EDS Conference in Las Vegas About this program. We have had over 800 participants since we introduced the program! The Ehlers-Danlos Syndromes Physician CME Education Program is the first online Ehlers-Danlos Syndromes course accredited to provide continuing education credits. This free program will cover the fundamental principles […]
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