Tayler Goectau, AuthorClinical Research CoordinatorDisability Advocate@distaaybledJuly , 2026
On March 29, 2026, the Ehlers-Danlos Syndrome community lost one of our most beloved specialists and longtime champions of EDS, UK rheumatologist Dr. Rodney Grahame. He will be remembered as one of the earliest and most vocal advocates for Hypermobility Syndromes and EDS awareness. I was first tipped off to the world of hypermobility at […]
Transcript: You’re listening to the EDS Unplugged podcast, brought to you by Chronic Pain Partners, a non-profit supporting the Ehlers-Danlos Syndrome community. (Quiet music in the background) We’re joined today by Kate Schultz, part of the media team at Chronic Pain Partners. Kate not only contributes her skills to their advocacy, but also lives […]
September is recognized internationally as Pain Awareness Month. (Look for hashtags #PainAwarenessMonth and #ThisIsPain on social media). Most types of Ehlers-Danlos Syndrome and Hypermobility Spectrum Disorder unfortunately cause varying amounts of pain for most patients, so Chronic Pain Partners/EDS Awareness is joining the chorus to raise awareness. It’s in our name, after all!
Karina Sturm: Your tagline—“Primary care without the gaslighting”—really stood out to me. It’s a bold promise. What inspired it, and how does it shape your practice? Danielle Lazarowitz: I started Chronius Health as a patient myself. While I don’t have Ehlers-Danlos syndrome, I do have POTS—a common comorbidity—as well as autoimmune diseases like Sjögren’s and […]
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Popular People With Ehlers-Danlos Syndrome
In memory of John Ferman, Founder and President of Chronic Pain Partners / EDS Awareness
EDS Physical Therapy Book & Free Webinar: “Living Life to the Fullest with Ehlers-Danlos Syndrome”