Archive for the ‘Therapies’ Category

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Know Your Love Language? Learn to Speak it Well Despite Chronic Illness

Posted on February 5, 2024

Did you know each of us shows affection and love in different ways? No matter who you might be cuddled up to this Valentine’s Day, it’s important to understand that a successful intimate relationship is a constantly evolving process of tuning in, adapting, and forging deeper connections, compassion, and caring for one another. Becoming aware […]

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Medical Gaslighting as a Source of Clinician-Associated Trauma

Posted on January 29, 2024

Content warning: This article discusses medical gaslighting and real-life examples of clinician-associated trauma. Please take care of yourself as you see fit.  As previously reported, clinician-associated trauma (CAT) is a new term used to describe the trauma created by repeated, negative clinical interactions. It was coined as a result of the study reported in “Clinician-associated […]

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It’s Worth a Shot: Prolotherapy, PRP & Regenerative Therapy – A Medical Overview for Curious EDS Patients

Posted on November 8, 2023

This article was collected by the EDS Awareness volunteer media team with information and medical review provided by David Harris, MD, from the Center for Healing and Regenerative Medicine (CHARM) in Austin, Texas. www.charmaustin.com. We are grateful to all the care providers who work to help EDS patients access more information and achieve a better […]

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10 clever comebacks for handling offensive comments about hEDS

Posted on August 23, 2023

Living with a rare disease like hEDS (Hypermobile Ehlers-Danlos Syndrome) can lead to misunderstandings and sometimes offensive comments from people who don’t get it. However, handling these remarks with wit and wisdom can make the situation easier and lighten the load. Here are ten clever comebacks for handling offensive comments about hEDS: “You’re just lazy.” […]

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Toxic Positivity: Recognizing It and Preserving Your Spoons

Posted on August 21, 2023

When it comes to health crises, only a few diagnoses can be as daunting as Ehlers-Danlos syndrome (EDS). But you know what they say, “When life gives you lemons, make lemonade” – or, in this case, when life gives you chronic pain and mobility issues, make jokes (if you can)! Before we dive into the […]

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Filmmaker Suri Ellerton, Her EDS Journey & New Film Highlighting The Challenges Of Disabled Parents

Posted on June 30, 2023

Suri Ellerton is a filmmaker, has three children, and lives with Ehlers-Danlos Syndrome and various comorbid conditions. In this interview with Chronic Pain Partners’ Karina Sturm, Ellerton shares her EDS journey, what it means to be a disabled parent, and how her own experiences relate to her latest film project, “The Game.”  Sturm: Hi, Suri! […]

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New Cervical Spine Instability Publication: The Authors Explain Their Findings

Posted on March 27, 2023

For Chronic Pain Partners Newsletter, writer Christie Cox speaks with two pioneers in the Ehlers-Danlos community Leslie Russek and Susan Chalela, about their recent publication on upper cervical instability (UCI). Leslie Russek is a DPT, PhD, and Professor Emeritus of Physical Therapy at Clarkson University and an Orthopedic Certified Specialist Physical Therapist with over 30 […]

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PT Elan Schneider on Neuroplasticity and New Approaches to Treat Chronic Pain

Posted on February 28, 2023

Widespread chronic pain is one of the main symptoms for people with any type of Ehlers-Danlos syndrome and can be debilitating. At the same time, many common treatment options, particularly with pain medication, lead to side effects. But what if we could reduce our pain without any negative consequences? Chronic Pain Partners’ Editor-in-Chief Karina Sturm […]

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