Posts Tagged ‘hypermobility diagnosis’
Posted on March 27, 2024
“The 2017 [hypermobile Ehlers-Danlos Syndrome diagnostic] criteria were introduced to improve diagnostic specificity but have faced criticism for being too stringent and failing to adequately capture the multisystemic involvement of hEDS,” states a paper titled “Looking back and beyond the 2017 diagnostic criteria for hypermobile Ehlers-Danlos syndrome: A retrospective cross-sectional study from an Italian reference […]
Posted on June 22, 2023
Many of us can often feel like we are ‘professional patients’ managing our care as a seemingly never-ending full-time job of its own. But for a moment, try picturing yourself as a first-year medical student. What tactics can you imagine you might need to learn to keep the volumes of scientific and medical data organized […]
Posted on May 13, 2023
Over the last years, more and more famous Hollywood stars have come out with having been diagnosed with Ehlers-Danlos syndrome, sharing their journey on social media and with the press to raise awareness. For EDS Awareness Month, Chronic Pain Partners’ Karina Sturm put together a list with popular fellow zebras, including Billie Eilish, Jameela Jamil, […]
Posted on December 8, 2021
When somebody raises spoons, what do you think first? You might contemplate the piece of silverware. One that is utilized to eat things like soup or ice cream. Except if you are somebody with an ongoing chronic illness, then, at that point, you may rather think about the Spoon Theory. Until someone doesn’t properly know […]
Posted on November 29, 2021
Vascular Ehlers-Danlos condition is an inherited connective tissue problem that is brought about by deficiencies in a protein called collagen. It is viewed as the most extreme type of Ehlers-Danlos disorder (EDS). Common symptoms incorporate thin, transparent skin; bruising; specified facial appearance; and fragile arteries, muscles, and inside organs. Vascular EDS is generally caused by […]
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