Posts Tagged ‘Coping’

Wrap Yourself in a Blanket of Love: How to Foster Self-Compassion

Posted on January 23, 2023

Self-compassion (and self-care) are sometimes misunderstood as selfish, self-cherishing, or self-indulgent, but this couldn’t be further from the truth, especially when you live with chronic illness or chronic pain such as Ehlers-Danlos syndrome (EDS). Self-compassion is the act of offering ourselves the same care and compassion we would give to others. It is simply the […]

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EDS Holiday Hacks: Twelve Tips for Setting Yourself Up for Success by Realigning Your Expectations

Posted on November 21, 2022

This time of year, it can be hard for anyone, especially those with a chronic illness like Ehlers-Danlos syndrome (EDS), to gear up for the holiday madness. The pressure to shop, cook, wine, dine and be fine is too much! You might not be able to travel or gather with loved ones for various reasons, […]

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“No Matter What’s Going on With My Brain There’s Always Music in My Head.”

Posted on January 18, 2013

The Bellmawr resident writes edgy, melodic rock songs with titles like “Palinopsia,” the name for an optical disturbance that’s among the debilitating symptoms of Ehlers-Danlos Syndrome.About four years ago, Fatale was diagnosed with the connective-tissue disease, which creates havoc in the joints, spine, and elsewhere. After surgeries left her barely able to move her head, […]

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Explaining Disability​-Part of What Makes Us Disabled

Posted on January 17, 2013

Author: Jonathan  RodisPresident-Massachusetts  Chapter of the National Marfan FoundationHead-EDS Massachusetts  and New England Support Group “I wanted to share with you something I wrote to  help everyone understand what it is like to be disabled, what it is like to  have an invisible disability, what to do if you find yourself trying to explain  your […]

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