Archive for the ‘Music’ Category

Haley Rises Above Ehlers-Danlos Syndrome, Meets Tim Tebow

Posted on August 3, 2014

Haley’s wish will come true as she spends personal one-on-one time with her role model, Tim Tebow! Tim Tebow Foundation’s “Wish 15” program (W15H) reaches out to kids with life-threatening illnesses whose wish is to meet Tim Tebow.  As we kick off our W15H season, we are excited to partner with the Fairmont Scottsdale Princess Resort for a […]

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A Musical Benefit for Chloe who has Ehlers Danlos – Hypermobility Syndrome

Posted on July 8, 2014

Chloe is determined that EDS/HMS won’t define her life.  She continues to pursue her music, and debuted her first album this year, alongside fellow musician Steve Jones! Chloe’s community will host a musical extravaganza benefit to help with her Ehlers Danlos/Hypermobility Syndrome. By Tara Cox. “A WEST Dorset UK community is rallying round to help chronically ill mum […]

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Music Therapy Helps 11-year-old Battle Ehlers-Danlos and Chiari Malformation

Posted on July 3, 2014

The OPUS hospital music program helps James cope with Ehlers-Danlos pain. In addition, a recent study showed 29% lower anxiety levels and a lower average breathing rate in patients who were played music during their operations. Click here  to watch videos demonstrating how the OPUS music therapy program is helping patients. By Dan Russell,  Nottingham Post. “MUSIC is helping an 11-year-old boy […]

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