Archive for the ‘Exercise’ Category

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EDSed Episode 2: Dr. Lilian Holm on Physical Therapy & EDS

Posted on January 27, 2023

EDSed is our new series of full-length interviews with international EDS experts. These educational interview series with journalistic (news) quality is complementary to our webinar recordings and another free resource we provide for our community. All films are produced by journalist and We Are Visible filmmaker Karina Sturm and sponsored by Chronic Pain Partners. You can […]

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Para climber Anoushé Husain on “believing in the impossible”, her cancer diagnosis, EDS journey, and the sports she loves

Posted on November 29, 2022

For our December newsletter, journalist Karina Sturm interviewed Anoushé Husain. Husain is a civil servant and paraclimber who broke the Guinness Book of World Records for climbing the greatest distance on a climbing wall in one hour, as a female climber with only one hand. She was born with half an arm, has beaten cancer, […]

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Jeannie Di Bon’s Zebra Club

Posted on January 17, 2022

Program review by Karina Sturm “Wow,” was the first word that came to my mind when I started to exercise with Jeannie Di Bon’s new program: The Zebra Club. My feelings regarding Jeannie’s new app were very similar to when I read Diana Jovin’s book Disjointed, which I recently reviewed as well. However, I wouldn’t be much of […]

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Hypermobility Happy Hour Podcast with Dr. Linda Bluestein

Posted on July 27, 2019

A doctor and a lawyer walk into a podcast….   Meet Dr. Linda Bluestein and attorney Kerry Gabrielson, two professional women who managed to successfully complete many years of education despite having a painful genetic condition affecting their connective tissue that would need lifelong management.   Listen along to their podcast as they tackle the […]

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Ehlers-Danlos and Chiari at the Olympics in RIO

Posted on August 29, 2016

By RDR Staff  . . .  Allysa is known for her competitiveness, determination and breaking barriers mindset. In 2015, she became the paratriathlete world champion, now she will be heading to Rio for the 2016 Paralympics to try and further her success as a paratriathlete. . . . . Diagnosis   In 2010, Allysa was diagnosed […]

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Ten year old EDSer wins at swimming

Posted on June 29, 2016

By Ken Barhorst. Ten-year-old Jarrett Payne of Sidney has so far had an amazing career in swimming. And it’s been against all odds. The son of Jeff and Wendy Payne, Jarrett was diagnosed at a very young age with Ehlers-Danlos Syndrome. As explained in medical terms, Ehlers-Danlos Syndrome is a group of inherited disorders that […]

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Free Webinar: “Physical Therapy Protocol for Ehlers-Danlos Syndrome” – Recording Available

Posted on December 2, 2015

Watch the recording of this free webinar.
When you purchase the book through the following link, $1.00 will support EDS Awareness programs.

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Free Webinar: “An Integrative Approach to Managing EDS” – Recording Available

Posted on September 29, 2015

Watch the recording of this free webinar. – TOPIC: “Managing Medical Zebras – An integrative approach to managing chronic pain, fatigue, and digestive issues associated with connective tissue disorders”. PRESENTER: Heather Purdin, PT Click here for a link to this recording Click here for the slides used in this presentation    INVITE YOUR FRIENDS and […]

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