A wake-up call to the medical community sent directly with data from commercial health insurers A new study focused on the prevalence of multisystem diagnoses among hypermobile Ehlers-Danlos Syndrome (hEDS) patients sheds light on a critical aspect of this complex condition: the widespread systemic impact it has on the body and the connection to other […]
What Chronic Pain Partners has done for the community lately.
Thank you for participating in our EDS Educational webinars and Healthcare Provider programs in 2020. We have had an overwhelming, world-wide response to these programs. We have now Partnered with the University of Wisconsin–Madison ICEP In support of improving patient care, these activities have been planned and implemented by the University of Wisconsin–Madison ICEP and Chronic Pain […]
New Feature-Length Ehlers-Danlos Documentary Fellow Zebras, medical professionals, and everyone living with an invisible condition, We want to invite you to join the On Line screening of the film ‘We Are Visible’, a feature-length documentary about people living with Ehlers-Danlos syndrome Click here for the link to the […]
Now that most of us are asked to stay in our home this is a perfect time to increase our knowledge about Ehlers Danlos Syndromes. Learn more through these Free educational video programs about Ehlers-Danlos Syndromes presented by over 60 experts covering 50 EDS related topics. Ehlers Danlos Syndromes is a genetic condition that is NOT “Rare” but “Rarely […]
Dr. Clair Francomano has recently been added as a new EDS Physician training course to the popular Physician Training program. Click here to register Overview of Diagnosis and Management of Ehlers-Danlos Syndromes Recognizing and treating a group of complex multi-systemic connective tissue disorders: Ehlers-Danlos syndromes and Hypermobility Spectrum Disorders (HSD) This course explains the varying presentations, […]
John Ferman President of Chronic Pain Partners 501 (c)(3) a.k.a. EDS Awareness was recently interviewed during a Hypermobility Happy Hour Podcast. John discusses the many EDS educational events and programs that the EDS Awareness team has conducted since 2011 and future plans for EDS patient, Physician CME and Nursing CEU Educational programs. Click here for […]