Support Groups
A Local EDS Support Group is a great way to share information and develop “face-to-face” relationships with EDSers having similar experiences.
Please check out the HOME page to view our MAP and list of active Local Support Groups
Watch this free video describing how we can help you start a group and spread local awareness.
We can show you:
- how to join or start your group
- how to find new members, plan & organize meetings, activities, local awareness, etc.
- how to create your FREE website pages
(Simple and user-friendly! If you can use a Word processor, you have the skills already!)
Through local groups and this website community, we will:
- Provide FREE website pages for your group to post meetings, activities, articles, helpful hints, local resources, etc.
- Help EDSers locate valuable information, continue to learn, and create resources to share with their EDS peers
- Conduct periodic EDS Support Group Leaders meetings to share information and ideas.
- Enable you to share your experiences and what you’ve learned about managing EDS, and recommend links to your favorite sites, research papers, books, products, articles, etc.
- Conduct twice a month FREE Educational programs related to connective tissue disorders.
- Encourage and enable EDSers to inform medical practitioners and the public about EDS