WEBINARS
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Webinar Program
These live online learning sessions use the phone/web method on Go To Webinar
The session lasts approximately 1.5 – 2 hours. Typically, the presenter speaks for approx. 45 minutes and the balance of the time is available for Q & A. We record these sessions and post them on our site for those who can not attend live.
FAQs (Frequently Asked Questions)
We understand your need for privacy. We are very concerned about that as well.
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Will my face show if I ask a question live?
During the presentations you will only see the presenter’s slides (not the attendees or even the presenter’s face). There will be no webcam. You can ask questions by typing into the “Q & A” box.
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Will my voice or household noises be heard by other attendees?
All attendees are muted … you cannot hear any attendees voices or background noises. There is a public or private “Chat” window available to communicate with the session leaders or other attendees.
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Will I be able to ask a question and will others know my name at that time?
You can ask questions by typing into the “Q & A” box. The presenter reads the question and provides an answer verbally. Typically, no names of those asking questions are announced. Occasionally, a first name only may be used.
Upcoming Webinar Schedule
Support EDS Awareness
Upcoming and Previous Webinar Speakers
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Ross A. Hauser, MD
10 Low-cost ways to improve symptoms of peripheral joint and spinal instabilities from hEDS, including brain fatigue, pain, POTS, MCAS and more. -
Bonnie Nasar RDN
“How to Build an EDS Plate: Feel Better with Food”? -
Presenter: Jeannie Di Bon MA PMA-CPT
Title: “A Pain in the Hypermobile Neck” -
Presenter: Dr. Eli Penn
Title: hEDS and the Gastrointestinal Tract -
Pradeep Chopra, MD
“Management of Long Covid with EDS” -
Eloise Stager, LMT, CST-D
“The Role of CranioSacral Therapy in
Pain Management and ANS Regulation” -
Anne Maitland, M.D., Ph.D
“Beyond allergies- mast cell activation diseases!” -
Clair Francomano MD
“EDS and Hypermobility Spectrum Disorders – Overview of Diagnosis and Management” -
Sonny Mullen
“A Guide to Medical Fundraising” -
Karina Sturm
New Feature-Length Ehlers-Danlos Documentary
“We Are Visible” -
Podcast Interview with Karina Strum
‘We are Visible’ Podcast Interview -
Andrea Julian
“Starting and Maintaining a Successful Support Group” -
Maria Dastur, M.B.A.
Organizing and Managing your Facebook and Social Media -
Alan G. Pocinki M.D.
Sleep Disorders in EDS -
Ross A. Hauser, MD
Consequences and Resolution of Joint Instabilities in H- EDS -
Bonnie Nasar RDN
“Optimizing nutrition to Decrease Brain Fog, Fatigue, & Pain” -
Jeannie Di Bon. MA, PMA-CPT
“How can Pilates help with my EDS Symptoms” -
Petra Klinge MD
“Managing Life with Neurological Symptoms and EDS” -
Cathy L. Pederson, Ph.D
“Understanding the Relationship between Chronic Illness and Suicide” -
Patrick Agnew DPM
“Foot and Ankle Treatments for EDS” -
Susan Tran, PhD
“Partnering with Families to Improve Functioning in Youth with EDS” -
Paolo A Bolognese, MD
Chiari I Malformation, EDS, and Craniocervical Instability -
Lauren Stiles, JD
“Understanding the Relationship Between Ehlers-Danlos Syndrome and Postural Orthostatic Tachycardia Syndrome” -
Jordan Tishler, MD
Medical Cannabis – Pain Relief for EDS -
Jeannie Di Bon, MA, PMA-CPT
“Strengthen and Control Your Hypermobile Core With Pilates” -
John Ferman
Online EDS Physician CME Education -
Anne Maitland, MD, PhD
“Mast Cell Activation Disorder” -
Joshua Milner, M.D.
“Update on Tryptase Research” -
Delia Chiaramonte, MD
“Practical Stress Management: A Mind-Body Approach” -
Manu Sood, MD
Katja Kovacic, MD
“Gastrointestinal Motility Disorders and Cyclic Vomiting” -
Gisela Chelimsky, MD
“Hypermobile EDS and Gastrointestinal Issues” -
Pradeep Chopra, MD
“Management of complex pain in children and adults with EDS” -
Pradeep Chopra, MD
“EDS Pain Management – Connecting the DOTS… part 3” -
Dr. Ajoy Sarkar
“Ehlers-Danlos Syndrome Hypermobility Type in the UK: Missed or Just Misunderstood?” -
Sara Williams, PhD
“Biofeedback: Training your Body to Relax” -
Jan Dommerholt, DPT
“Physical Therapy for EDS – Part 2”
Why does it hurt all of the time? -
Markus-Frederik Bohn, PHD
“Tenascin X and Ehlers-Danlos Syndrome” -
Dr. Marco Castori
“Multidisciplinary Diagnostic and Management Approach to the EDS Patient”
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Dan Doherty — YouScript / Genelex Corp.
“Pharmacogenetic Testing to Assess Altered Drug Metabolism”
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Diane O’Leary, PhD
“All in Your Head”: The Problem of Psychogenic Diagnosis for Ehlers-Danlos Patients
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John Ferman and Deanna Hamm
“World-Wide EDS Survey Results” by EDS Awareness
(2544 respondents from 26 countries) -
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Karen Foulks, OTR/CHT
Jesse Garris, Silver Ring Splint Co.“Anatomy and SilverRing™ Splints for Ehlers-Danlos Hands”
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Trish Meegan, DPT, L, ATC
“Physical Therapy for EDS: Including how your posture and thorax/ribcage affects your PT program”
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Dr. Clive Bridgham
“Chronic Pain Alternatives – with focus on inflammation and nutrition”
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Kevin Muldowney, MSPT
“Physical Therapy Protocol for Ehlers-Danlos Syndrome” (using the new EDS Physical Therapy Book)
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Frank Gargano PT, DPT, OCS, CIDN, MCTA, CWT
“Dry Needling for EDS Pain Management: Can muscle performance be improved?”
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Dr. Richard Barnum
“EDS and Psychiatric Illness Misdiagnoses” -
Dr. Anne Maitland
“Mast Cell Activation Syndrome” Part 1 -
Dr. Alan Pocinki
“Chronic Pain, Poor Sleep, Depression, and Fatigue in EDS” -
Dr. Derek Neilson
“Proving the obvious: Next Steps for the Demystification
of the Ehlers-Danlos Hypermobility Type” -
Dr. Peter Rowe
“Managing Orthostatic Intolerance in EDS” -
Prof Joel Lamoure, RPh., DD., FASCP
“Medical Psychiatry in Pain Management” -
Eric Palmer, Orthotist
“Bracing for EDS” -
Dr. John Mitakides
“TMJ, Cervical Instability and EDS” -
Dr. Staci Kallish
“Cardiac Manifestations in EDS” -
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Presenter: Kevin Muldowney, PT Click here for a link to the announcement page Video link is on this page
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Presenter: Michael, Healy, DPT Click here for a link to the announcement page Video link is on this page
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Dr. Kenneth Goldschneider
Pain Management for EDS
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