FAQ  (Frequently Asked Questions) —  EDS Support Group Web masters

  1. Why do we recommend only one web master per EDS Support Group?
    1. We want to have consistency in the way the information for your support group is posted on your pages.
    2. We need some accountability for the information that is posted.
    3. You will receive detailed instructions about how to setup and manage your web pages.
    4. Please do not share your username and password with others.
    5. We will set up another username for another member at your request.
  2. Why are there pages on my site for EDSers to “Join” my support group or “Contact” me?
    1. The email address that you provided is set up for you as a “webmaster.” It is the primary method for new members to communicate with you and for you to communicate with your members, after they join your support group.
    2. You can email your members with the links for upcoming meeting announcements, webinars or new postings and they can respond with a reply to your email address.
    3. You can change your email address or password in your “Profile” page
    4. Please do not delete the code in [brackets]. This code creates the form that the user fills out to contact you.
  3. How many pages can I set up for my group?
    1. We encourage web masters to initially use the pages provided for basic information about their support group.
    2. You are free to use these pages to communicate, as long as you follow the criteria in the “Disclaimer” on our edsawareness.com site. Try to keep the content: educational, uplifting, encouraging and helpful to all EDSers.
    3. You can request additional pages for organizing articles, etc. by emailing us at info@edsawareness.com
  4. Why do I see Chronicpainpartners.com when I log in to my site?               
    1. There are plans to have a family of sites to cover other health conditions. This is the top level “family” name.    esdawareness.com is one of the children in the family.
  5. Can I put links, pictures and videos on our EDS support group web pages?
    1. Yes, you can put links, pictures, blogs and videos on your support group web pages.
    2. We suggest that you select pictures, articles, and videos that relate to your local area.
    3. You should avoid videos that last more than 30 minutes. Our experience indicates that typical users will not listen to a video that long.
    4. If you are posting a blog or article that is already on the web, you will need to create a link back to the original article to give the author credit. If you need help with that, let us know.
    5. You are encouraged to add links to your group’s Facebook and other social media sites.
  6. Who do I contact if I need help?
    1. Help is available by emailing info@edsawareness.com.

 We thank you for your efforts to improve the local EDS Awareness in your community.