We Are Visible Too, Episode 2: Caitlin O’Donnell

We Are Visible (Too) is an ongoing mini-film series portraying people with EDS all across the globe. In this mini-documentary series, we will continue on the We Are Visible  – a feature-length film about people with EDS – journey and add a variety of 5 – 10 minute videos of other people across the country that live with Ehlers-Danlos syndrome to our Chronic Pain Partners Production’ Vimeo channel. All films are produced by journalist and We Are Visible filmmaker Karina Sturm and sponsored by Chronic Pain Partners

In Episode 2, Caitlin O’Donnell shares her EDS story. Caitlin is a Occupational Therapist with Ehlers-Danlos syndrome, POTS and many other comorbid conditions from Santa Ana, California. In this video, Caitlin talks about her journey to finally getting diagnosed in 2021 and how her diagnosis explained her ancestors mysterious illness, including her mom’s who passed away shortly before Caitlin’s EDS diagnosis. 

Watch Episode 2 with Caitlin O’Donnell: 


Video Description: At the beginning of the video, a text appears: Chronic Pain Partners presents We Are Visible (Too): Caitlin’s Story. Then a short video sequence with a wider shot and then close-ups of Caitlin appear: The first shot shows an orange tree in the front with Caitlin’s face in the background. Then we see Caitlin leaning against a wooden shed behind the orange tree. Caitlin is a women with long red hair bound to a ponytail. She wears a blue shirt and looks somewhat serious. In the next shot, Caitlin sits on a chair in her backyard with a huge orange tree in the background with green leaves all over. The sun is shining. Caitlin has long red hair that flow over her shoulders on both sides. Text: Caitlin O’Donnell Santa Ana, CA. Another video sequence shows Caitlin leaning against the shed again and later lying on the ground in green grass with her hair spread widely across the grass. At the end, a black screen appears with text:Learn more about Ehlers-Danlos Syndrome: www.chronicpainpartners.com

We Are Visible (Too) Showcase with all episodes: 

3 Responses to “We Are Visible Too, Episode 2: Caitlin O’Donnell”

  1. Terri says:

    You are awesome and we need you out there!

  2. Terri Russell says:

    God Bless you and stay in the game! We need you!

  3. virginia says:

    it was very informative. My daughter has hEDS and even relatives don’t believe her. They say you look fine, but they do not see her when her pain level is so high, she can’t even get out of bed. She is 34 and waited 23 years to get the right diagnosis.

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