Archive for the ‘Managing Ehlers-Danlos’ Category

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The GoodHope Ehlers Danlos Syndrome Clinic: Toronto General Hospital

Posted on September 6, 2021

Click here for link to read the complete article The GoodHope Ehlers Danlos Syndrome Clinic: development and implementation of the first interdisciplinary program for multi-system issues in connective tissue disorders at the Toronto General Hospital Nimish Mittal,  Daniel Santa Mina,  Hance Clarke  Orphanet Journal of Rare Diseases volume 16, Article number: 357 (2021) Cite this article Abstract Ehlers-Danlos Syndrome (EDS) are […]

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The Truth is that I will Always be Tired. It’s Part of my EDS.

Posted on March 20, 2018

Tiffany wakes up exhausted with her Ehlers-Danlos Syndrome issues. Life with Ehlers Danlos: Surviving Exhaustion While Still “Adulting” By Tiffany Early I’m tired. That’s not exactly a news flash. I’m forever and always tired. One thing that I have in common with the majority of the chronic illness and rare disease community is my chronic […]

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What Does this Logo Mean?

Posted on May 4, 2017

Have you ever looked at logos and considered that they may have a hidden meaning or inspiration behind their creation? Our favorite brands may hold hidden messages behind the fancy artwork. To uncover the meaning embedded in the EDS Awareness logo, we asked John Ferman, the co-founder of EDS Awareness (Chronic Pain Partners). Introduction John […]

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“Every day I wake up is a blessing” … despite Ehlers-Danlos Syndrome

Posted on July 4, 2016

By Richard Salit, Journal Staff Writer. Ellen Lenox Smith’s recurring injuries and ailments were as baffling as they were disabling. Some doctors thought they might even be psychological. Why was she always in such pain? Why did she have difficulty swallowing? Why did she keep tearing cartilage and ligaments in her knees and shoulders? And […]

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Free Webinar: “Physical Therapy Protocol for Ehlers-Danlos Syndrome” – Recording Available

Posted on December 2, 2015

Watch the recording of this free webinar.
When you purchase the book through the following link, $1.00 will support EDS Awareness programs.

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Free Webinar: “New and Emerging Manual Therapy Approaches for EDS” – Recording Available

Posted on November 23, 2015

Watch the recording of this free webinar. Kelly Clancy, OT and manual therapist, addresses the fascial system and postural components that contribute to pain and dysfunction.

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