Archive for the ‘Managing Ehlers-Danlos’ Category
Posted on March 20, 2018
Tiffany wakes up exhausted with her Ehlers-Danlos Syndrome issues. Life with Ehlers Danlos: Surviving Exhaustion While Still “Adulting” By Tiffany Early I’m tired. That’s not exactly a news flash. I’m forever and always tired. One thing that I have in common with the majority of the chronic illness and rare disease community is my chronic […]
Posted on May 4, 2017
Have you ever looked at logos and considered that they may have a hidden meaning or inspiration behind their creation? Our favorite brands may hold hidden messages behind the fancy artwork. To uncover the meaning embedded in the EDS Awareness logo, we asked John Ferman, the co-founder of EDS Awareness (Chronic Pain Partners). Introduction John […]
Posted on February 18, 2017
Q & A about new Ehlers-Danlos Classification
Posted on July 4, 2016
By Richard Salit, Journal Staff Writer. Ellen Lenox Smith’s recurring injuries and ailments were as baffling as they were disabling. Some doctors thought they might even be psychological. Why was she always in such pain? Why did she have difficulty swallowing? Why did she keep tearing cartilage and ligaments in her knees and shoulders? And […]
Posted on March 28, 2016
Dr. Neil Schechter presented “Chronic Pain in Children and Adolescents with EDS”.
Posted on December 2, 2015
Watch the recording of this free webinar.
When you purchase the book through the following link, $1.00 will support EDS Awareness programs.
Posted on November 23, 2015
Watch the recording of this free webinar. Kelly Clancy, OT and manual therapist, addresses the fascial system and postural components that contribute to pain and dysfunction.
Posted on November 20, 2015
Once you are diagnosed with Ehlers-Danlos Syndrome, it can be an overwhelming process to find supportive medical care and learn ways to live life more efficiently and safely. Get a head start by gleaning some valuable pointers from the experiences of veteran EDSers like Ellen. The information in this article should not be considered as professional […]