Managing Ehlers-Danlos

holiday candles with joy knocked over

Navigating the Holidays with EDS

Yes, it’s time to get ready for travel, dietary changes, and potential overwhelm. But we’re here to help you keep the peace!The holiday season can bring joy, but it also tends to come with stress, pressure, and endless obligations that can wear us down. For those of us with Ehlers-Danlos Syndrome (EDS), this time of […]

compounding bowl at pharmacy

Low-Dose Naltrexone: Possible Pain Relief in a Small Package

The following is not intended to be medical advice. If you have questions about low-dose naltrexone, please speak to your doctor.   The drug Narcan, or naloxone, has been in the news for the last five to ten years due to its effective use as an opioid-reversal agent. If someone is overdosing, a spray of […]

patient on virtual appointment with doctor or nurse

Part Six: Dear Doctor: How To Avoid Causing Clinician-Associated Trauma

This is the sixth and last article in the clinician-associated trauma series. Soon, all six articles will be released in a downloadable e-book available at Chronic Pain Partners’ website. If you have any questions or comments, feel free to leave a comment below or email the author of the series at kate [at] chronicpainpartners [dot] […]

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Part 5: Healing the Hurt: How To Handle Clinician-Associated Trauma

Over the past several months, Chronic Pain Partners has published a series of articles about clinician-associated trauma based on the paper “Clinician-associated traumatization from difficult medical encounters: Results from a qualitative interview study on the Ehlers-Danlos Syndromes” by Colin M.E. Halverson, Heather L. Penwell, and Clair A. Francomano. The last four Chronic Pain Partners articles […]

A book cover of Symptomatic with an illustration of a person sitting in between pieces of a puzzle

Book Review of New EDS Book Symptomatic 

The Ehlers-Danlos Syndromes (EDS) are complex and multifaceted conditions that have, for decades, challenged both patients and medical professionals alike. Over recent years, several books have been published on EDS. For instance, Dianna Jovin’s Disjointed and Christie Cox’s Holding It All Together, among many others. Recently, Symptomatic joined the list. Edited by EDS experts Dr. […]

storm clouds coming

Got the Barometric Blues?

Strategies For Managing the Impact of Changing Weather Patterns Tomorrow’s weather forecast for your joints? Cloudy with a chance of pain. There’s a long-held scientific belief that worsening weather can increase aches in your joints, according to the Cleveland Clinic, especially for conditions like arthritis and fibromyalgia. We don’t really fully understand why, but for […]

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Spoonie & Chronic Illness Podcasts

Our Chronic Pain Partners’ Team is collecting their favorite books, podcasts and films on EDS and its comorbid condition in a series of listicles you will find on our website over the next months. We have shared our favorite books in our special newsletter issue in May for EDS Awareness Month, as well as EDS […]

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Podcasts on Ehlers-Danlos Syndrome

With growing awareness about the Ehlers-Danlos syndromes, varying resources in different types of media developed over the last years. Our Chronic Pain Partners’ Team is collecting their favorite books, podcasts and films on EDS and its comorbid condition in a series of listicles you will find on our website over the next months. We have […]