Archive for the ‘Managing Ehlers-Danlos’ Category

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Got the Barometric Blues?

Posted on June 5, 2024

Strategies For Managing the Impact of Changing Weather Patterns Tomorrow’s weather forecast for your joints? Cloudy with a chance of pain. There’s a long-held scientific belief that worsening weather can increase aches in your joints, according to the Cleveland Clinic, especially for conditions like arthritis and fibromyalgia. We don’t really fully understand why, but for […]

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Spoonie & Chronic Illness Podcasts

Posted on June 5, 2024

Our Chronic Pain Partners’ Team is collecting their favorite books, podcasts and films on EDS and its comorbid condition in a series of listicles you will find on our website over the next months. We have shared our favorite books in our special newsletter issue in May for EDS Awareness Month, as well as EDS […]

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Podcasts on Ehlers-Danlos Syndrome

Posted on June 3, 2024

With growing awareness about the Ehlers-Danlos syndromes, varying resources in different types of media developed over the last years. Our Chronic Pain Partners’ Team is collecting their favorite books, podcasts and films on EDS and its comorbid condition in a series of listicles you will find on our website over the next months. We have […]

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Decoding Medical Deductions: A Chronic Illness Patient’s Guide to Navigating Healthcare-Related Expenses and Taxes

Posted on March 5, 2024

“Decoding Medical Deductions” is an invaluable resource for individuals managing chronic illnesses and navigating the complex landscape of medical expenses and taxes in the United States. This comprehensive guide provides ten top strategies and resources to effectively manage medical expenses, optimize costs, and prepare for tax filing. The ebook covers various topics, including deduction eligibility, […]

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Know Your Love Language? Learn to Speak it Well Despite Chronic Illness

Posted on February 5, 2024

Did you know each of us shows affection and love in different ways? No matter who you might be cuddled up to this Valentine’s Day, it’s important to understand that a successful intimate relationship is a constantly evolving process of tuning in, adapting, and forging deeper connections, compassion, and caring for one another. Becoming aware […]

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It’s Worth a Shot: Prolotherapy, PRP & Regenerative Therapy – A Medical Overview for Curious EDS Patients

Posted on November 8, 2023

This article was collected by the EDS Awareness volunteer media team with information and medical review provided by David Harris, MD, from the Center for Healing and Regenerative Medicine (CHARM) in Austin, Texas. www.charmaustin.com. We are grateful to all the care providers who work to help EDS patients access more information and achieve a better […]

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Part Two: HEDS Researchers Explain Clinician-Associated Trauma

Posted on August 31, 2023

This is the second article in our series covering psychological medical trauma. The first article provided an introduction to what concepts of psychological medical trauma exist and the newly-created concept of clinician-associated trauma. It also introduced a study regarding hEDS patients and clinician-associated trauma. This article will look deeper into the details of this study […]

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Gut Check: Gluten Intolerance, Celiac Disease, or Mast Cell Reaction?

Posted on August 22, 2023

It is challenging to find the source of our gut problems, so many of us have related to hypermobility. The volunteer media team at Chronic Pain Partners tried to tackle the basics so our readers could have a brief introduction to the variances and testing available for different diagnoses of these often ‘gut-wrenching’ illnesses.  Note: We […]

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