Archive for the ‘Managing Ehlers-Danlos’ Category

Posted on August 18, 2014
An aspiring and promising young gymnast learns that she will never be able to compete again after a reconstructive surgical operation goes wrong. When her body starts to break down, she hunts for answers only to find that it would stump even the best of doctors available in the Midwest. But when she almost loses […]

Posted on July 16, 2014
EDS Awareness invites you to listen to a replay of this FREE online learning session! Dr. Peter Rowe spoke about managing Orthostatic Intolerance in EDS. Sponsored by www.bodysupportstore.com CLICK HERE for a link to the recording CLICK HERE for the slides used in this presentation PRESENTER: Dr. Peter Rowe is a […]

Posted on July 2, 2014
EDS Awareness invites you listen to a replay of a FREE online learning session! On July 2nd, Joel Lamoure spoke about medication, pain, pitfalls and challenges facing those with EDS and other connective tissue disorders. Don’t miss this event! Sponsored by www.bodysupportstore.com CLICK HERE for a link to the recording CLICK HERE for the slides […]

Posted on June 24, 2014
Cherylee has a key role in raising Ehlers-Danlos Syndrome (EDS) Awareness in the UK. She is the first disabled actress to have a permanent role on the “Coronation Street” TV series. “A Coronation Street favourite has become an Honorary Patron of the Lancaster theatre where her acting career began. Cherylee Houston, who plays Izzy Armstrong in the popular soap, joins […]

Posted on June 19, 2014
EDS Awareness invites you to watch this FREE educational video! On June 18th, Eric Palmer spoke about bracing for EDS. He is a board certified Orthotist and Prosthetist with over 20 years of experience. Don’t miss future LIVE sessions offered the 1st and 3rd Tuesdays of each month! “EDS Awareness Educational Series” is a […]

Posted on May 30, 2014
by Natasha Lipman. For EDS Awareness Month, Natasha wrote this article in the Huffington Post. She is the Founder & Director of the International Political Forum in the UK. Hands up if you’ve heard of Ehlers-Danlos Syndrome? Chances are if you actually have EDS, you’d be a bit wary of thrusting your arm up in […]

Posted on May 18, 2014
.

Posted on April 29, 2014
It is interesting that genetics don’t seem to be consistent in this family. By Jeff Leen, The Washington Post. “Mildred Burke had one of the strongest necks in the world. A champion pro wrestler in the 1930s and the first female athlete to earn $1 million, Burke was only 5 feet 2 inches tall, but […]