Archive for the ‘Managing Ehlers-Danlos’ Category

blog-post-thumbnail
Life as a zebra

Posted on August 18, 2014

An aspiring and promising young gymnast learns that she will never be able to compete again after a reconstructive surgical operation goes wrong. When her body starts to break down, she hunts for answers only to find that it would stump even the best of doctors available in the Midwest. But when she almost loses […]

Read More

blog-post-thumbnail
Webinar by Dr. Peter Rowe – Recording available

Posted on July 16, 2014

  EDS Awareness invites you to listen to a replay of this FREE online learning session! Dr. Peter Rowe spoke about managing Orthostatic Intolerance in EDS.     Sponsored by www.bodysupportstore.com    CLICK HERE for a link to the recording   CLICK HERE for the slides used in this presentation     PRESENTER:   Dr. Peter Rowe is a […]

Read More

blog-post-thumbnail
EDS Awareness Educational Series – RECORDING AVAILABLE

Posted on July 2, 2014

  EDS Awareness invites you listen to a replay of a FREE online learning session! On July 2nd, Joel Lamoure spoke  about medication, pain, pitfalls and challenges facing those with EDS and other connective tissue disorders.  Don’t miss this event!     Sponsored by www.bodysupportstore.com    CLICK HERE for a link to the recording CLICK HERE for the slides […]

Read More

blog-post-thumbnail
“Coronation Street” Star with Ehlers-Danlos Syndrome Back in the News

Posted on June 24, 2014

Cherylee has a key role in raising Ehlers-Danlos Syndrome (EDS) Awareness in the UK. She is the first disabled actress to have a permanent role on the “Coronation Street” TV series. “A Coronation Street favourite has become an Honorary Patron of the Lancaster theatre where her acting career began. Cherylee Houston, who plays Izzy Armstrong in the popular soap, joins […]

Read More

blog-post-thumbnail
FREE Educational Webinar on Bracing for EDS – RECORDING AVAILABLE

Posted on June 19, 2014

EDS Awareness invites you to watch this FREE educational video! On June 18th, Eric Palmer spoke about bracing for EDS.  He is a board certified Orthotist and Prosthetist with over 20 years of experience.   Don’t miss future LIVE sessions offered the 1st and 3rd Tuesdays of each month!      “EDS Awareness Educational Series” is a […]

Read More

blog-post-thumbnail
My Invisible Illness is Ehlers-Danlos Syndrome

Posted on May 30, 2014

by Natasha Lipman. For EDS Awareness Month, Natasha wrote this article in the Huffington Post. She is the Founder & Director of the International Political Forum in the UK.    Hands up if you’ve heard of Ehlers-Danlos Syndrome? Chances are if you actually have EDS, you’d be a bit wary of thrusting your arm up in […]

Read More

blog-post-thumbnail
When is Flexible Too Flexible? Ehlers-Danlos Syndrome!

Posted on April 29, 2014

It is interesting that genetics don’t seem to be consistent in this family. By Jeff Leen, The Washington Post. “Mildred Burke had one of the strongest necks in the world. A champion pro wrestler in the 1930s and the first female athlete to earn $1 million, Burke was only 5 feet 2 inches tall, but […]

Read More

Get Webinar Announcements And Our FREE Guide

Support EDS Awareness

See all upcoming events

Current Poll

How long until you received a proper diagnosis for EDS?

View Results

Loading ... Loading ...