Archive for the ‘Chiari’ Category

blog-post-thumbnail
What it’s Like to Live with a Serious Invisible Illness Like EDS

Posted on July 15, 2018

by:  ALICE HOWARTH From searching for a cure to being repeatedly dismissed, former model Tori Chalmers opens up about being part of the invisible illness community. Tori Chalmers  ES Lifestyle Newsletter Having any kind of illness is tough but add to that the fact of it being invisible, at times it can seem impossible to cope with. In the […]

Read More

blog-post-thumbnail
CSF – Unite@thehill – June 23-25, 2018

Posted on April 11, 2018

For the past few years, CSF has stormed Capitol Hill with you to make a difference for people living with Chiari malformation, syringomyelia, Ehlers-Danlos syndrome and many other related disorders… and it seems like Congress is really listening. I n February 2015, Congress voted to increase the NIH budget by $31.3 billion to support more biomedical research. In 2016, […]

Read More

blog-post-thumbnail
Dayton Zebras Conquer Ehlers-Danlos, Chiari Walk Across America 5K

Posted on October 1, 2016

        On September 17, 2016 the Dayton Zebras participated in the Conquer Chiari Walk Across America 5K in Beavercreek, OH. This year the Dayton Zebras set up a selfie booth and EDS awareness table. We reached many people that had never heard of EDS. We were also able to reach people that did […]

Read More

blog-post-thumbnail
Free Webinar – “Chiari Malformation in EDS” – Recording Available

Posted on March 1, 2016

Watch the recording of this free webinar. Sponsored by www.bodysupportstore.com     TOPIC: “Chiari Malformation in EDS” PRESENTER: Dr. Holly Gilmer   Click IMAGE for a link to the recording Click here for a link to the presenter’s slides     INVITE YOUR FRIENDS: Spread the knowledge!  Please post this announcement on Facebook, and forward this invitation to others who […]

Read More

blog-post-thumbnail
Free Webinar – “Tethered Cord Syndrome in Ehlers-Danlos” – Recording Available

Posted on January 5, 2016

Watch the recording of this free webinar. Sponsored by www.bodysupportstore.com TOPIC: “Tethered Cord Syndrome in Ehlers-Danlos” PRESENTER: Petra Klinge, MD, PhD Click IMAGE  for a link to this recording Click here for a link to the presenter’s slides INVITE YOUR FRIENDS: Spread the knowledge!  Please post this announcement on Facebook, and forward this invitation to others who may […]

Read More

blog-post-thumbnail
EDS & Chiari “Unite@Night” Walks in Ohio

Posted on May 31, 2015

The May 30th Ehlers-Danlos / Chiari walk in Cincinnati, OH had an over whelming response! In addition to our group members, the walk attracted more than 75 new EDSers and families! Please join us in June for several walks throughout the country!

Read More

Get Webinar Announcements And Our FREE Guide

Support EDS Awareness

See all upcoming events

Current Poll

How long until you received a proper diagnosis for EDS?

View Results

Loading ... Loading ...
%d bloggers like this: