Chiari
Dayton Zebras Conquer Ehlers-Danlos, Chiari Walk Across America 5K
On September 17, 2016 the Dayton Zebras participated in the Conquer Chiari Walk Across America 5K in Beavercreek, OH. This year the Dayton Zebras set up a selfie booth and EDS awareness table. We reached many people that had never heard of EDS. We were also able to reach people that did […]
Free Webinar – “Chiari Malformation in EDS” – Recording Available
Watch the recording of this free webinar. Sponsored by www.bodysupportstore.com TOPIC: “Chiari Malformation in EDS” PRESENTER: Dr. Holly Gilmer Click IMAGE for a link to the recording Click here for a link to the presenter’s slides INVITE YOUR FRIENDS: Spread the knowledge! Please post this announcement on Facebook, and forward this invitation to others who […]
Free Webinar – “Tethered Cord Syndrome in Ehlers-Danlos” – Recording Available
Watch the recording of this free webinar. Sponsored by www.bodysupportstore.com TOPIC: “Tethered Cord Syndrome in Ehlers-Danlos” PRESENTER: Petra Klinge, MD, PhD Click IMAGE for a link to this recording Click here for a link to the presenter’s slides INVITE YOUR FRIENDS: Spread the knowledge! Please post this announcement on Facebook, and forward this invitation to others who may […]
Free Webinar – “Tethered Cord Syndrome in Ehlers-Danlos”
January 5, 2016
Live Webinar at 7:30 pm EDT
Dr. Petra Klinge (Neurosurgeon) presents “Tethered Cord Syndrome in Ehlers-Danlos”.
EDS & Chiari “Unite@Night” Walks in Ohio
The May 30th Ehlers-Danlos / Chiari walk in Cincinnati, OH had an over whelming response! In addition to our group members, the walk attracted more than 75 new EDSers and families! Please join us in June for several walks throughout the country!
Free EDS – Chiari Educational Lecture in Cincinnati – Slides are Available
Recording and slides are available for the Free EDS – Chiari Physician Conference held in Cincinnati, Ohio
Music Therapy Helps 11-year-old Battle Ehlers-Danlos and Chiari Malformation
The OPUS hospital music program helps James cope with Ehlers-Danlos pain. In addition, a recent study showed 29% lower anxiety levels and a lower average breathing rate in patients who were played music during their operations. Click here to watch videos demonstrating how the OPUS music therapy program is helping patients. By Dan Russell, Nottingham Post. “MUSIC is helping an 11-year-old boy […]
Chronically in Pain and in Love – POTS and Ehlers-Danlos Syndrome
The diagnosis was bittersweet. It was good to finally have an answer …. Ehlers-Danlos Syndrome! By Emily McComas CHARLESTON, W.Va. — Kyli Wolfson was losing hope. “For most of her life, she had struggled with a lack of energy. She couldn’t keep up with her peers in middle school gym class and tried to work with […]
