Archive for the ‘Chiari’ Category
Posted on March 10, 2024
A recent study by Henderson et al. found significant benefits for EDS patients with severe craniocervical instability who underwent occipito-cervical fusion surgery. Craniocervical instability is one of the most severe neurological complications of the Ehlers-Danlos syndromes, causing many affected individuals symptoms such as headaches, severe full body pain, dizziness, nausea, blurred vision, paresthesia, fatigue, weakness, […]
Posted on January 13, 2024
Special thanks to EDS medical provider Pradeep Chopra, MD for reviewing this article curated by our media team. Learn more from his expertise in his video webinar on EDS Pain Management (discussion on tethered cord at the 1:13 mark). Intro: Hope for Tethered Cord Syndrome Patients Tethered Cord Syndrome (TCS) is a common condition found […]
Posted on March 27, 2023
For Chronic Pain Partners Newsletter, writer Christie Cox speaks with two pioneers in the Ehlers-Danlos community Leslie Russek and Susan Chalela, about their recent publication on upper cervical instability (UCI). Leslie Russek is a DPT, PhD, and Professor Emeritus of Physical Therapy at Clarkson University and an Orthopedic Certified Specialist Physical Therapist with over 30 […]
Posted on February 22, 2023
How to be prepared & stay safe when having a hospital stay with Ehlers-Danlos syndrome (EDS) This article will give an overview of ways you can prepare for a hospital stay when you have EDS, as well as tips on surgical prep and your own patient advocacy. People with Ehlers-Danlos syndrome (EDS) often need surgery […]
Posted on July 15, 2018
by: ALICE HOWARTH From searching for a cure to being repeatedly dismissed, former model Tori Chalmers opens up about being part of the invisible illness community. Tori Chalmers ES Lifestyle Newsletter Having any kind of illness is tough but add to that the fact of it being invisible, at times it can seem impossible to cope with. In the […]
Posted on April 11, 2018
For the past few years, CSF has stormed Capitol Hill with you to make a difference for people living with Chiari malformation, syringomyelia, Ehlers-Danlos syndrome and many other related disorders… and it seems like Congress is really listening. I n February 2015, Congress voted to increase the NIH budget by $31.3 billion to support more biomedical research. In 2016, […]
Posted on October 1, 2016
On September 17, 2016 the Dayton Zebras participated in the Conquer Chiari Walk Across America 5K in Beavercreek, OH. This year the Dayton Zebras set up a selfie booth and EDS awareness table. We reached many people that had never heard of EDS. We were also able to reach people that did […]
Posted on March 1, 2016
Watch the recording of this free webinar. Sponsored by www.bodysupportstore.com TOPIC: “Chiari Malformation in EDS” PRESENTER: Dr. Holly Gilmer Click IMAGE for a link to the recording Click here for a link to the presenter’s slides INVITE YOUR FRIENDS: Spread the knowledge! Please post this announcement on Facebook, and forward this invitation to others who […]
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