Book Review
Books on Ehlers-Danlos Syndrome
With growing awareness about the Ehlers-Danlos syndromes, varying resources in different types of media developed over the last years. Our Chronic Pain Partners’ Team is collecting their favorite books, podcasts and films on EDS and its comorbid condition in a series of listicles you will find on our website over the next months. We are […]
Pey Carter and Daughter Abigail Speak About Their EDS Children’s Book
Pey Carter, a public speaker and author from Eau Claire, WI, and their daughter, Abigail Bailey, have a children’s book about Ehlers-Danlos Syndrome in the works: Bendy Bones and Stretchy Skin: An Ehlers-Danlos Story. In addition, Pey just finished a Kickstarter for an Ehlers-Danlos coloring book and is working on a memoir of their own. […]
Kimby Maxson And The Bendy Twisty Zebra: The Story Behind The Book
The story of Rose, a young girl zebra, is the heart of Kimby Maxson’s children’s book The Bendy Twisty Zebra. Rose, her friends, and the book’s encouraging message are all based on Kimby’s real-life experiences navigating the world of doctors, hospitals, and diagnoses for her daughter, Jade. Kimby, a massage therapist and bodywork specialist from […]
Book Review: The Bendy Twisty Zebra by Kimby Maxson
Move over, Dr. Seuss! Make room on children’s bookshelves for The Bendy Twisty Zebra written by Kimby Maxson and illustration by Ron Houchens. With colorful characters, catchy rhymes, and a heart-felt message, The Bendy Twisty Zebra brings to mind some of Dr. Seuss’s famous books. While children of all ages (even grown-up children!) can enjoy […]
Book Review: Holding It All Together When You’re Hypermobile
For our Chronic Pain Partners Post edition of November 2022, journalist Karina Sturm reviews author and fellow zebra Christie Cox’s new EDS book called Holding It All Together When You’re Hypermobile. In this article, we will provide more information on the book’s content and what distinguishes Cox’s book from other available Ehlers-Danlos Syndrome resources. […]
We Are Visible Too! Episode 1: Sarah Rightmire
We Are Visible (Too) is an ongoing mini-film series portraying people with EDS all across the globe. In this mini-documentary series, we will continue on the We Are Visible – a feature-length film about people with EDS – journey and add a variety of 5 – 10 minute videos of other people across the […]
Author Christie Cox about her new EDS book ‘Holding It All Together When You’re Hypermobile’
For our Chronic Pain Partners newsletter, journalist Karina Sturm spoke with Christie Cox, fellow zebra and author of the new EDS book “Holding It All Together When You’re Hypermobile.” Cox shares her journey to getting diagnosed with EDS, what motivated her to write this book, and what the book is all about. [We will review […]
Book Review: “Fight + Flight” – The new middle-grade book featuring a character with EDS!
[CW: The book features an active shooter drill and talks about gun violence. This might be triggering to some people. The review is written so that an adult audience, as well as a younger audience, can get an impression of this book, but please keep in mind the potential triggers.] Chronic Pain Partners […]
