Tethered Cord

Amy Wang-Hiller seated in a wheelchair, holding a violin and bow, wearing a black dress and smiling at the camera.

An Interview with Amy Wang-Hiller: Music, Disability, and Advocacy

This month, we spoke with Amy Wang-Hiller, a violinist living with quadriplegia, hypermobile Ehlers-Danlos syndrome (hEDS), and related complex neuro-connective tissue conditions. As a violin instructor, Amy works with intermediate and advanced musicians navigating changes that affect performance, such as complex neurological disorders. She is also a disability advocate, founder of the InclusiVibe Foundation, and […]

lumbar spine

Tethered Cord in EDS: A Patient Guide to Symptoms, Diagnostics, Treatments, and Risks

Understanding Tethered Cord Syndrome and Occult Tethered Cord in Ehlers-Danlos Syndrome (Also see the simplified version of this article) Unravelling the tethered cord has proven to be an elusive topic. Basically, there is not a great deal of credible insight or medical research available on it. To start simply, we begin with basic anatomy and […]

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Free Webinar – “Tethered Cord Syndrome in Ehlers-Danlos” – Recording Available

Watch the recording of this free webinar. Sponsored by www.bodysupportstore.com TOPIC: “Tethered Cord Syndrome in Ehlers-Danlos” PRESENTER: Petra Klinge, MD, PhD Click IMAGE  for a link to this recording Click here for a link to the presenter’s slides INVITE YOUR FRIENDS: Spread the knowledge!  Please post this announcement on Facebook, and forward this invitation to others who may […]

Free Webinar – “Tethered Cord Syndrome in Ehlers-Danlos”

January 5, 2016
Live Webinar at 7:30 pm EDT
Dr. Petra Klinge (Neurosurgeon) presents “Tethered Cord Syndrome in Ehlers-Danlos”.