Have you ever clicked on the webinar section of our Chronic Pain Partners website and looked through the archives of the presentations featured? In 2013, our founder, John Ferman, started this highly popular educational series with a clear mission to provide free access to emerging research interpreted by experienced physicians. Wow, did he succeed! Looking […]
This month, we wanted to give you a peek into the daily lives of our team members by asking them to share a few of their favorite go-to supportive items for Ehlers-Danlos syndromes (EDS) or hypermobility spectrum disorders (HSD). While these aids might be what work for us personally, we hope they offer inspiration and ideas to help you live your life to the fullest with EDS/HSD.
Previous editions of Research Round-up can be found at the following links: Edition 5 (Pediatrics) Edition 4 (Neurodivergence) Edition 3 Edition 2 Edition 1 Howdy, partners! This Research Round-up has roped in a whole herd of topics for you. We hope you enjoy the read, learn a thing or two, and feel […]
Has a friend recently told you: I feel a pain flare coming on, I’m in a flare, or I’m coming out of a flare? If so, what does this mean for them and what does it mean for you? Maybe you want to help but are unsure how? In this article, guest author Avi, who […]
Summary The medicine is sold as Journavx, with the chemical name Suzetrigine. It works by blocking NaV1.8 channels, which are responsible for pain transmission along nerves. It only affects peripheral nerves (outside the brain and spinal cord), such as those in the arms and legs. It does not cause addiction. However, Journavx is weaker than […]
The following is not intended to be medical advice. If you have questions about low-dose naltrexone, please speak to your doctor. The drug Narcan, or naloxone, has been in the news for the last five to ten years due to its effective use as an opioid-reversal agent. If someone is overdosing, a spray of […]
Did you know that fatigue is the second most commonly described symptom of hypermobility, after pain, according to the NHS and Cleveland Clinic websites? It’s something many of us with Ehlers-Danlos syndrome (EDS) share in common. But maybe if we could learn to pick up on the subtle signals sooner, we can learn to better […]
Strategies For Managing the Impact of Changing Weather Patterns Tomorrow’s weather forecast for your joints? Cloudy with a chance of pain. There’s a long-held scientific belief that worsening weather can increase aches in your joints, according to the Cleveland Clinic, especially for conditions like arthritis and fibromyalgia. We don’t really fully understand why, but for […]
Ehlers-Danlos Syndrome May Increase Susceptibility to Infections
EDS, POTS and MCAS Linked by One Gene Mutation
Popular People With Ehlers-Danlos Syndrome
In memory of John Ferman, Founder and President of Chronic Pain Partners / EDS Awareness
EDS Physical Therapy Book & Free Webinar: “Living Life to the Fullest with Ehlers-Danlos Syndrome”