Archive for the ‘Awareness’ Category

blog-post-thumbnail
Rare Disease Day – February 28, 2019

Posted on February 28, 2019

Rare Disease Day is an annual awareness-raising event sponsored by the National Organization for Rare Disorders (NORD) in the US. Rare Disease Day is coordinated by EURORDIS at the international level. The main objective of Rare Disease Day is to raise awareness amongst the general public and decision-makers about rare diseases and their impact on patients’ lives. The […]

Read More

blog-post-thumbnail
2018 Excellence in Advocacy Award From AARP Ohio

Posted on November 1, 2018

John Ferman, Co-founder of the EDS Awareness a.k.a. Chronic Pain Partners 501(c)(3) non-profit program received the 2018 Andrus Excellence in Advocacy award at the AARP Ohio Volunteer Summit DInner in Columbus Ohio on October 29, 2018. John has been a full time volunteer since he retired in 2013 and has: Helped to create over 115 local […]

Read More

blog-post-thumbnail
New Ehlers-Danlos Syndromes Physician CME Education Program

Posted on October 31, 2018

Introduced at the EDS Conference in Las Vegas About this program. We have had over 1050 participants since we introduced the program!  The Ehlers-Danlos Syndromes Physician CME Education Program is the first online Ehlers-Danlos Syndromes course accredited to provide continuing education credits. This free program will cover the fundamental principles for the diagnosis, classification, and […]

Read More

blog-post-thumbnail
Told Symptoms ‘All in Her Head’ Raising Awareness About Rare Disorders

Posted on October 27, 2018

BY KATHARIN CZINK AND DINA BAIR Maddie Schubert and Dr. Brad Tinkle It’s often written off as anxiety, particularly in girls. But when the symptoms are thoughtfully pieced together, a puzzling and widely unrecognized disorder is revealed. A quick check of her blood pressure is just one step in Maddie Schubert’s extensive daily routine. “This is on after […]

Read More

blog-post-thumbnail
An EDS Research Database for our German Doctors

Posted on October 18, 2018

To: John Ferman – President  Chronic Pain Partners Thank you for the amazing work you are doing. It is exciting to hear about the great success of the EDS Physician CME program and the planned CEU program! We are creating a research database for our German doctors with publications and information on Ehlers-Danlos syndromes. Only […]

Read More

blog-post-thumbnail
EDS Awareness was a Sponsor at the 2018 EDS Learning Conference

Posted on August 8, 2018

EDS Awareness was a Sponsor at EDS Learning Conference for the 7th time. EDS Awareness a.k.a. Chronic Pain Partners non-profit 501(c)(3) was a sponsor and received an overwhelming response to our support groups, monthly webinars and our new EDS Physician CME Education program. There have been over 900 participants registered to take courses over the […]

Read More

blog-post-thumbnail
Active Teen Gets Her Life Back after Discovering POTS

Posted on July 11, 2018

July 9, 2018 by Heather Bauders, Senior Public Relations Specialist     Every day of restored health is a blessing for Christina Corturillo and her mom, Kathy. What do you do when you go from being an active kid to unable to walk? What do you do when doctors think the problem is mental, but you know […]

Read More

blog-post-thumbnail
Doctor said it was all in her head, but it was ‘the most common condition’

Posted on June 24, 2018

POSTED 5:48 AM, JUNE 26, 2018, BY CNN WIRE, UPDATED AT 07:37AM, JUNE 26, 2018 Fox 59 File photo Super Bowl MVP Nick Foles is ecstatic about leading the Philadelphia Eagles to victory, but that’s not the triumph he celebrates daily. He gives that medal to his wife, Tori Foles, for what he calls her “amazing strength” […]

Read More

Get Webinar Announcements And Our FREE Guide

Support EDS Awareness

See all upcoming events

Current Poll

How long until you received a proper diagnosis for EDS?

View Results

Loading ... Loading ...