Archive for the ‘Awareness’ Category

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“Every day I wake up is a blessing” … despite Ehlers-Danlos Syndrome

Posted on July 4, 2016

By Richard Salit, Journal Staff Writer. Ellen Lenox Smith’s recurring injuries and ailments were as baffling as they were disabling. Some doctors thought they might even be psychological. Why was she always in such pain? Why did she have difficulty swallowing? Why did she keep tearing cartilage and ligaments in her knees and shoulders? And […]

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Fairfield Senior with EDS Takes Her Graduation Walk

Posted on June 11, 2016

By Michael D. Pitman Staff Writer   Elizabeth Schulze worked for years to be able to garner the strength and stamina to walk across the stage and receive her high school diploma. While the act is easy for most high school seniors, it was not for Schulze. Amy Schulze said her daughter, who plans to attend […]

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Free Webinar — “All in Your Head”: The Problem of Psychogenic Diagnosis for Ehlers-Danlos Patients – Recording Available

Posted on June 7, 2016

Watch the recording of this free webinar. Sponsored by www.bodysupportstore.com    TOPIC: “All in Your Head”: The Problem of Psychogenic Diagnosis for Ehlers-Danlos Patients PRESENTER: Diane O’Leary, PhD   Dr. O’Leary is currently an Associate Adjunct Professor in philosophy at University of Maryland University College Click IMAGE for the recording of this presentation. Click here for the […]

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New Awareness Materials for EDS — “Hiding in Plain Sight” Brochure. NOW you can print through Vistaprint!

Posted on May 1, 2016

Available now to print through Vistaprint! This new EDS brochure is designed for general awareness of EDS. It’s suitable for doctors, teachers, and relatives who just don’t “get it”.

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My Wife Had EDS and Did Not Know IT! – 8th Year Anniversary

Posted on April 21, 2016

  This website and its free programs are dedicated to the memory of Carol and thousands like her – who suffer from undiagnosed Ehlers-Danlos…  We were married for 41 years.  You’d think that after all of that time you would know everything there was to know about a person. –          I knew Carol was a […]

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Colorado EDS Awareness Month Proclamation

Posted on April 10, 2016

Colorado EDS Awareness Month Proclamation.   Justin and Nancy, leaders of the Denver EDS Support Group, received their Proclamation.   There is still time to get your Ehlers-Danlos Awareness Month Proclamation request sent to your state or local officials. . . Proclamation sample. http://www.ehlersdanlosnetwork.org/May.html  . . Proclamation Contact information Click here for a spreadsheet with contact information […]

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Alaska Ehlers-Danlos Syndrome Awareness Month Coloring Competition.

Posted on April 10, 2016

Alaska Ehlers-Danlos Syndrome Awareness Month Coloring Competition.    Start Date: May 1, 2016 at 12:00 am End Date: May 31, 2016 at 11:59 pm Rules: Attached you will find a picture of a zebra bust that was designed and drawn by the artist Katie Zamudio, Doodlebug Coloring Books. Starting May 1, 2016 at 12:00 am […]

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