Archive for the ‘Awareness’ Category
Posted on May 4, 2017
Many Ehlers-Danlos Syndromes (EDS) experts believe that its prevelance is higher than once thought. Estimates range from 1 in 500 to 1 in 100. Dr. Fraser C. Henderson, Sr., MD, comments in this video that “1 in 10 Americans have hypermobility connective tissue disorders. That’s 30 million people – and we don’t know exactly […]
Posted on April 28, 2017
Artist, Brie Dadich, shares her photography and documentary film about people living with EDS in hopes of raising awareness. It also comments on the frustrations and wisdom discovered as the zebras in focus adapt their lifestyles to remain positive while living with an invisible illness. The 2017 Fine Art & Graphic Design Senior Exhibition, also […]
Posted on March 25, 2017
The 2017 EDS Classifications: Your Questions Answered!
Posted on March 6, 2017
Rare disease day
Posted on February 25, 2017
By KYLE GRABOWSKI @kylegrbwsk NORTHAMPTON — Hannalise Rivera-Lovett jumped to intercept a pass. She was playing in a summer league basketball game at JFK Middle School between her sophomore and junior seasons to stay fresh for the winter. Everything above her knee went one way, everything below went the other. The torque caused a subluxation […]
Posted on January 29, 2017
Our free EDS Awareness program provides each group with a listing on the Support Group Directory and Map, free webpages, coaching, and more… EDSawareness.com offers FREE Educational Sessions twice/month! To receive webinar announcements via email, Click Here To watch video RECORDINGS of previous presentations, Click Here
Posted on December 2, 2016
By: Eloise Stager, BA, LMT, CST Introduction Ehlers-Danlos Syndrome (EDS) is a genetic, connective tissue disorder affecting collagen production. Since collagen is found throughout the body, all systems, structures and biomechanics can be affected. The most noticeable physical manifestation is joint hypermobility as described by the Beighton Criteria (6), a scoring system for joint hyperflexion […]
Posted on November 21, 2016
Katelyn Verstraten, Online Reporter. Ehlers-Danlos Syndrome is just one of many invisible illnesses that dramatically alter the course of the patient’s life. At 18, Catherine Richardson’s life was all planned out: she was getting amazing grades in her first semester of university, pursuing her dream of being an occupational therapist, and working part-time as […]
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