Archive for the ‘Awareness’ Category
Posted on January 7, 2018
Nathalie says because her illnesses are “invisible” people often doubt whether she really is disabled! Ehlers-Danlos Syndrome is a major disability for so many. A disabled woman says she was refused help boarding a flight because she “doesn’t look ill”. Nathalie Allport-Grantham, claims a member of staff at Stansted Airport told her she was “wasting […]
Posted on December 15, 2017
December 13, 2017 By Ellen Lenox Smith, Columnist Ellen Smith is a member of the Rhode Island EDS Support Group and very active as an advocate and speaker. People living with Ehlers-Danlos Syndrome (EDS) are often afraid to go to a hospital emergency room, due to a lack of understanding in the ER staff on […]
Posted on November 4, 2017
EDS Awareness at Dayton 2017 Holistic Symposium at Miami Valley Hospital Centerville Ohio
Posted on October 8, 2017
EDS Awareness was a sponsor for the POTS 5K, at Wittenberg University in Springfield, Ohio on October 7, 1017 Click here for more information
Posted on September 11, 2017
We participated again in a very successful EDS Learning Conference. Here are connections to activities at the EDS Society Conference in Las Vegas 9-6 thru 9-8 New EDS Physician CME Educational Online Program announced Click here for Jon Rodis EDS Society Conference Summary Click here for Dr. Chopra’s presentation […]
Posted on August 7, 2017
Hypermobile EDS is difficult to diagnose because it devastates the whole body and causes numerous symptoms. By Mary Vuong Sarrah Hannon once led an active life of triathlons, marathons and rock climbing. Now she refrains from lifting a gallon of milk. Hannon, 30, lives with Ehlers-Danlos Syndrome (EDS), a group of genetic connective tissue disorders. The […]
Posted on July 10, 2017
EDS Awareness 5K hosted by Dayton Zebras
ALL PROCEEDS WERE FOR CHRONIC PAIN PARTNERS, EDS AWARENESS
Posted on July 5, 2017
By Catherine Roberts You likely haven’t given too much thought to your skin, joints, and blood vessels lately—unless you’ve suffered an wound that required stitches or a joint injury that put you off your game for a few weeks. However, for patients with Ehlers-Danlos syndromes, a set of inherited disorders that strike these connective tissues, […]