Awareness
New Ehlers-Danlos Syndromes Physician CME Education Program
Introduced at the EDS Conference in Las Vegas About this program. We have had over 1200 participants since we introduced the program! The Ehlers-Danlos Syndromes Physician CME Education Program is the first online Ehlers-Danlos Syndromes course accredited to provide continuing education credits. This free program will cover the fundamental principles for the diagnosis, classification, and […]
Living With EDS: Judgment from Others
“When you judge another, you do not define them, you define yourself” – Wayne Dyer Living with Ehlers Danlos Syndrome (EDS) is like being a doll that is stitched together but whose stitches are slowly coming apart at the seams. You know it, you feel the pain but are powerless to stop it. You have […]
Told Symptoms ‘All in Her Head’ Raising Awareness About Rare Disorders
BY KATHARIN CZINK AND DINA BAIR Maddie Schubert and Dr. Brad Tinkle It’s often written off as anxiety, particularly in girls. But when the symptoms are thoughtfully pieced together, a puzzling and widely unrecognized disorder is revealed. A quick check of her blood pressure is just one step in Maddie Schubert’s extensive daily routine. “This is on after […]
An EDS Research Database for our German Doctors
To: John Ferman – President Chronic Pain Partners Thank you for the amazing work you are doing. It is exciting to hear about the great success of the EDS Physician CME program and the planned CEU program! We are creating a research database for our German doctors with publications and information on Ehlers-Danlos syndromes. Only […]
EDS Awareness was a Sponsor at the 2018 EDS Learning Conference
EDS Awareness was a Sponsor at EDS Learning Conference for the 7th time. EDS Awareness a.k.a. Chronic Pain Partners non-profit 501(c)(3) was a sponsor and received an overwhelming response to our support groups, monthly webinars and our new EDS Physician CME Education program. There have been over 900 participants registered to take courses over the […]
Active Teen Gets Her Life Back after Discovering POTS
July 9, 2018 by Heather Bauders, Senior Public Relations Specialist Every day of restored health is a blessing for Christina Corturillo and her mom, Kathy. What do you do when you go from being an active kid to unable to walk? What do you do when doctors think the problem is mental, but you know […]
Doctor said it was all in her head, but it was ‘the most common condition’
POSTED 5:48 AM, JUNE 26, 2018, BY CNN WIRE, UPDATED AT 07:37AM, JUNE 26, 2018 Fox 59 File photo Super Bowl MVP Nick Foles is ecstatic about leading the Philadelphia Eagles to victory, but that’s not the triumph he celebrates daily. He gives that medal to his wife, Tori Foles, for what he calls her “amazing strength” […]
How to Improve Your Quality of Life While Living with Ehlers-Danlos
Posted on June 20, 2018 in Alternative Pain Therapy, Diseases & Conditions, By Ellen Lenox Smith. Ehlers-Danlos Syndrome (EDS) is a condition that causes one to be born with defective connective tissue, the “glue” which holds the body together. Currently, there is still no permanent cure to this problem, so living life with this condition means learning to […]
