New Feature-Length Ehlers-Danlos Documentary ’We Are Visible’ IS NOW ON LINE


New Feature-Length Ehlers-Danlos Documentary


Fellow Zebras, medical professionals, and everyone living with an invisible condition, 
We want to invite you to join the On Line screening of the film ‘We Are Visible’, a feature-length documentary about people living with Ehlers-Danlos syndrome  
Feel free to spread the word about this event.
Share with your family, friends, medical community, Facebook and other social media. 
Karina (The director of the film)



Trailer 1:

Trailer 2:

Trailer 3:


About the filmmaker:

Karina Sturm

Karina Sturm

Karina grew up in Germany but currently lives in San Francisco, CA. After finishing school, she has worked in the medical field for eight years. As a laboratory technician, she worked in a German research facility with a focus on biotechnology. In 2010, she developed symptoms related to Ehlers-Danlos syndrome and comorbid conditions and was unable to continue her research. She soon found her passion for writing and started to combine her medical knowledge with her personal experiences with disability and chronic illness and produced articles about medicine, science, and disability. 2018, Karina was accepted into a journalism program in Edinburgh, Scotland and has been studying ever since. As part of her degree, she has worked with blind journalist Belo Cipriani and produced three accessible short films called ”Firsts” that feature writers with different disabilities. Additionally, she writes for an Austrian magazine for medical professionals with a focus on the patient’s perspective, and she has also written for international publications such as the Columbia Journalism Review. Besides journalism, Karina has a strong passion for all activities that involve being on or in the ocean. She loves traveling, dogs, facts, and Heavy Metal music, and hates lies, intolerance, and cooking. Karina’s film ’We Are Visible’ is a non-profit project supporting EDS organizations around the globe and is entirely self-funded. It is also a part of her MA thesis. Moreover, she considers this to be the most important project of her life.

Find out more about Karina on her website:

Or follow her on Facebook for the lastest information about her work:

Take a look behind the scenes:

Meet Jojo, one of the main characters in the film:

Meet Karina, the filmmaker:

Leave a Reply

Your email address will not be published. Required fields are marked *

Get Webinar Announcements And Our FREE Guide

Support EDS Awareness

See all upcoming events

Current Poll

How long until you received a proper diagnosis for EDS?

View Results

Loading ... Loading ...
%d bloggers like this: