Learn more about us.
My name is John Ferman. I am the president of Chronic Pain Partners, a non-profit 501(c)(3) organization. My daughter Deanna and I created the Ehlers Danlos Awareness program in 2011 to help support those with a genetic disorder called Ehlers-Danlos Syndrome (EDS.)
www.EDSawareness.com is an online resource for the Ehlers-Danlos Syndrome community, individuals struggling with EDS and their caregiver networks.
EDS Nursing Online Educational program was launched in 2020
EDS Leadership resources and programs
To watch video RECORDINGS of previous presentations, Click Here
The mission of EDS Awareness is to ensure greater understanding of Ehlers-Danlos Syndrome by patients, the general public and within the medical community – in order to improve the quality of life for those affected by EDS – and those who care for them.
Website content is driven by user participation and learning – for the benefit of all those with Ehlers-Danlos Syndromes and related disorders. The greater the participation, the greater the value to the whole community.