CSF Leak

Pencil sketch of a woman in a T-shirt sitting in an armchair by a window, holding a mug and looking thoughtfully outside at a sunlit spring landscape. A lightweight throw blanket drapes across her lap, while a potted plant and candle sit on a small table nearby.

What’s the Point of Pursuing EDS Diagnosis?

Like many people, my hypermobile Ehlers-Danlos Syndrome (hEDS) was diagnosed after a steep and sudden decline in my health. I had been navigating fatigue, pain, and fogginess for years, but in April 2020, I became bedbound for months following an incident during a Zoom call where I began blacking out and twitching. I had been […]