Posts Tagged ‘Managing Ehlers-Danlos’
Posted on March 30, 2022
Join us on Tuesday, May 10th at 12 pm EDT on a live Zoom call to learn ways to help improve the quality of your life if you face EDS. As we know, there is no cure, but these suggestions might help you have better control of your out-of-control disorder. My special guest speaker is […]
Posted on December 8, 2021
When somebody raises spoons, what do you think first? You might contemplate the piece of silverware. One that is utilized to eat things like soup or ice cream. Except if you are somebody with an ongoing chronic illness, then, at that point, you may rather think about the Spoon Theory. Until someone doesn’t properly know […]
Posted on November 29, 2021
Vascular Ehlers-Danlos condition is an inherited connective tissue problem that is brought about by deficiencies in a protein called collagen. It is viewed as the most extreme type of Ehlers-Danlos disorder (EDS). Common symptoms incorporate thin, transparent skin; bruising; specified facial appearance; and fragile arteries, muscles, and inside organs. Vascular EDS is generally caused by […]
Posted on June 20, 2013
Sama presents a very informative discussion of the pros and cons of Plastic vs. Metal ring splints. We appreciate your Likes and Comments
Posted on January 18, 2013
The Bellmawr resident writes edgy, melodic rock songs with titles like “Palinopsia,” the name for an optical disturbance that’s among the debilitating symptoms of Ehlers-Danlos Syndrome.About four years ago, Fatale was diagnosed with the connective-tissue disease, which creates havoc in the joints, spine, and elsewhere. After surgeries left her barely able to move her head, […]
Posted on January 14, 2013
This is a test
Posted on January 1, 2013
Lauren has not been diagnosed with EDS yet. But she has many of the symtoms. Trying to work with this disorder can be difficult. “- This Genetic condition means Lauren’s collagen is too weak to support her joints – She goes to work at McDonalds even when she is in pain – Doctors dislocated Lauren’s […]
Posted on September 20, 2012
by Jennie Macdonald As someone who suffers from two chronic illnesses (Ehlers-Danlos Syndrome and Postural Orthostatic Tachycardia Syndrome) that include fatigue and joint pain as my two major limitations, I understood the extreme need to be efficient with my time and energy in my early years of parenting. For me, a main priority was to […]
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