Archive for the ‘Child Abuse Claims’ Category

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Interview with Donna Sullivan, TCAPP, about wrongful child abuse allegations and medically complex children

Posted on June 23, 2022

  For our July newsletter, journalist Karina Sturm spoke with Donna Sullivan, board member of The Coalition Against Pediatric Pain (TCAPP). Sullivan lives with EDS and has several affected children as well. In this interview, she shares with Chronic Pain Partners her decade-long experience working with families accused of child abuse due to a medically […]

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Interview with Dr. Pradeep Chopra regarding the psychological and psychiatric aspects of the Ehlers–Danlos syndromes and hypermobility spectrum disorder

Posted on May 20, 2022

Introduction EDS expert and pain specialist Dr. Pradeep Chopra contacted Chronic Pain Partners to speak about a recently published review on the psychological and psychiatric aspects of Ehlers-Danlos syndrome. Dr. Chopra has been treating complex pain patients with a focus on people with Ehlers-Danlos syndrome for decades and is a passionate advocate for EDSers across […]

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Dr. Pradeep Chopra: response
to the paper on psychological
and psychiatric aspects of the
Ehlers–Danlos syndromes

Posted on May 18, 2022

EDS expert and pain specialist Dr. Pradeep Chopra contacted Chronic PainPartners to speak about a recently published review on the psychologicaland psychiatric aspects of the Ehlers-Danlos syndromes and HypermobilitySpectrum Disorders. Dr. Chopra has been treating complex pain patientsfocusing on people with the Ehlers-Danlos syndromes for decades, and is apassionate advocate for patients around the world.The […]

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Haley Rises Above Ehlers-Danlos Syndrome, Meets Tim Tebow

Posted on August 3, 2014

Haley’s wish will come true as she spends personal one-on-one time with her role model, Tim Tebow! Tim Tebow Foundation’s “Wish 15” program (W15H) reaches out to kids with life-threatening illnesses whose wish is to meet Tim Tebow.  As we kick off our W15H season, we are excited to partner with the Fairmont Scottsdale Princess Resort for a […]

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Six-year-old Lillie-Grace Fights Daily Battle with Ehlers-Danlos Syndrome

Posted on June 4, 2014

This six-year-old girl may have challenges, but she attends school and has many friends. She loves dancing, singing, and swimming.  “An inspirational six-year-old girl with a rare condition has told of her daily battle with the syndrome. Lillie-Grace Tomlinson was born with Ehlers-Danlos syndrome (EDS) but was only diagnosed last year. The condition is caused by […]

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When is Flexible Too Flexible? Ehlers-Danlos Syndrome!

Posted on April 29, 2014

It is interesting that genetics don’t seem to be consistent in this family. By Jeff Leen, The Washington Post. “Mildred Burke had one of the strongest necks in the world. A champion pro wrestler in the 1930s and the first female athlete to earn $1 million, Burke was only 5 feet 2 inches tall, but […]

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Judge Reunites Family With Child Affected By Ehlers-Danlos Syndrome

Posted on April 13, 2014

This is another tragic story of couple charged with child abuse due to an Ehlers-Danlos related injury. “It was the type of accident that could happen to any parent – in a split second, a young baby rolls off the bed and falls to the floor. For most, the outcome is a few tears and […]

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Is a Fractured Bone Child Abuse or Ehlers-Danlos Syndrome?

Posted on February 12, 2014

There has been much discussion lately about parents being accused of child abuse when taking their children to the ER with a dislocated joint or fractured bones. By Vincent Iannelli, M.D. “Bone broke, me fix.” “That’s the running joke in medical school about orthopedic surgeons. Of course, there is a lot more to treating broken bones […]

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