Archive for the ‘Community’ Category

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Help Shine a Spotlight: Unveiling the Hidden Triad of MCAS, Hypermobility, and Dysautonomia Through an Upcoming Film

Posted on June 17, 2024

In the vast landscape of healthcare, there are conditions that lurk in the shadows, unseen and often misunderstood such as Mast Cell Activation Syndrome (MCAS), symptomatic joint hypermobility and dysautonomia. Like a camera lens focusing on the minutiae of life, a group of dedicated expert doctors are leading the way in exposing these complex conditions […]

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You Made a Difference in Scientific Research for hEDS

Posted on June 10, 2024

Recent Research Published with Community Support Several members of the hypermobile community responded to the calls for data before July 2023 to collect saliva as DNA samples to be shared and categorized by the scientists at the Medical University of South Carolina (MUSC). The MUSC Norris Lab thanks the many patients suffering from hEDS who […]

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Podcasts on Ehlers-Danlos Syndrome

Posted on June 3, 2024

With growing awareness about the Ehlers-Danlos syndromes, varying resources in different types of media developed over the last years. Our Chronic Pain Partners’ Team is collecting their favorite books, podcasts and films on EDS and its comorbid condition in a series of listicles you will find on our website over the next months. We have […]

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Play it Forward: Contribute to the EDS Community Playlist on Spotify This May!

Posted on April 24, 2024

Let’s make a mixtape on a mission to elevate the noise level for EDS awareness to make waves that foster change for the EDS community.  Music has the power to heal, to connect, and to inspire. This May, as we observe Ehlers-Danlos Syndrome (EDS) Awareness Month, Chronic Pain Partners is thrilled to announce our latest […]

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A Mother’s Day Shout Out from An EDS Mom and The Producer of Complicated 

Posted on April 22, 2024

As a parent, it is hard to witness your child suffering with symptoms and physical pain. As mothers, we are often looked to, to make everything better, right? When my kids started having medical issues, I quickly learned that there was no parenting book to teach how to comfort and support your child when an […]

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Complicated – the must-watch documentary on Ehlers-Danlos Syndrome

Posted on April 21, 2024

A new documentary on Ehlers-Danlos Syndrome, Complicated, will soon be released. Chronic Pain Partners was honored to preview the film, which dives deep into many of our community’s challenges. Directed by award-winning and Oscar-shortlisted filmmaker Andrew Abrahams and co-produced by TCAPP board member and advocate Donna Sullivan, this film is the most comprehensive and accurate […]

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Filmmaker Andrew Abrahams on the New EDS Documentary ‘Complicated’

Posted on April 19, 2024

Chronic Pain Partners’ Karina Sturm was honored to speak with Andrew Abrahams, who has been directing the new Ehlers-Danlos documentary Complicated. Abrahams is an award-winning, two-time Academy Award-shortlisted producer/director of creative non-fiction films and the president of Open Eye Pictures. He is also a cinematographer and photographer. His documentary Under Our Skin, which highlights the […]

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