An Interview with Amy Wang-Hiller: Music, Disability, and Advocacy

Ten Years and a Time Capsule: What Changed, What Didn’t, and What’s Next

July is a busy month in the Ehlers-Danlos world. The EDS Society’s Annual Global Learning Conference takes place in Allen, Texas, on July 24-26. It will feature a great lineup of esteemed physician speakers, patient organizations, advocates, and presentations covering this year’s theme: “Exploring Comorbidities in EDS & HSD.” It is also the Ten-Year Celebration of the founding of the Ehlers-Danlos […]

Things People Have Done That Made Me Feel More Comfortable as Someone with Chronic Illness

Sitting in the Hard Stuff There are moments with chronic illness that are just genuinely horrible all the way around. No silver lining, no lesson, just a terrible day in a body that is kicking you when you’re down. Having people who are willing to sit in that with me when I have nothing to […]

College Accommodations for Ehlers-Danlos Syndrome

Horizontal Parenting: 5 Strategies I Used After Surgery as a Disabled Single Mom

Why May is The Moment for “Complicated”

We didn’t plan it this way, but the release of our documentary film, Complicated, on Apple TV in May feels almost fated. Between Ehlers-Danlos Syndrome (EDS) Awareness Month and Mother’s Day, the timing reflects the very heart of this project that we started nine years ago. To see it come to fruition has been incredible, and I […]

Up Close and Personal: Our Team’s Favorite Go-To Support Aids for EDS/HSD

This month, we wanted to give you a peek into the daily lives of our team members by asking them to share a few of their favorite go-to supportive items for Ehlers-Danlos syndromes (EDS) or hypermobility spectrum disorders (HSD). While these aids might be what work for us personally, we hope they offer inspiration and ideas to help you live your life to the fullest with EDS/HSD.

Episode 2: Medically Complex Children

Listen to the full episode here:  Cassandra You’re listening to the EDS Unplugged podcast brought to you by Chronic Pain Partners, a non-profit supporting the Ehlers-Danlos Syndrome community.   Marcia Welcome back to EDS Unplugged. I’m Marcia Brock.   Cassandra And I’m Cassandra A Campbell.    Marcia Today we are excited to be joined by […]