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Ten tips to optimize medical expenses

Decoding Medical Deductions: A Chronic Illness Patient’s Guide to Navigating Healthcare-Related Expenses and Taxes

“Decoding Medical Deductions” is an invaluable resource for individuals managing chronic illnesses and navigating the complex landscape of medical expenses and taxes in the United States. This comprehensive guide provides ten top strategies and resources to effectively manage medical expenses, optimize costs, and prepare for tax filing. The ebook covers various topics, including deduction eligibility, […]

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A pair of Caucasian hands holds the book Bendy Bones and Stretchy Skin: An Ehlers-Danlos Book. The cover of the book shows a watercolor painting of a young Caucasian girl wearing a teal shirt with a small stuffed animal zebra on her head. The background is a mix of soft pinks, purples, and blues.

Children’s Book about Ehlers-Danlos Published

It’s here! Bendy Bones and Stretchy Skin: An Ehlers-Danlos Book by Pey Carter and their daughter Abigail Bailey hits the virtual shelves on January 23, 2024. Chronic Pain Partners has previously covered the details of the book–where the idea came from, how it took shape, the advocacy Pey does that is portrayed in the book, […]

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EDS Advocates to Follow on Social Media

The Ehlers-Danlos Syndromes may be considered a group of (mostly) rare connective tissue disorders; however, our community is more diverse and stronger than ever, with many advocates sharing their experiences and knowledge via social media. Chronic Pain Partners put together a list of EDS advocates meant to be a work in progress and, of course, […]

Tips for Ehlers-Danlos Caregivers

The 7-Step Recipe for EDS Caregivers: Tips for Helping Patients

One of the earliest lessons in flight training is the aviation order of operations: Aviate, Navigate, Communicate. In pilot training, those words mean the following. Aviate: Use the skills to maintain control of the aircraft. Navigate: Know where you are, and where you intend to go. Communicate: Let someone know your plans and needs. Maybe […]

A doctor doing an ultrasound on the arm of a patient

A New EDS Clinic Coming to a Town Near You (Via Telehealth)

Chronic Pain Partners is excited to speak with David Jameson Harris, a former McKinsey consultant, about his latest project, a new Ehlers-Danlos syndrome clinic, hopefully offering access to expert EDS care in several states starting in February 2024. CPP’s Karina Sturm spoke with David Jameson Harris about his new EDS clinic, his goals, and how […]

two hands with blue gloves holding a surgical mask

Part Two: HEDS Researchers Explain Clinician-Associated Trauma

This is the second article in our series covering psychological medical trauma. The first article provided an introduction to what concepts of psychological medical trauma exist and the newly-created concept of clinician-associated trauma. It also introduced a study regarding hEDS patients and clinician-associated trauma. This article will look deeper into the details of this study […]

Illustration of two heads that flow into one another, a red and a blue one.

Part One: EDS & Psychological Medical Trauma: An Introduction

[Content warning: trauma, PTSD, mental healthcare, negative clinician behavior, difficult medical encounters] Have you ever read something that left you speechless? I have so many thoughts and feelings about this article – ones that I can’t express with any sort of coherence at the time. What I can say: clinicians READ THIS (finger pointing down […]

A woman on the back of a smiling man. She wears a red shirt and jeans with holes around her knees and he wears a grey shirt and has a beard.

EDS, Dating & Internalized Ableism

I sat in my car on the edge of the San Francisco Bay during a huge storm staring at my phone, finger hovering over the button on a dating app to post a profile that, if pushed, had the potential to change my life. I had recently moved back to the Bay Area and was […]