Archive for the ‘Community’ Category
Posted on November 2, 2022
For our November newsletter, journalist Karina Sturm interviewed Brianne Benness, the host of No End In Sight, a podcast about life with chronic illness and a chronically ill person’s journey to diagnosis. She is a co-founder of Stories We Don’t Tell, where she talks about hypermobility, mast cell disorders, and recontextualizing old experiences using new […]
Posted on June 23, 2022
For our July newsletter, the Chronic Pain Partner media team is excited to introduce the EDS community to the new middle-grade* fiction book “Fight + Flight,” which features a character with EDS! Journalist Karina Sturm had the pleasure to talk to author Jules Machias about their life with Ehlers-Danlos syndrome, their career as a writer, […]
Posted on June 23, 2022
For our July newsletter, journalist Karina Sturm spoke with Donna Sullivan, board member of The Coalition Against Pediatric Pain (TCAPP). Sullivan lives with EDS and has several affected children as well. In this interview, she shares with Chronic Pain Partners her decade-long experience working with families accused of child abuse due to a medically […]
Posted on April 19, 2022
John Ferman Gilbert Torres Ehlers-Danlos syndrome is a condition that affects every person differently. Even within the same type, symptoms can […]
Posted on April 29, 2021
Chronic Pain Partners 501(c)(3) is a gold Sponsor for this Event. Florence, WI | Saturday, May 21, 2022 at 9:00 AM CST info@runlikeazebra.com | 715-301-0905 Race Information 1k & 5K Run, Walk or Roll Place Date and Time 749 Central Ave Florence, WI 54121 Saturday, May 21, 20229:00 am CST Details The […]
Posted on August 24, 2020
New Feature-Length Ehlers-Danlos Documentary Fellow Zebras, medical professionals, and everyone living with an invisible condition, We want to invite you to join the On Line screening of the film ‘We Are Visible’, a feature-length documentary about people living with Ehlers-Danlos syndrome Click here for the link to the […]
Posted on July 28, 2020
Cincinnati Children’s Hospital has a Connective Tissue Disorder Clinic helping children with Ehlers-Danlos Syndrome. This video celebrates the hospital’s impact on children and their families.
Posted on July 25, 2020
EDS and School Children
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