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Parental Preparation for Securing Accommodations at K-12 School for Children with the Ehlers-Danlos Syndromes

March 28, 2023

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4 Tips on How To Navigate School as a Student with Ehlers-Danlos Syndrome

March 1, 2023

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Unaccommodating Accommodations

February 26, 2023

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Book Review: The Bendy Twisty Zebra by Kimby Maxson

February 23, 2023

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Surgery Prep: Meeting Your EDS Hospital Stay Needs

February 22, 2023

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Advocate Nthabeleng Ramoeli on her EDS journey, EDS care in Lesotho, and why she established an NGO to help all rare disease patients

December 23, 2022

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A woman with chin-long light brown hair stands in front of a fountain. She wears a blue shirt and a black blazer and smiles.

Author Jessica MacLean on how writing saved her and what she learned from her ancestors

December 22, 2022

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A screenshot from an Instagram account showing a man with a blue hospital gown and a infusion next to him, looking proud at a screen on a wall that says "We love Mitch"

Mitch Martow on his EDS journey and the documentary Bend or Break

December 22, 2022

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