HSD

What Is “Neuro-EDS” and Why Are People Talking About It?

August 15, 2026

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A minimalist watercolor-style illustration of a young Asian woman performing a dumbbell chest press while lying on an exercise mat. She wears a light zebra-print athletic top, gray shorts, white compression socks, and white trainers. Beige kinesiology tape is applied to her upper arm. The bright, neutral-toned home workout space includes a potted plant and simple shelving, conveying a calm, low-impact strength training environment.

Strength Training with Hypermobility: The Goldilocks Principle

August 8, 2026

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Illustration of a uterus and ovaries overlaid on a grid of white tiles, symbolizing the shift from viewing PCOS as an ovarian condition alone to recognizing PMOS as a complex multisystem endocrine and metabolic disorder.

A Name Long Overdue: PCOS Becomes PMOS, and What That Means for the hEDS Community

August 5, 2026

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Overhead view of multiple blister packs containing different prescription medications and tablets beside medication bottles and a tissue on a white surface, representing the complexity and emotional burden of starting and managing medications with chronic illness.

The Fear No One Talks About: Starting a New Medication When Chronically Ill

August 3, 2026

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Abstract scientific illustration of interconnected protein-like molecular networks in shades of navy blue, light blue, gray, black, and white on a clean white background. Glossy circular nodes are connected by thin lines to form two minimalist network clusters, with small scattered dots suggesting additional molecules. The image is decorative and represents protein interaction networks and proteomics rather than specific biological structures.

New Study Finds Shared Protein Signatures in hEDS and HSD

July 8, 2026

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Things People Have Done That Made Me Feel More Comfortable as Someone with Chronic Illness

July 2, 2026

Sitting in the Hard Stuff There are moments with chronic illness that are just genuinely horrible all the way around. No silver lining, no lesson, just a terrible day in a body that is kicking you when you’re down. Having people who are willing to sit in that with me when I have nothing to […]

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"Graphic for Disability Pride Month featuring the Disability Pride flag with diagonal red, yellow, white, blue, and green stripes on a dark gray background, overlaid with a black accessibility wheelchair symbol in the center."

Disability Pride Month: The World Works Better With Us

July 1, 2026

Tayler Goectau, AuthorClinical Research CoordinatorDisability Advocate@distaaybledJuly , 2026

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Soft sketch-style illustration of an upright MRI machine with a dark-haired patient seated inside wearing MRI-safe clothing. A female MRI technologist stands beside the machine, speaking with the patient and adjusting the controls. The image depicts a weight-bearing upright MRI in a calm clinical setting.

Seeing the Spine in Motion: Exploring the Potential Benefits of Upright MRI in EDS

June 11, 2026

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