Archive for the ‘Sports’ Category

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Telling My Teammates “I Have Ehlers-Danlos Syndrome”

Posted on February 25, 2017

By KYLE GRABOWSKI @kylegrbwsk NORTHAMPTON — Hannalise Rivera-Lovett jumped to intercept a pass. She was playing in a summer league basketball game at JFK Middle School between her sophomore and junior seasons to stay fresh for the winter. Everything above her knee went one way, everything below went the other. The torque caused a subluxation […]

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Shea overcomes Ehlers-Danlos Syndrome in the Pool

Posted on July 4, 2015

9-year-old Shea has discovered that swimming reduces his EDS pain. Aquatic activity is one of the best exercises for those with Ehlers-Danlos Syndrome. Shea Sargent is only 9-years old, but he’s

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Ohio State University Women’s Ice Hockey Team held an Ehlers Danlos Syndrome Awareness Night

Posted on February 15, 2015

              “On February 13, The Ohio State University Women’s Ice Hockey Team held an Ehlers Danlos Syndrome Awareness Night to support their teammate Erin Selfe (10), her family and the EDS Community during Rare Disease Month. Erin became a member of the Ohio State Team through Team IMPACT, a […]

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10-year-old with Ehlers-Danlos syndrome Joins UWGB’s Softball Team

Posted on January 29, 2015

10-year-old Ellen joins the University of Wisconsin’s softball team as an honorary member. Now, this young EDSer can experience the camaraderie of team sports – without the physical risk. By Korey Mallien. “The chronic pain and fatigue that 10-year-old Ellen Tellstrom deals with every day subsided this week when she met her new college softball teammates. “It was amazing,” […]

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Gabrielle’s Personal Battle with Ehlers-Danlos Syndrome

Posted on January 20, 2015

After being diagnosed with Ehlers-Danlos Syndrome, high-school student Gabrielle found comfort with members of the Young Life organization. She found purpose and motivation through her renewed spiritual connection. “Right after I got diagnosed with Ehlers-Danlos Syndrome (EDS) and figured out I could not play volleyball, I truly was devastated. I felt like I was missing out […]

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5th Grader with Ehlers-Danlos Joins OSU Women’s Hockey Team: Watch VIDEO

Posted on January 7, 2015

Watch this fun video of 10-year-old Erin joining the Ohio State Hockey Team through a program called Team IMPACT. Since Ehlers-Danlos makes Erin more susceptible to injury, it’s unlikely she’ll be able to participate in sports with her peers. But, spending time with the Buckeyes gives Erin the experience of being on a team. Erin has gained the […]

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Tennis Coach Gives Hope to Teen with Ehlers Danlos Syndrome

Posted on September 6, 2014

Megan has a new motivation to stay active despite Ehlers Danlos Syndrome. Her high-school tennis coach has paved the way for her to participate in modified varsity competition! Her strength and dedication has inspired her coach and peers. Megan also participates in the EDS support group in Columbus, Ohio. By Steve Blackledge “Les Somogyi couldn’t help but feel for […]

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