Memorials
Remembering Beloved EDS Specialist Dr. Rodney Grahame (1932-2026)
On March 29, 2026, the EDS community lost one of our most beloved specialists and longtime champions of EDS, UK rheumatologist Dr. Rodney Grahame. He will be remembered as one of the earliest and most vocal advocates for EDS awareness. I was first tipped off to the world of hypermobility at age 40 by my […]
Beauty queen Saarah Ahmed passes away after her long battle with Ehlers-Danlos Syndrome
Click Here for a link to the original story View this post on Instagram A post shared by In loving memory of Saarah (@saarahs_foundation)
My Wife Had EDS and Did Not Know IT! – 8th Year Anniversary
This website and its free programs are dedicated to the memory of Carol and thousands like her – who suffer from undiagnosed Ehlers-Danlos… We were married for 41 years. You’d think that after all of that time you would know everything there was to know about a person. – I knew Carol was a loving […]
