Beauty queen Saarah Ahmed passes away after her long battle with Ehlers-Danlos Syndrome

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2 thoughts on “Beauty queen Saarah Ahmed passes away after her long battle with Ehlers-Danlos Syndrome”

  1. A J Dunnell says:

    I am glad to hear that Wales funded this sad case. I have had no such help. My doctor referred myself & son to a Consultant. Our appointment is in London in 16 th June. I will be paying £350.00 per hour for the one hour appointment. £700 in total which is being saved out of my benefit. It took 50 years to diagnose me. I see EDS in my son & grandchildren. I have no trust or faith in GPs.

    1. john says:

      All the best with your doctor appointment. Check out https://www.hypermobility.org/ and our resources at https://www.chronicpainpartners.com/webinars/

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