Archive for the ‘Rare Disease Day’ Category

CN Tower Will Have Blue Lights to Commemorate Rare Disease Day

Posted on February 27, 2015

This Saturday (2/28) Ehlers-Danlos Syndrome Canada will commemorate Rare Disease Day with the lighting of the CN Tower in blue at sundown. EDS is considered to be a rare disease; but experts say it is more prevalent than once thought – because it’s rarely diagnosed!  To learn more about prevalence, watch Dr. Neilson’s video here. By Lisa Rainford of Bloor […]

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Rare Disease Month Artwork Includes Ehlers-Danlos

Posted on February 25, 2015

Rare Disease Month brings out the images of those who are struggling with the challenges of Ehlers-Danlos Syndrome and other debilitating disorders. “Beyond the Diagnosis” is an art exhibit that features a piece depicting an EDSer and her caregiver. By Jacyln Torres Contributing Writer “Beyond the Diagnosis,” hosted for Rare Disease Month, aims to humanize portrayed […]

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