What Two New Studies Say About the Head, Neck, and hEDS People with Ehlers-Danlos syndrome have heard for years that their symptoms are “in their head.” In one sense, that may be true—but not in the way we all hate to hear. When it comes to symptoms like headaches, nausea, dizziness, brain fog, visual disturbances, […]
Karina Sturm: Hi Jeevan, so good to see you again! When did your Ehlers-Danlos journey start? Jeevan Mann: I’ve had symptoms my entire life. I’ve been an athlete, so I’ve played almost every sport you could think of, from tennis, golf, boxing, and jujitsu. Throughout that, it became quite apparent that I was different from […]
A new study, led by Dr. Cortney Gensemer, marks a genetic breakthrough in hEDS research. The KLK15 variant (p.Gly226Asp) has been identified as a direct disease-causing gene in hypermobile EDS, causing connective tissue dysfunction and immune system dysregulation.
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