Welcome, pardner, to our new feature, Research Round-up! In each issue, we’ll bring you summaries of some of the latest EDS research to hit the medical journals. We’ll usually have five or so articles, but we’ve got a special edition this time—10 articles for your information and enjoyment! Yee-haw! Hitch up your horse, grab a […]
New research by a German group of scientists published in the European Journal of Neurology seeks to understand if there is an underlying common cause among hypermobile EDS (hEDS), small fiber neuropathy (SFN), and postural orthostatic tachycardia syndrome (POTS). Their research sheds light on a possible common mechanism behind those three conditions. SFN, POTS & […]
RI EDS Awareness and Support Group display Krista Brack krista@rieds.org www.rieds.org We made candy brains for the neurosurgeons, it was a huge hit.
Watch the recording of this free webinar. Sponsored by www.bodysupportstore.com TOPIC: “Chiari Malformation in EDS” PRESENTER: Dr. Holly Gilmer Click IMAGE for a link to the recording Click here for a link to the presenter’s slides INVITE YOUR FRIENDS: Spread the knowledge! Please post this announcement on Facebook, and forward this invitation to others who […]
Watch the recording of this free webinar. Sponsored by www.bodysupportstore.com TOPIC: “Tethered Cord Syndrome in Ehlers-Danlos” PRESENTER: Petra Klinge, MD, PhD Click IMAGE for a link to this recording Click here for a link to the presenter’s slides INVITE YOUR FRIENDS: Spread the knowledge! Please post this announcement on Facebook, and forward this invitation to others who may […]
January 5, 2016
Live Webinar at 7:30 pm EDT
Dr. Petra Klinge (Neurosurgeon) presents “Tethered Cord Syndrome in Ehlers-Danlos”.