Mast Cell

Dr Linda Bluestein works with her patient to film the documentary

Help Shine a Spotlight: Unveiling the Hidden Triad of MCAS, Hypermobility, and Dysautonomia Through an Upcoming Film

In the vast landscape of healthcare, there are conditions that lurk in the shadows, unseen and often misunderstood such as Mast Cell Activation Syndrome (MCAS), symptomatic joint hypermobility and dysautonomia. Like a camera lens focusing on the minutiae of life, a group of dedicated expert doctors are leading the way in exposing these complex conditions […]

book opened on white surface selective focus photography

Books on Ehlers-Danlos Syndrome

With growing awareness about the Ehlers-Danlos syndromes, varying resources in different types of media developed over the last years. Our Chronic Pain Partners’ Team is collecting their favorite books, podcasts and films on EDS and its comorbid condition in a series of listicles you will find on our website over the next months. We are […]

A translucent person with the gut highlighted

Gut Check: Gluten Intolerance, Celiac Disease, or Mast Cell Reaction?

It is challenging to find the source of our gut problems, so many of us have related to hypermobility. The volunteer media team at Chronic Pain Partners tried to tackle the basics so our readers could have a brief introduction to the variances and testing available for different diagnoses of these often ‘gut-wrenching’ illnesses.  Note: We […]

An illustration of several surgeons with masks and hats.

Surgery Prep: Meeting Your EDS Hospital Stay Needs

How to be prepared & stay safe when having a hospital stay with Ehlers-Danlos syndrome (EDS) This article will give an overview of ways you can prepare for a hospital stay when you have EDS, as well as tips on surgical prep and your own patient advocacy. People with Ehlers-Danlos syndrome (EDS) often need surgery […]

An illustration of a white suitcase with a Red Cross.

Basic Emergency Care Planning for EDS Patients

Creating an emergency plan document is essential for patients with Ehlers-Danlos syndrome (EDS) and its many comorbidities, especially allergic or mast cell activation reactions. Take time to prepare in advance for an emergency before you get hit by a crisis by following these step-by-step instructions for your own safety and well-being. Create a written plan […]

Teenage Girl Who Is Allergic to Almost Everything: ‘I Want My Old Life Back’

CAITLIN KEATING December 26, 2018 08:30 AM Fifteen-year-old McKenze Messman was living every teenager’s dream during the summer of 2015. The soon-to-be freshman at Waverly High School in Waverly, Nebraska, was spending her days at the pool, waterskiing on nearby Johnson Lake, and going to cheerleading practice three times a week after landing a spot on […]

Many With Ehlers-Danlos have Reactions to Fragrances

The following is an article published by The Invisible Disabilities Association    Why Go Fragrance Free? Millions Report Adverse Reactions to Perfumes and Fragrances. Most of us are aware of potentially harmful substances in the environment such as pollution, exhaust fumes and cigarette smoke. We even know that inhaling or using some cleaning products, paint, […]

EDS, POTS and MCAS Linked by One Gene Mutation

Author: Kate Horowitz On a good day, my shoulders, knees, and hips will dislocate two to five times apiece. The slightest bump into a table or door will bloom new bruises on my arms and legs or tear a gash in the thin skin on my hands. My blood pressure will plummet each time I stand, […]