Archive for the ‘Mast Cell’ Category

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Gut Check: Gluten Intolerance, Celiac Disease, or Mast Cell Reaction?

Posted on August 22, 2023

It is challenging to find the source of our gut problems, so many of us have related to hypermobility. The volunteer media team at Chronic Pain Partners tried to tackle the basics so our readers could have a brief introduction to the variances and testing available for different diagnoses of these often ‘gut-wrenching’ illnesses.  Note: We […]

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Surgery Prep: Meeting Your EDS Hospital Stay Needs

Posted on February 22, 2023

How to be prepared & stay safe when having a hospital stay with Ehlers-Danlos syndrome (EDS) This article will give an overview of ways you can prepare for a hospital stay when you have EDS, as well as tips on surgical prep and your own patient advocacy. People with Ehlers-Danlos syndrome (EDS) often need surgery […]

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Basic Emergency Care Planning for EDS Patients

Posted on February 21, 2023

Creating an emergency plan document is essential for patients with Ehlers-Danlos syndrome (EDS) and its many comorbidities, especially allergic or mast cell activation reactions. Take time to prepare in advance for an emergency before you get hit by a crisis by following these step-by-step instructions for your own safety and well-being. Create a written plan […]

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Teenage Girl Who Is Allergic to Almost Everything: ‘I Want My Old Life Back’

Posted on December 27, 2018

CAITLIN KEATING December 26, 2018 08:30 AM Fifteen-year-old McKenze Messman was living every teenager’s dream during the summer of 2015. The soon-to-be freshman at Waverly High School in Waverly, Nebraska, was spending her days at the pool, waterskiing on nearby Johnson Lake, and going to cheerleading practice three times a week after landing a spot on […]

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Many With Ehlers-Danlos have Reactions to Fragrances

Posted on February 15, 2018

The following is an article published by The Invisible Disabilities Association https://invisibledisabilities.org/    Why Go Fragrance Free? Millions Report Adverse Reactions to Perfumes and Fragrances. Most of us are aware of potentially harmful substances in the environment such as pollution, exhaust fumes and cigarette smoke. We even know that inhaling or using some cleaning products, paint, […]

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EDS, POTS and MCAS Linked by One Gene Mutation

Posted on October 17, 2016

Author: Kate Horowitz On a good day, my shoulders, knees, and hips will dislocate two to five times apiece. The slightest bump into a table or door will bloom new bruises on my arms and legs or tear a gash in the thin skin on my hands. My blood pressure will plummet each time I stand, […]

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Free Webinar: “Mast Cell Activation Syndrome” – Recording Available

Posted on June 10, 2016

Watch the recording of this free webinar. Sponsored by www.bodysupportstore.com      TOPIC: “Mast Cell Activation Syndrome” PRESENTER: Dr. Lawrence Afrin     Click IMAGE for the recording of this presentation. Click here for the link to the presentation slides   INVITE YOUR FRIENDS: Spread the knowledge!  Please post this announcement on Facebook, and forward this to others […]

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