How to be prepared & stay safe when having a hospital stay with Ehlers-Danlos syndrome (EDS) This article will give an overview of ways you can prepare for a hospital stay when you have EDS, as well as tips on surgical prep and your own patient advocacy. People with Ehlers-Danlos syndrome (EDS) often need surgery […]
Creating an emergency plan document is essential for patients with Ehlers-Danlos syndrome (EDS) and its many comorbidities, especially allergic or mast cell activation reactions. Take time to prepare in advance for an emergency before you get hit by a crisis by following these step-by-step instructions for your own safety and well-being. Create a written plan […]
CAITLIN KEATING December 26, 2018 08:30 AM Fifteen-year-old McKenze Messman was living every teenager’s dream during the summer of 2015. The soon-to-be freshman at Waverly High School in Waverly, Nebraska, was spending her days at the pool, waterskiing on nearby Johnson Lake, and going to cheerleading practice three times a week after landing a spot on […]
The following is an article published by The Invisible Disabilities Association https://invisibledisabilities.org/ Why Go Fragrance Free? Millions Report Adverse Reactions to Perfumes and Fragrances. Most of us are aware of potentially harmful substances in the environment such as pollution, exhaust fumes and cigarette smoke. We even know that inhaling or using some cleaning products, paint, […]
Author: Kate Horowitz On a good day, my shoulders, knees, and hips will dislocate two to five times apiece. The slightest bump into a table or door will bloom new bruises on my arms and legs or tear a gash in the thin skin on my hands. My blood pressure will plummet each time I stand, […]
Watch the recording of this free webinar. Sponsored by www.bodysupportstore.com TOPIC: “Mast Cell Activation Syndrome” PRESENTER: Dr. Lawrence Afrin Click IMAGE for the recording of this presentation. Click here for the link to the presentation slides INVITE YOUR FRIENDS: Spread the knowledge! Please post this announcement on Facebook, and forward this to others […]
Tuesday June 14, 2016
Live Webinar at 7:30 pm EDT
Dr. Lawrence Afrin addresses
“Mast Cell Activation Syndrome”
in Ehlers-Danlos patients.
. . Physicians are invited to the Wellapalooza 2016 Physicians Learning Lunch. . . . This an integrative health and wellness conference on June 10th -12th, 2016. While Wellapalooza is more a patient-focused conference, it most certainly is open to all healthcare providers as well. Additionally, we are holding a Physicians Learning Lunch in conjunction with Wellapalooza 2016 […]
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In memory of John Ferman, Founder and President of Chronic Pain Partners / EDS Awareness
EDS Physical Therapy Book & Free Webinar: “Living Life to the Fullest with Ehlers-Danlos Syndrome”